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Posts (146)

Sun, May 24 5:20pm · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

@marellen From my understanding, the antibiotics are to treat the NTM, (MAC, MAI, etc.). The saline thru the nebulizer is to assist with lung clearance and in making the lungs less hospitable to various mycobacterium infections. Very important for those of us with bronchiectasis. I think most, if not all, on this forum do some type of lung clearance daily. Hope that helps a bit. Others on here are much more knowledgeable regarding this than I am.

Sat, May 23 10:17am · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

@hayn3705 I was dx with mild bronchietasis in 2016 and MAC/MAI. I have no symptoms from the NTM infection so my Dr and I agreed NOT to treat with the antibiotics. I was told to use an Aerobika for lung clearance. Since that time I moved and switched pulmonary Drs. He was also in agreement about no antibiotics yet. After reading about nebulizing with saline on this forum and in other studies, I requested the prescription from my Dr so he prescribed .9%. I now use 7% saline, and still have no symptoms from the NTM. I still do my lung clearance 2x per day. I haven't had a sputum test in 2 years, (which I will probably make an appt for this summer), and my CT scans remain the same. Maybe you can request it from your Dr. It can't hurt but definitely may help. And definitely ask about lung clearance. That's very important with bronchiectasis to keep the lungs clear of mucus.

Thu, May 21 7:16pm · Two bits of good news!! (and nebulizing with saline) in MAC & Bronchiectasis

@rits That’s good news. Although I recently started using the 7% and have been tolerating it well, I was worried that my years of using the .9% and then 3% were a waste of time. I’m happy to know it wasn’t. I will still use the 7% but I may alternate using the 3% every couple of days. Thanks for the info.

Sun, May 3 7:45am · Nebulizing Equipment in MAC & Bronchiectasis

I finally received my Rx for the 7%. Based on the way my Dr wrote the Rx, (3x per day, I only neb once per day), I received 270 vials !! LOL. I’m happy about that, since then I have to reorder less frequently. I guess that’s why it cost $94. Going to try it later today. I’m a little concerned that it might cause hemoptysis. Anyone have any thoughts or experiences with this happening?

Thu, Apr 30 2:14pm · Nebulizing Equipment in MAC & Bronchiectasis

I wonder how many they're sending me.

Thu, Apr 30 9:08am · Nebulizing Equipment in MAC & Bronchiectasis

My insurance covered the nebulizer and the original parts. Since then, I’ve been buying my own parts every few months. My insurance doesn’t even cover the full cost of the saline. My Dr just prescribed the 7% that I requested and I was just charged $94. by GHI. I’m not on Medicare. When I get the 3%, they usually charge me $35 for one month supply

Fri, Apr 24 11:06am · COVID-19 and MAC: What are you doing differently to protect yourself? in MAC & Bronchiectasis

I’m not sure if that link actually loaded. It was showing the tissue for anti-fogging.