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Jan 17, 2017 · Mast Cell Activation in Blood Cancers & Disorders

Thank you so much,I just wonder if there is anyone that lives in Duluth that has been to Mayo for this insidious disease,I feel like I am alone in this except for my wife but she is at the point where she doesn’t know what to say or do she feels helpless to,just to be able to talk to someone and they could say “Oh man I get ya or here is why that happens”,I just don’t know what to do or not do,I know my triggers (temperature changes are huge and stress and it is this food allergies thing I don’t get)I like being active and am ADHD and have a mild TBI so just trying to trudge thru this mud is not working.

Jan 17, 2017 · Mast Cell Activation in Blood Cancers & Disorders

Is there anyone that has MCA?,I live in Duluth and have just begun all types of testing for this nightmare (I.e. Blood test and bone marrow and 24hr Urinalysis)and they always come back negative in the since of trying to diagnose but I have been dealing with this since last year but didn’t know what the heck was going on in my body.It started with just a skin rash at first but since last year till now I have developed allergies to foods I never had and now my body is so sensitive to heat change because within seconds my feet start tingling then swelling starts then my hands start swelling and the full breakout begins (niacin flush type feeling begins and doesn’t stop)little scab like rash (like what fibromyalgia patients get)then the felling of vomiting begins.So I am so frustrated because all test keep coming back negative to get “DIAGNOSED”for MAST CELL to see how to treat it,even though I know that it is even the Oncologists and Allergist believes it is MCA so having to be my own advocate and research I have begun the “Low Histamine Paleo Food Change” But trying to cope day to day and for the most part living in my bedroom because I don’t want to freeze out my wife or just feeling like my life is being robbed and my personality and to make things worse Dr.Afrin is booked out till 2018 and someone told me here in Duluth that is who you must see,so there goes that idea.I just sometimes want to give up because sometimes this Mast Cell makes you feel like you are loosing your mind.And I have no one to talk to that can relate to this,so there is my ramblings is there anyone who I can talk to that has this “CRAP”.