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Sat, Aug 17 4:02pm · intermittently testing positive for MAC in MAC & Bronchiectasis

Thank you for responding. Much appreciated. I was referring to what appears to be the first fast look at a sputum sample that I sent to National Jewish. I can't believe that they would send this out on their portal without a phone call explaining to any patient what the preliminary results mean. They have never had sputum sample results on the portal before … maybe they have changed their minds on releasing it as they release other medical test information. ??? So true, this is a frustrating infection any way you look at it. Wishing everyone better health.

Sat, Aug 17 6:25am · intermittently testing positive for MAC in MAC & Bronchiectasis

Do some of you intermittently test positive? Had a couple of negative and now testing positive. This is after I stopped the meds after taking them for two years. Just got back preliminary early results from a portal that indicate that something is brewing. Hate getting messages late on Friday night when there is no one around to question.

Thu, Jul 11 8:03am · aeroeclipse and manometer in MAC & Bronchiectasis

Last time I was at National Jewish, they gave me a new type of nebulizer called an AeroEclipse; it is a reusable breath actuated nebulizer. Supposedly medication is delivered on inspiration only and I guess it might deliver more medication into lungs and or protect the environment and or just make us NUTS! As if that weren't enough, the aerobika can now be used with a manometer. The manometer is a green, yellow, and red attachment that you put on aerobika and it is used to provide visual feedback when you exhale (so you know that you are exhaling correctly by staying in a green zone)!! Anyway, I couldn't get the darn thing to work … so am returning to the good ole' Pari nebulizer used with an aerobika that has no such strange attachment. I guess it is the newest thing in nebulizers but I am an old dog and incapable of learning new tricks and thus, having an impossible time with it. That you, with all your knowledge, has never heard of it makes me happy because it reinforces my belief that this new accessory is not a "must have"! I have had some fluttering problems with a regular nebulizer in the past so don't need something else that can go awry.

Thu, Jul 11 7:07am · aeroeclipse and manometer in MAC & Bronchiectasis

Am I the only one who finds it impossible to use the aeroeclipse nebulizer with the manometer? Doesn't seem to work for me. Going back to Pari nebulizer with no manometer! Think I followed instructions well. Need reassurance that I am NOT the only one with this difficulty. As always, thank you to all.


I had similar effects but probably not as severe as your step-mother. Ultimately my body acclimated (don't remember how long but maybe 3 months or so). I would jump if the phone rang! Just remember that your Mom needs to be checked regularly for visual, hearing side effects. Not a bad idea to make sure that her thyroid is not out of whack and causing some of the nervousness. Also, not a bad idea to see a therapist so that your Mom would be able to confront and change some of the unreasonable beliefs that she has about this condition. She is indeed fortunate to have such a caring daughter-in-law. Wishing her the best.

Tue, Jun 4 10:32am · collapsible bowl in MAC & Bronchiectasis

Will try. The trick is to find one that is microwaveable. If discover, will let all know. Still trying to get in touch with a Tupperware representative as well. Thank you all for the suggestions.

Mon, Jun 3 6:14pm · collapsible bowl in MAC & Bronchiectasis

Still looking for large collapsible bowl to use when traveling. I would need it for cleaning/soaking aerobika and nebulizer in warm, sudsy water as well as using it for rinsing on a daily basis. Just wanted to free up room in my carry-on luggage as bowls that collapse take up such little space. Would need to be microwave safe. Can't seem to find any that are large enough.

Sat, Jun 1 3:18pm · collapsible bowl in MAC & Bronchiectasis

Thank you.