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Posts (123)

Sun, Mar 8 7:46pm · Clearing lung technique I found by accident in MAC & Bronchiectasis

I have also learned about nebulizing saline on this site and requested the prescription from my Dr. At first he gave me .9% I used that for a while. Then I requested 3%. Which is what I’m still using daily. My next appointment I think i will request 7% just to have it on hand in case I need it. I was Dx with nodules 2013 but my former pulmonologist never requested I be tested for anything else. I was Dx with MAC/MAI in 2016 after a lung surgery. Got a new Dr, got on this site and thankfully still no meds for me. I’m very grateful for all help and the excellent advice I have received here.

Tue, Mar 3 7:45am · Clearing lung technique I found by accident in MAC & Bronchiectasis

I think it’s called “postural drainage”

Mon, Feb 3 5:27pm · My MAC and bronchiectasis treatment in MAC & Bronchiectasis

@unicorn I had never had ANY medical problems before the palpitations, and I wasn’t on any type of medication. I barely took antibiotics if I got sick. Excellent blood pressure, cholesterol and weight. When I went to the Dr the first time it happened, I asked if it could be a symptom of menopause. I was 54 and had started menopause. I was always a very healthy, athletic person; gym, Scuba diving, sports, hiking, vacations etc. No heart disease in my family. Menopause was the only thing I could think of. My parents were smokers and I did smoke, but I had quit about 20 years before. I do drink occasionally, but not excessively, and I never did any types of drugs. I don’t know when I got bronchiectasis or MAC/MAI, or if one thing had anything to do with the other, (meaning palpitations and lung issues). I’m just glad I don’t have the palpitations anymore. Good luck and I hope you have your answers soon.

Mon, Feb 3 12:56pm · My MAC and bronchiectasis treatment in MAC & Bronchiectasis

@unicorn I started having palpitations about a year before I had my MAC diagnosis. That’s what sent me to the Dr to start with. It was during an x ray and then subsequent CT scan that my Dr saw the nodules and then the NTM and bronchiectasis diagnosis came after my hemoptysis. I had then also been Dx with atrial fibrillation (A Fib) and had an ablation procedure. I wonder if the shortness of breath could contribute to the palpitations. I haven’t had it again since the ablation 2 years ago and I’ve never taken any of the antibiotics for the NTM. Just another mystery of this disease.

Tue, Jan 28 7:31pm · 7% Saline Solution in MAC & Bronchiectasis

I had to ask my pulmonary Dr to prescribe the saline to nebulize after reading about it on this forum. He prescribed the .9%, I think it was to just help thin the mucus. I requested he change the prescription to 3%, again after reading about it here. I seem to be doing ok. I just had a CT scan 1 week ago, and he said everything seems to be the same, not better but NOT worse. So as of now I’ll continue with the 3%.

Wed, Jan 22 5:01pm · Dentist in MAC & Bronchiectasis

I spoke to my hygienist before she began cleaning my teeth. She knew about NTMs and said they use purified water for the de-scaling. That way there wouldn’t be any biofilm in the lines. I’m hoping that is correct because I also worry about breathing in the mist.

Dec 24, 2019 · Happy Holidays in MAC & Bronchiectasis

Wishing all a very Happy, Joyous and Healthy Holiday Season. Since my children are spread around the globe, (Australia and California), this is the FIRST time ever I will go out to eat on Christmas Eve with my sister and her husband. (Her children will be spending Christmas Eve with their in-laws). It will be very strange indeed since either she or I have cooked since after my mom passed away. Christmas Day will be at my niece’s house with the great-nieces and nephews. I hope this New Year will bring peace, joy and healing to all.
Gina K

Dec 22, 2019 · Saline nebulized inhalation in MAC & Bronchiectasis

@thumperguy Are you asking about the % or the amount mL? If it’s the mL, I think it depends on your nebulizer, the maximum mL that they hold. I think, Using 5 mL will take about twice as long to nebulize.