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Posts (154)

Fri, Sep 18 12:24pm · Soda And Bronchiectasis in MAC & Bronchiectasis

@mrf5629 I switched from a half wedge to a whole bed wedge. I was getting a pain in my hip when I laid on my side. Having the whole bed wedge makes it feel like I’m sleeping on a regular mattress. I also have a My Pillow. I am SO MUCH more comfortable. My husband complains that he slides down, I said “Boo hoo, too bad for you! I’m finally sleeping more comfortably.” Lol.
Here is a link for one type. https://www.refluxguard.com/order-now?ap_id=GGLShopping&c_id=RGMWFOAM-65460_t__g_gclid-EAIaIQobChMI2dL15Zvz6wIVGqSzCh3wLwMwEAQYASABEgIPNvD_BwE&gclid=EAIaIQobChMI2dL15Zvz6wIVGqSzCh3wLwMwEAQYASABEgIPNvD_BwE

Tue, Sep 15 9:49am · Bronchiectasis: New Diagnosis in MAC & Bronchiectasis

I ordered my Aerobika from Amazon. I had a prescrip from my Dr, but I was told my insurance didn’t cover that. So I just searched it on line.

Tue, Sep 15 9:41am · Soda And Bronchiectasis in MAC & Bronchiectasis

I usually drink water or sparkling water , but every once in a while I like to have a glass of soda, (Coke). I do notice when I drink it that I have more mucus and cough more. I think it’s the sugar that does it. I recall reading once that sugar is not good for bronchiectasis/NTM patients. I could be wrong about that, not sure. But I do notice the increase in mucus in myself.

Thu, Sep 10 5:00pm · Mac + lung cavity in MAC & Bronchiectasis

I get mine on-line from Express Scripts. It’s about $35 for 60 viles.

Sat, Aug 29 12:56pm · Surgery concerns in MAC & Bronchiectasis

Best of luck.

Fri, Aug 28 8:18pm · Surgery concerns in MAC & Bronchiectasis

@kathyhg Hi, I just had surgery on Tuesday for gallbladder. I had no problems during surgery. I informed the anesthesiologist of my lung issues before the surgery. What I’m finding the hardest is that I CAN’T cough because of the pain it causes. I usually do my Aerobika lung clearance 2x a day, 50 breaths each time, which I am not able to do. I did have extreme pain and tightness around my ribs the next day from the air they fill the stomach cavity with during the surgery. That is subsiding more each day. Today I used the nebulizer with 3% sodium chloride and just a few breaths with the Aerobika. Tomorrow I hope to do a few more. So if you’re not having any type of surgery that involves your abdomen, I think you’ll be ok as long as your anesthesiologist knows your situation and will be prepared.
Best of luck,

Mon, Aug 24 5:40pm · Surgery concerns in MAC & Bronchiectasis

@heathert No asthma for me.

Wed, Aug 12 1:11pm · New to group... hello! in MAC & Bronchiectasis

@windwalker Hi Terri, I’m not sure if I already answered this. I currently live in the SE Anadale section of Staten Island, NY and have the “pink” ring in my bowl if it doesn’t get used often. I also used to live in the Marine Park section of Brooklyn, NY and I had it there also.
Gina K