About

Member has chosen to not make this information public.

Pages (1)

Posts (3)

Oct 17, 2018 · Multiple Myeloma in Blood Cancers & Disorders

Hi Oregongirl, Looks like you have not a definite diagnosis of Multiple Myeloma. It is important to get it from a Clinic that specializes in MM. I was diagnosed with MM 26 yrs ago. At that time there was not treatment available but over the years MM has become highly treatable. Sometimes doctors decide to wait with treatment, sometimes they prefer to start treatment immediately. Every patient has a different MM journey. MM needs to be observed on a regular basis. I see my hematologist at Mayo Rochester every 4 months even though I have been now 10 years without treatment. Ask many questions, the more you know the better and take care of yourself. Remember With MM our immune system is not working at 100 %. Infections can occur more often than without MM. Wash your hands often and stay away from people with any kind of infection. Best wishes, Ilse

Jul 26, 2017 · A 25-year Multiple Myeloma Cancer Journey at Mayo Clinic in Hematology

Hang in there Sheila! I mentioned before that MM is full of surprises and there are also good surprises.
Keep in touch and best wishes, Ilse

Jul 24, 2017 · A 25-year Multiple Myeloma Cancer Journey at Mayo Clinic in Hematology

Hi Sheila, how are you doing?
Which treatments are you on presently?
You call MM a monster, I call it sneaky and full of surprises.
One thing for sure, we are in good hands at Mayo!
Best wishes and don’t forget one good laugh each day – it helps me 🙂
Let’s meet again!
Ilse