jlh658 (@jlh658)

Hi Barb,thanks for sharing. No rashes or swelling anywhere so far. This is a nasty disease. I thought I was done getting new issues since I have had all my teeth pulled and have a mouthful of implants, wear hearing aids to try to counter act the tinnitus I have gotten, have moderate to severe kidney issues and of course the terribly dry eyes and infections. Also have two spots on my lung they have been watching. My mom is 87 and only has terribly dry eyes and thats lucky for her. But I got it around 40 so I assume thats why everything is worse. Who knows? I am not anxious to make dietary changes but I will try that since I am so tired of taking medicine. I appreciate the way everyone shares what they have and what they do to try and help. I appreciate all of you. Thanks Judy

Hi I have had Sjogrens for about 20 yrs, Just started having joint pain in both thumbs and and my toes. At first I thought it was arthritis but now assuming its from Sjogrens. Don't have appt with rheum. for awhile. Any suggestions to ease the pain make it go away? And curious why it started–just progression of the disease? Appreciate any comments!!!!

I have had Sjogrens for about 15 years. My kidney function is decreasing and now diagnosed with chronic kidney failure stage 3. Had a biopsy –directly due to the Sjogrens and now am on cellcept 1500 mg a day to keep my immune system from attacking my kidneys even more. Does anyone else have issues with this as well. Thanks