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Sep 17, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I have had the same frustration through the years with dermatologists that I have seen. All just want to treat my EN with heavy prescription drugs, but never address the cause or suggest any changes in diet.

Sep 17, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I, too, have suffered with EN for many years, but, fortunately, have never experienced the pain so many have expressed in this network. I started taking two Advil in the morning and one Advil at night before bed about two months ago and have seen unbelievable improvement in the level of inflammation.

Jan 31, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I am 69 years old and have experienced Erythema Nodosum since February, 2007. After a severe and long respitory infection and several rounds of antibiotics, I noticed a round, hot and inflamed area located on the inside of my lower left leg. I had no pain, therefore, didn’t see a doctor for four months. I thought the inflammation would heal with time, not realizing the fact that I had an autoimmune disease. My dermatologist did a biopsy and determined that it was EN. After a year of trying different medications my EN condition subsided after taking Potassium Oxide for four months. The resulting scar was a dark, sunken area about 4 inches in diameter that never changes or improves. I have had three more cases of EN on the same lower leg, the last one being in 2015 and continues to this day. I went to a new dermatologist last spring (March 30th) who prescribed Celebrex for the inflammation and Plaquenil to dissolve the nodules. Thankfully, the Celebrex has helped an aching neck pain, but has done nothing for the EN. Likewise, the Plaquenil has done nothing to dissolve the nodules under the skin. I feel very fortunate that I haven’t experienced the extreme pain that I see many have endured with their EN condition. I discontinued the Plaquenil last month because I ended up in the emergency room with diverticulitis a week before Christmas and found that taking Flagl, Cipro and Plaquenil together equals disaster to the digestive system. In the meantime, I have recently read in the long instruction leaflet that comes with my Vivelle Dot hormone replacement therapy patches (using since 2007), that this HRT drug can cause Erythema Nodosum! Therefore, I have discontinued using HRT and, viola, entered into the new world of hot flashes! I have an appointment with my dermatologist next week and will let you know his conclusions.