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Posts (92)

Tue, Mar 3 7:05pm · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hi ezg,
You just cannot give up! Give us your story. We will try to help Try us!

Dec 6, 2019 · Tongue Cancer: Concern that no radiation offered after surgery in Head & Neck Cancer

Canziea, I am terribly sorry your mother has to go through this ordeal. The first thing I would do, is to go back to the doctor for a check-up, and please go with her. Take paper and pencil, and write everything he has to say. Also, go prepared with all your written questions. This might be a relapse, and you need to know. If, it is not, let us rejoice and we will give you all the advise we have through our experiences; but time if of the essence to see her doctor again Loli

Nov 23, 2019 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Colleen, Thank you for bringing us together again. I am happy to hear from Maureen. We share so much! My problems are with my gums receding due to radiation, so from time to time, I loose a molar. Well, one less molar to brush. Somehow, I have been producing more saliva and my mouth is not so dry. I have done nothing different, so I do not have any new recommendation. Same as Maureen, I have started a group through my church, to drive people to their appointments. It makes me happy to be able to help others. My sister just came back from Mayo in Scottsdale. She had a positive checkup and flew back to Mexico last week. My sister in law, decided to go through her third Chemo treatment. It is very difficult for the family because, even though they are aware that she is terminal, some days they are optimistic, and then, there are the bad days. Should she just let be confortable, or should she fight? Very though, and all I can do, is pray for wisdom. Thank you for listening, and Happy Thanksgiving; I am thankful for this chat.

Oct 20, 2019 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Thank you for your interest! She is doing well health wise; but the discomfort in her mouth is continuos. But she is alive and that's what matters.
Cancer is running rampant all around us. I lost my brother in law in May to colon cancer. My dearest friend's 16 year old granddaughter has been diagnosed with an inoperable brain tumor. And last week I learnt that a sister in law, 65 and the most health oriented woman I know, has terminal cancer that has spread to her lung and lymphatic system, with a tumor in her groin. It is overwhelming!
On the other hand, my mother is 101 and goes out to the mall to walk everyday and my mother in law is 99 and her hearing is perfect so you can carry a perfect conversation with her. So, I count my blessings and try to keep positive and enjoy everyday while I try to help others.
Yours was a simple question, and I emptied my heart in answering. Thank you, it was cathartic.

Oct 4, 2019 · One’s story and what it might say in Cancer

Hi there, At the end of your post, something really caught my attention. Yes, I have heard that they are trying to cure cancer inoculating patients with polio. I know of the case of a 16 year old patient that was diagnosed with a frontal malignant tumor of the brain. She is going through radiation and once a month for one week oral chemo. Once she finishes this treatment, she will be eligible to be inoculated with the polio virus, in an attempt to do away with the tumor. I guess this treatment is solely in try outs. So, they are working on it; just not every doctor is aware of it.

Sep 22, 2019 · Meet others living with Head & Neck Cancer - Come introduce yourself in Head & Neck Cancer

Hi Alpaca,
This is Loli; I know I have not communicated in a long time. I do not remember if I shared in here, that my sister, who had tongue cancer 18 years ago, came back with jaw cancer and six months later, it had jumped to her cheekbone and the tumor was inoperable. For this reason, she had chemo and radiation. She finished her treatment 16 months ago at the Mayo clinic in Scottsdale. She checks at Mayo every three months. The problem is, that her tongue has not healed completely. She still has a burning feeling that prevents her from eating. She has tried hemp and cbd oils and all types of pain medications with no avail. If she wants to eat, she has to use solicaine (I know I am misspelling it) directly on her tongue, but the discomfort is continuos.
If you or anybody in the chat has had this problem and has found confort, please share it . She is desperate.
Greetings, and I pray everyone is doing well.

Apr 1, 2019 · Erosive oral lichen planus in Autoimmune Diseases

Thank you for the information. I have OLP which turned into cancer and was removed six years ago. I also have LP in my nails and vagina, with very rare flares and no pain or itch. I fear that it will come back one day (as cancer), so I collect all the info that is shared in this site Thank you for sharing. Loli

Dec 11, 2018 · squamous cell in throat in Head & Neck Cancer

Hi Jim, It is good to hear from you again.
I had 40 radiation treatments five years ago, so I know what you are going through right now. I was very successful in treating the burns with aloe. I started with aquaphor, tons of it just right after radiation; but later in the day, I would rest with slices of fresh cooled aloe on the radiated area. I would even cut a small piece, and let it melt in my mouth. If you are willing to experiment with this, I can give you further instructions.
Best to you, Loli