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Nov 18, 2019 · Can Joy and Grief Live Together? in Loss & Grief

Tommy and I met, at age 15, in the summer of 1963, at a local beach where he was the only lifeguard. My friends and I hung around his lifeguard stand, and later learned that we were part of a group of girls known in his crowd as the "beach barnacles"! My parents wouldn't allow me date yet, but they let me go to the school dances with him if we went with another couple. He was tall, handsome and a great dancer. I was in love, but at summer's end, we parted ways with a tearful and what we thought to be a final goodbye. Tommy and I lived in neighboring cities, but when the new school year began for each of us, life moved on to other relationships and experiences. After graduating, we each eventually married others, but following my divorce and him losing his wife to cancer, we met again after 32 years. Our first date turned out to be the beginning of a fairytale romance that our friends and families watched with total delight and joy. We married a year later and started our life together with a strong foundation of love, and many hopes and dreams. He was a successful real estate developer and business owner, and I owned my own events management company. Together we were a dynamic team…partners, lovers, dreamers, creators. He developed vacation homes at the very same beach where we originally met, while I designed and decorated them all. Our faith, family and friends fed us with all the love we could ever wish for in our lifetime. To know Tommy was to love him… Tommy leaves behind a legacy of fond and loving memories for all who were blessed to be part of his life. He was known for his generous, loving heart. His staff and business associates would say that he was always respectful, a good listener, understanding and an inspiration to all….lifting up all levels to their utmost potential. He was a great leader, mentor and motivator. He was charismatic, gracious, compassionate, polished and always had a big smile for everyone. He was competitive and enjoyed playing tennis, golf and a long night of Texas Holdem'. Friends mourn his absence in their lives so much and feel the pain of loss every day, just as I am. I just have to believe that his beautiful spirit lives within my heart and soul, because, as he always wrote in every greeting card he gave me, "We are one, always and forever!

Nov 18, 2019 · Can Joy and Grief Live Together? in Loss & Grief

i LOST MY HUSBAND AND LOVE OF MY LIFE, TOMMY, AGE 71, ON MAY 21ST, 2019. THIS THURSDAY WILL BE 6 MONTHS SINCE HE DIED IN HIS SLEEP NEXT TO ME IN OUR BED. i WOKE UP TO HIS CELLPHONE ALARM RINGING THAT HE HAD SET THE NIGHT BEFORE, BUT NEVER MOVED TO TURN IT OFF. HE WAS ON HIS SIDE FACING ME AND HIS ARM WAS STILL UNDER MY PILLOW. THERE WAS NO WARNING…HE PLAYED TENNIS, GOLF AND POKER DAYS BEFORE, AND WE HAD JUST PACKED THE CAR THAT DAY TO MOVE FROM OUR FLORIDA HOME TO OUR VIRGINIA HOME FOR THE SUMMER MONTHS. THE DAY OF HIS SUDDEN DEATH CHANGED MY LIFE FOREVER, BUT EACH DAY I FIND SOME SOLACE AND PEACE BY MIXING THE JOY AND HAPPINESS THAT FRIENDS AND FAMILY CAN BRING TO COMFORT MY GRIEVING HEART. I READ RECENTLY THAT YOU DON'T "MOVE ON" FROM YOUR GRIEF, YOU "MOVE FORWARD" WITH YOUR GRIEF. i ACCEPT THAT GRIEF, JOY, SADNESS, LAUGHTER, TEARS, HOPE AND MORE, WILL BE PART OF MY DAILY EMOTIONS FOREVER. I WOULDN'T EXPECT ANYTHING LESS, AS I LOVE AND MISS HIM SO MUCH. IT'S WHO I AM NOW, BUT I WILL BE FOREVER GRATEFUL FOR THE 24 YEARS OF OUR BEAUTIFUL LIFE TOGETHER AND FOR THE TREASURED MEMORIES HE LEFT BEHIND FOR ME TO SAVOR, LOVE AND ENJOY.

Sep 17, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I have had the same frustration through the years with dermatologists that I have seen. All just want to treat my EN with heavy prescription drugs, but never address the cause or suggest any changes in diet.

Sep 17, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I, too, have suffered with EN for many years, but, fortunately, have never experienced the pain so many have expressed in this network. I started taking two Advil in the morning and one Advil at night before bed about two months ago and have seen unbelievable improvement in the level of inflammation.

Jan 31, 2017 · Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS) in Autoimmune Diseases

I am 69 years old and have experienced Erythema Nodosum since February, 2007. After a severe and long respitory infection and several rounds of antibiotics, I noticed a round, hot and inflamed area located on the inside of my lower left leg. I had no pain, therefore, didn’t see a doctor for four months. I thought the inflammation would heal with time, not realizing the fact that I had an autoimmune disease. My dermatologist did a biopsy and determined that it was EN. After a year of trying different medications my EN condition subsided after taking Potassium Oxide for four months. The resulting scar was a dark, sunken area about 4 inches in diameter that never changes or improves. I have had three more cases of EN on the same lower leg, the last one being in 2015 and continues to this day. I went to a new dermatologist last spring (March 30th) who prescribed Celebrex for the inflammation and Plaquenil to dissolve the nodules. Thankfully, the Celebrex has helped an aching neck pain, but has done nothing for the EN. Likewise, the Plaquenil has done nothing to dissolve the nodules under the skin. I feel very fortunate that I haven’t experienced the extreme pain that I see many have endured with their EN condition. I discontinued the Plaquenil last month because I ended up in the emergency room with diverticulitis a week before Christmas and found that taking Flagl, Cipro and Plaquenil together equals disaster to the digestive system. In the meantime, I have recently read in the long instruction leaflet that comes with my Vivelle Dot hormone replacement therapy patches (using since 2007), that this HRT drug can cause Erythema Nodosum! Therefore, I have discontinued using HRT and, viola, entered into the new world of hot flashes! I have an appointment with my dermatologist next week and will let you know his conclusions.