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Posts (80)

Dec 24, 2018 · Happy Holidays in MAC & Bronchiectasis

Merry Christmas, Happy Holidays and Happy New Year!

Dec 16, 2018 · Salt Rooms for MAC in MAC & Bronchiectasis

@windwalker Oddly my CVS told me they couldn’t get it. But thanks, I’ll see about ordering it online

Dec 16, 2018 · Salt Rooms for MAC in MAC & Bronchiectasis

Thanks. I’ll try searching around and seeing what I come up with

Dec 12, 2018 · Salt Rooms for MAC in MAC & Bronchiectasis

@windwalker About the sodium chloride percentage, at my request, my Dr. prescribed 3%, but when I went to fill it, the pharmacist at CVS here in NY said the highest they make for people at home is .9%. That is what I’m currently using. Where do you get higher apercentage than that? Is it from a special pharmacy?

Oct 25, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

@flib Thanks, I am going to ask for higher % than the .9 Maybe at least 3% and see how that works. I thought .9 seemed so low, not even 1%

Oct 23, 2018 · Are all of you NJH patients with MAC doing pulmonary hygiene? in MAC & Bronchiectasis

Does anyone use anything less than 7%? I just started using the nebulizer and my Dr. Only prescribed .9% saline. I guess I’m going to ask for a higher % saline.

Oct 9, 2018 · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@lorifilipek I had the same problem with the wedge on top of my mattress. It was fine if I slept on my back but when I tried to sleep on my side it would bend me in a weird position at the waist also. Since I’m only 5 feet tall, I now push it lower on the bed and add an extra pillow at the top so it now comes to my hip and is more comfortable there. But I also slide down during the night and have to readjust. I wish I could put the blocks under my bed to raise the head, but I have an 18th century Chippendale 4 post bed and it just wouldn’t work. I already have 2 steps to get into my bed, I don’t think I could raise it up any higher! My husband does complain about having to face the wedge like a “a wall”, but I don’t cough and clear my throat all night anymore so that makes him, (and me) happy. Lol. I guess we all just have to keep trying until we find something that works. I have to admit though, some nights I just toss that wedge to the floor in annoyance and sleep on my stomach and hope for the best.

Oct 9, 2018 · Working and holding a job while suffering from NTM (MAC) in MAC & Bronchiectasis

Hi sorry it took so long to respond. My notices are going to my SPAM folder and I have been away. Although I have bronchiectasis and MAC/MAI (diagnosed from a lung resection 2 years ago to have a nodule removed). I don’t have any symptoms. No weight loss, fatigue, night sweats. I have never been prescribed any antibiotics so I have no side effects. I use my Aerobika twice a day with 50 breaths each time for lung clearance. I just recently retired, I was a Speech teacher in a NYC public school. I don’t think my job was very physically difficult so I had no problems going to work. I’m sorry I can’t be of much help. I have noticed a lot of the members seem to work in education or in the medical field, (nurses). I can’t remember which member was keeping track of everyone’s profession to see if there was some commonality between those of us with MAC, I’m not sure if she ever found anything, but, unfortunately, I don’t remember who it was. Personally, I would be careful about breathing in the types of chemicals you must deal with daily; hairspray, straightening solutions, dyes, etc. No need to put any additional stress on our lungs. Definitely speak to your Dr to make an informed decision. Best of luck.