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Sun, Oct 20 12:46pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Thank you for your interest! She is doing well health wise; but the discomfort in her mouth is continuos. But she is alive and that's what matters.
Cancer is running rampant all around us. I lost my brother in law in May to colon cancer. My dearest friend's 16 year old granddaughter has been diagnosed with an inoperable brain tumor. And last week I learnt that a sister in law, 65 and the most health oriented woman I know, has terminal cancer that has spread to her lung and lymphatic system, with a tumor in her groin. It is overwhelming!
On the other hand, my mother is 101 and goes out to the mall to walk everyday and my mother in law is 99 and her hearing is perfect so you can carry a perfect conversation with her. So, I count my blessings and try to keep positive and enjoy everyday while I try to help others.
Yours was a simple question, and I emptied my heart in answering. Thank you, it was cathartic.
Loli

Fri, Oct 4 4:00pm · One’s story and what it might say in Cancer

Hi there, At the end of your post, something really caught my attention. Yes, I have heard that they are trying to cure cancer inoculating patients with polio. I know of the case of a 16 year old patient that was diagnosed with a frontal malignant tumor of the brain. She is going through radiation and once a month for one week oral chemo. Once she finishes this treatment, she will be eligible to be inoculated with the polio virus, in an attempt to do away with the tumor. I guess this treatment is solely in try outs. So, they are working on it; just not every doctor is aware of it.
Loli

Sun, Sep 22 8:21pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hi Alpaca,
This is Loli; I know I have not communicated in a long time. I do not remember if I shared in here, that my sister, who had tongue cancer 18 years ago, came back with jaw cancer and six months later, it had jumped to her cheekbone and the tumor was inoperable. For this reason, she had chemo and radiation. She finished her treatment 16 months ago at the Mayo clinic in Scottsdale. She checks at Mayo every three months. The problem is, that her tongue has not healed completely. She still has a burning feeling that prevents her from eating. She has tried hemp and cbd oils and all types of pain medications with no avail. If she wants to eat, she has to use solicaine (I know I am misspelling it) directly on her tongue, but the discomfort is continuos.
If you or anybody in the chat has had this problem and has found confort, please share it . She is desperate.
Greetings, and I pray everyone is doing well.

Mon, Apr 1 9:16am · Erosive oral lichen planus in Autoimmune Diseases

Thank you for the information. I have OLP which turned into cancer and was removed six years ago. I also have LP in my nails and vagina, with very rare flares and no pain or itch. I fear that it will come back one day (as cancer), so I collect all the info that is shared in this site Thank you for sharing. Loli

Dec 11, 2018 · squamous cell in throat in Head & Neck Cancer

Hi Jim, It is good to hear from you again.
I had 40 radiation treatments five years ago, so I know what you are going through right now. I was very successful in treating the burns with aloe. I started with aquaphor, tons of it just right after radiation; but later in the day, I would rest with slices of fresh cooled aloe on the radiated area. I would even cut a small piece, and let it melt in my mouth. If you are willing to experiment with this, I can give you further instructions.
Best to you, Loli

Nov 30, 2018 · radiation burns in Cancer

I covered my face with silvadene right after radiation. A couple of hours later, I cleaned the silvadene, and applied layers of fresh aloe which I also put in my mouth. I was radiated for head and neck cancer. The doctor was amazed that my skin was doing so much better than other patients. He had me record a tape of how I prepared the aloe and applied it on my face. It is extremely soothing and kind of cooks after applying on skin. You can buy large aloe leaves in hispanic stores and some grocery shops. Cut the piece you are going to use, and that depends on the size of the burn. Carefully peal all the green, because it can stain your skin. You will end with a clear part of the aloe. Slice it in half if it is thick enough, and apply it to the radiated skin. You can also put it in a plastic bag, and keep it in the fridge. Apply it fresh but not too cold. You can turn it once the feeling of freshness stops. Once it becomes kind of milky color, replace it with a fresh layer.Keep it on the burn as long as possible. I hope this helps.

Nov 23, 2018 · squamous cell in throat in Head & Neck Cancer

Hi Jim, how are you? I came late to this post; but here I am. I see that you cannot open your mouth very well. It will get worse with radiation. My husband made me several light wood pieces, one inch by three and maybe 1/8 thick. I stack them up and put them in my mouth, and started adding them as much as I could bear. That is to open my mouth and not let it close anymore. This was five years ago. I can only stick two fingers wide in my mouth, but it could have been worse. It is hard not to be able to bite an apple, or a hamburger, or a sandwich.; but that is the least of our problems, right? I would love to hear from you and how you are doing. Loli

Nov 19, 2018 · HPV Throat Cancer in Head & Neck Cancer

Hi lynalexa. I am also truly sorry for the recurrence; but I concurre with jeffk, you are in the right place and you will get the best treatment available in the country. That being said, we all are here to support you and talk about it as much as you need or want. We all know what you are going through. Each single day is a blessing though most very though when you are going through treatment. But you can do it and you will.