About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (41)

Sat, May 11 12:10am · Gastroparesis in Digestive Health

Thank you for sharing @juliew0205! I get help from all the posts here!
(I do get my mayo Gastroparesis threads mixed up though. )

Someone somewhere posted something about the diet for Gastroparesis. I agree. Hard to follow if you also have type 2 diabetes where you need high fiber and low carbs. The Gastroparesis diet is low fiber and high carbs!

And other conditions complicate diet even further. Based on all of my “conditions” I need to be on a low fiber, low carb, low sodium, low fat, low acid eating plan! Lol! 😂 😂😂

It’s hell getting old y’all!

I think the eating plan for Gastroparesis is evolving though. The first guide I got last year showed oatmeal and lettuce on the forbidden list. But a new eating plan I got at my gastroenterologist ‘s office a month ago shows quick oats and iceberg lettuce are ok! Those 2 items opened up a whole new world for me!

Mon, Feb 25 6:18pm · Barrett’s esophagus in Digestive Health

@riflemanz64 I think you must be the best patient EVER! I have never been accused of drinking too much water!
Thank you for asking about my RFA procedure at the end of December. For some reason it takes me about 10 days to get over the procedure. No sore throat or pain — just feel bad that long from the anesthesia and the anti nausea meds.
I still have areas of low grade dysplasia. Will have 4 more RFAs — 2 this year and 2 next year.

Fri, Feb 8 11:36pm · Gastroparesis in Digestive Health

@lawl I am so sorry you have all those symptoms! I have Gastroparesis but I don’t have any of the same symptoms you have. I think you said you were diagnosed with IBS. Are the symptoms you’re having common with IBS?

Fri, Jan 25 9:51pm · Gastroparesis in Digestive Health

Hello @hgarm. My diagnosis of Gastroparesis came after my first radio frequency ablation of low grade dysplasia related to Barrett’s esophagus. When they were mapping the areas to be treated, they saw undigested food in my stomach that shouldn’t have been there. The surgeon reported that to my gastroenterologist who immediately said “you have Gastroparesis.”

I started googling and based on what I read about how people end up with Gastroparesis, I didn’t believe I had it. I asked to have the stomach emptying study done to confirm the diagnosis. That study showed that I do have moderate Gastroparesis. (But not severe like my doc had thought based on the food left in my stomach.)

As I’m sure you already know, Gastroparesis means your stomach empties too slowly. I was not aware I was having any symptoms before I was diagnosed. But then I realized this was likely the reason why I was always feeling like I was full after only taking 2 or 3 bites of a meal. I also had some vomiting and diarrhea.

Since I’ve been on a low fiber diet and I’m taking domperidone, I’ve been much better. And although food is no longer sitting in my belly, I still can’t eat very much. I guess that’s because food still doesn’t move thru my belly very quickly.

Tue, Jan 22 11:18pm · Barrett’s esophagus in Digestive Health

I think the reason they don’t do radio frequency ablation if there is no dysplasia present is because of the risks associated with the RFA procedure itself. Here’s an excerpt from the printed material I brought home after last RFA 12/28/18:
“Risks of pancreatitis, infection, perforation, hemorrhage, adverse drug reaction and aspiration were discussed.”

So I don’t think anyone would want to take those risks unless the risk of developing cancer was increasing. And the good news there is that the percentage of Barrett’s cases that develop dysplasia and then cancer is very small.

And of course there’s always the cost factor! I doubt if insurance will pay if there is no dysplasia.

Let us know what your doc says about the RFA procedure for Barrett’s without any dysplasia.

Mon, Jan 21 11:36am · Barrett’s esophagus in Digestive Health

I wonder too about if it makes a difference which med you take. I went thru several kinds 20 years ago before we found that Prevacid worked best for me. It stopped the heartburn. The amount I take has gradually increased over the years. I now take a 30 mg capsule twice a day. And I guess I’ll be taking Prevacid forever because if I miss one pill the heartburn returns with a vengeance! Lol!

Mon, Jan 21 8:56am · Barrett’s esophagus in Digestive Health

@riflemanz64 I hope you stick with your new eating plan. I stuck with mine for a while after I was diagnosed so long ago. But I gradually went back to where I was drinking cokes and eating chocolate and Mexican food — just smaller amounts than before!

The Prevacid I’ve taken for 20 years suppressed — and still suppresses — the production of acid. So those foods weren’t giving me heartburn anymore. And I now have low grade dysplasia! So did I cause this myself because of poor food choices? Probably.

Mon, Jan 21 12:11am · Barrett’s esophagus in Digestive Health

@riflemanz64 I’m sorry you’ve been diagnosed with Barrett’s. To answer your question, I think what you’re doing now is your treatment from now on — eating differently and taking protonix. They may also Have you raise the head of your bed about 6 inches.

In the 20 years since diagnosed, I’ve always been told that it can’t be reversed. So when I had my EDGs every 1 1/2 to 2 years I hoped my Barrett’s had not worsened — that it was the same. And that’s what happened for 18 years.

But then I developed segments with low grade dysplasia — thus the radio frequency ablation procedures now that I have a hard time bouncing back from.

I hope your Barrett’s never worsens. Take your meds and stick with your new eating plan.