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Posts (63)

Mon, Apr 15 10:06am · Anyone here dealing with peripheral neuropathy? in Neuropathy

can anyone direct me to the site that suggest vitamins & other things for natural relief…PLEASE

Mon, Apr 15 9:44am · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you John…I will look at the site. I just got out of the hospital with pneumonia .They cut me down to 600mg from 800mg of gabapentin every 6 hrs. I did ok. with the pneumonia I didn't care. When I got home I started taking gabapentin 800mg every 9hrs. I want so badly to off of gabapetin completely. I was told in the hospital that 800 mg every six hours was toxic. So wish me well on this venture. Thanks again for the information. JJ

Sun, Apr 14 11:55am · Anyone here dealing with peripheral neuropathy? in Neuropathy

where is protocol?

Fri, Jan 25 1:35pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

HI Peach. sure liked yoiur sharing with catcatanzaro…I think everyone on this site can really associate with you. Thanks again

Sun, Jan 20 9:26pm · Migraines in Chronic Pain

Hello, I am trying to find a group that discusses "weird migraines" I do not have migraines very often but when I do I end up in the hospital because it seems like I am having a stroke. I have only had this happen twice, have been hospitalized both times, stayed for observation both times and after many, many test nothing could be identified and a lot discounted. I have had neurologist do test and nothing seems to appear that would cause the very painful and scarry headaches. I hope that someone may be experiencing this type of situation. usually about three days in the hospital, and given "headache coctails the pain goes away, but I feel foggy and weak for about a week. I am very anxious about it happening when I am by myself. I cannot function, talk, walk, and the pain is terrible. I have a lot of chronic pain issues, and I believe that I know about pain. Anyone have any advise of how I can talk with? Thanks..Peace & Love JJ

Sun, Jan 20 4:33pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hi Colleen.. would yoiu know a group that deals with migranes, most of the sites I look at have been for a particular one. I have been in the hospital twice with what was diagnosed as a weird migrane because they did not know what it was. Any help would be appreciated.. The second one came across like I hade had a stroke…they tested me for everything they could think of…Thanks

Sun, Jan 13 7:14pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Katie, I am 75 and have severe spinal stenosis for many, too many years. I now have a spinal stimulator that has helped immenseily( not sure of spelling). I have had it for over two years, and I am sure that I could not function without it. I* have been told that I will know when the stimular is no longer an option. Seems spine surgery is the next step and I am praying that won't be for a long time. I also have heart problems, periphal neuropothy.
Each day, for me, starts with a new comittment, smile at the pain, keep my sense of humor and be a nice person. I take blood pressure med, fluid retention med., gabapentin 800mg +tramadol 50mg every 6 hrs for the Neuropothy. I also take herbs.
I believe I can understand unrelenting pain and I am so grateful for anything that helps reduce the pain or gives me a little relief.
As far as we tell ourselves that God will fix this or we are being punished for something, we are not listening to what Christ has said, "I am here to give you evertthing you need, now go live your life." It has been my experience that the things that happen to us is due to the world we live in. And all I can do is try to not let it take my life away. I am so very blessed to have those around me that love me, that is when I will let them in…sometimes pain robs us of who we have believed we are, so please don't give up!!! Keep faith and don't let the pain win.
I pray that you have the PEACE that passes all understanding.