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Mar 21, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Catherine have you already taken all the drugs and been through the protocol or are you still on the drugs and if you are for how long have you been on them and how long do you anticipate staying on them.? I’m just tired of major episode of pleurisy pain was unbelievable but it only lasted a day and a half. This morning I’m supposed to play golf but of course haven’t had any episodes in a couple of months and I had a little blood in my cough this morning not sure if I should play or not weighing towards it’s almost time to start taking the drugs but I so don’t want to I’m so afraid of all of it I don’t want to be that to be sickly and unable to function the way I normally do.

Jan 18, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

sugar is not the answer more complex carbohydrates and protein would be better , don’t forget fruit and vegetables

Jan 18, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I’m sorry must of missed this earlier but what does NTM stand for?  GGSent from Yahoo Mail on Android

Jan 18, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Hi Kate thank you so much for your reply and encouragement. I do know that this forum is a wonderful asset to all of us suffering the same disease/ infection. I live in Richmond Virginia so the Jewish in Boulder and the Mayo are so very far from me. I’m just trying to hold steady right now. Doesn’t seem to be growing . My CT the other day wasn’t very remarkable.   Honestly that gave me confidence. I never have any mucus when I cough up the blood it’s usually just blood a couple of tablespoons I haven’t heard anyone else mention blood… it ends as quickly as it begins these little episodes. Ninety-nine percent of the time my cough is totally unproductive. Usually it’s just a dry cough I think mostly associated with post nasal drip. I am not averaging once a month coughing blood I went over 3 months having no episodes..  it’s the stress of the unknown..Sent from Yahoo Mail on Android

Jan 17, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you for your reply and support. So far I have Not let it take over my life. I also have not begun the protocol. After reading everyone’s horror stories on the side effects I’m greatful to still be functioning normally. I know it’s only a matter of time but I’m hanging on as long as possible to be drug free. Prey I can .

Jan 15, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Diagnosed 6 months ago. Have occasional bouts of bloody cough. Do not have a chronic cough that keeps me up at night but it’s obvious to others that I’m constantly clearing my throat coughing occasionally. I’m extremely fearful to go on the protocol & do not want my life to change completely. I live a fairly active life busy entertaining , playing golf and working as a hairstylist in my own business. What is the life expectancy from time of diagnosis with and without treatment?