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Posts (118)

3 days ago · Dentist in MAC & Bronchiectasis

I spoke to my hygienist before she began cleaning my teeth. She knew about NTMs and said they use purified water for the de-scaling. That way there wouldn’t be any biofilm in the lines. I’m hoping that is correct because I also worry about breathing in the mist.

Dec 24, 2019 · Happy Holidays in MAC & Bronchiectasis

Wishing all a very Happy, Joyous and Healthy Holiday Season. Since my children are spread around the globe, (Australia and California), this is the FIRST time ever I will go out to eat on Christmas Eve with my sister and her husband. (Her children will be spending Christmas Eve with their in-laws). It will be very strange indeed since either she or I have cooked since after my mom passed away. Christmas Day will be at my niece’s house with the great-nieces and nephews. I hope this New Year will bring peace, joy and healing to all.
Gina K

Dec 22, 2019 · Saline nebulized inhalation in MAC & Bronchiectasis

@thumperguy Are you asking about the % or the amount mL? If it’s the mL, I think it depends on your nebulizer, the maximum mL that they hold. I think, Using 5 mL will take about twice as long to nebulize.

Dec 19, 2019 · No end of things to ponder. in MAC & Bronchiectasis

I also, usually have clear to yellow mucus when doing my lung clearance. Every once in a while slightly green. I notice that usually happens if I eat peanut butter, nuts or a lot of bread products. So I think the same thing about the different colors. But right now, unfortunately, I had some hemoptysis yesterday. So I’m feeling a bit anxious today. Went to my Dr, had an x-ray, no changes since last year. So that’s good, and I know It is a symptom of bronchiectasis, but, it still worries me a little. It hasn’t happened to me like that since the first time 3 years ago. Hoping it doesn’t happen again.

Dec 6, 2019 · Mother coughs constantly for the last 5 months in Lung Health

@pfritz In response to your mom’s chronic cough. I’m sorry to hear she doesn’t want to check on it. Perhaps if she is older she feels she doesn’t want to bother making changes in her routines. I always had constant throat clearing and a dry cough. Found out that “tickle” can be caused by acid reflux. Which can also cause lung nodules and MAI/MAC. I was also Dx with bronchiectasis, for which I was advised to use an Aerobika device for lung clearance and I nebulize 3% saline every day. Now, I hardly ever cough throughout the day unless I eat or drink something that irritates my acid reflux. I was also advised it’s counter productive to take cough medicine unless it’s an expectorant. You don’t want to suppress the cough because you want to clear out whatever is in the lungs. Good luck, I hope she will reconsider going to a Dr.
Gina K


Thankfully, I don’t have very bad coughing unless it’s allergy season, (May and September for me), with awful post nasal drip. Then, infrequently, I cough so bad it makes me gag! I started wearing bladder leakage pads also 2 years ago for a couple of months. But, then found out it wasn’t my bladder after all. At my yearly GYN appointment when I told my Dr about it, he didn’t think it was urine so he did a biopsy and surprise, I had endometrial cancer. Thank God it was very early stage! I had surgery and radiation and am now 2 years cancer free. AND I no longer wear a bladder pad. So I guess my cough and throat clearing isn’t that bad after all, but, it’s still annoying sometimes. I’m happy, and sad, there are others that understand this crazy journey. 🙏🏻 for all.


Hi All, just some info I read about for anyone suffering from the chronic cough that comes with MAC. Not talking about the productive cough to rid the lungs of excess mucus, but the annoying, constant cough that sometimes even leads to gagging. I just read an article in the ASHA Leader. (That’s the professional magazine for Speech Language Pathologists.) When The Coughing Won’t Stop, November 2019. It talks about receiving Behavioral Cough Suppressant Therapy, (BCST), from a Speech Language Pathologist, (SLP), that specializes in voice and upper airway disorders and has received additional training in BCST. I AM an SLP and have never heard about this before. I found it very interesting. 80% of patient’s benefit from BCST therapy to learn how to control and minimize the coughing that interferes with everyday life. They talk about the cause being hypersensitivity to outside stimuli; perfume, smoke, dust, change in air temps, talking, laughing, etc., and can also occur in certain areas of the brain. Hypersensitivity can also be caused by coughing! So coughing makes us cough more! Only problem is physicians are not aware of this therapy, (surprise), so they don’t know to recommend it, AND there aren’t many SLPs trained or educated in it. I thought everyone would find it interesting and there may be some who would really benefit from this type of therapy.
Gina K

Oct 17, 2019 · Medical Cannabis for MAC in MAC & Bronchiectasis

Agree 100%. I was just wondering if there would be a difference between the two.