Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (18)

Sun, Jun 28 12:17pm · Arachnoiditis: Looking to talk with others in Spine Health

Hello. I got a text from Mayo clinic about someone looking ro find out about arachnoiditis.
I was diagnosed with this horrible disease in 2012. Quite by accident. I have had back problems since the 80's. Back then no one knew exactly what to do to fix it. Found a wonderful doctor and had my L4-L-5 fused. Went ok for a few years. But the pain returned. Had SO many shots in my back. Doctors said there wasn't anything they could do. After finding a pain managment doctor and getting more epidurals had another MRI. THATS when they discovered it. So, since 2012 i have been on the Fentanyl patch every other day. Plus hydrocodone. My doctor also provided me with medical marijuana. I am still suffering. And tbere is NO CURE for arachnoiditis. Hope this may help some one. Peace be with you.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

I have been suffering from this problem for about 8 years now. My disability lawyer was fantastic. The judge we had was so understanding. But, to treat this condition is to say the least, hairpulling mad. But, I found an awesome pain management doctor that is god sent. I went through several before finding him. I wish you luck in finding relief and if you need to vent…please feel free to contact me via this website.

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Hello. I was diagnosed with Arachnoiditis 3 years ago. Went from regular doc to pain management doc. I would advise you go to one in your area. They have so many options. I am on fentayl patch as well as hydrocodone. He also put me on marninol. Works good. I live in SC so we don’t have recognized Cannabis outright. I am trying CBD for first time. Hope it works! Good luck!

Dec 23, 2019 · Do CBD products cause positive drug tests? in Chronic Pain

Hi..I just read your post and decided to give you an answer. Every 3 months I have to have a urine test to show my doctor that I don't use any other drug being under his care. The answer is yes. Even tho the cbc says they have less than 3%, I can assure you it shows a positive urine sample!

Nov 4, 2019 · Arachnoiditis: Looking to talk with others in Spine Health

Hi, Dianna here. I have arachnoiditis. Does anyone know what can happen when this disease gets worse and worse? Will I lose the ability to walk, or move?

Oct 21, 2019 · Arachnoiditis: Looking to talk with others in Spine Health

Hi rachelarachgirl. I'm terribly sorry for what you are going through. I was diagnosed in 2012. Not something I would want anyone to experience. I too, have way too many shots in my back, trying to relieve my pain. Of course, the shots ever proved to help me. It's very difficult to explain just what the pain is like, so here we go with the pills. We, that have A A, have no recourse. I could have a pump installed to shock the nerve into submission. Not going to happen in my case. If you should feel the need to talk, please do t hesitate to contact me!

Sep 28, 2019 · Ketamine for chronic pain in Chronic Pain

Hi.. just reading your blog about chronic pain. I am on the fentanyl patch as well as hydrocodone. I was supposed to try the implanted pain nerve stim, but really don't want another surgery. I've never heard of ketamine. I want more than anything to be off this patch as I don't want to lose my pain management doctor and the next one won't prescribe. Thanks for info, I'll do some research! Carolinapearl.

Aug 20, 2019 · Any Adhesive Arachnoiditis members here? in Brain & Nervous System

Hi..I have found a wonderful doctor. He is a pain management doctor, and I have to say he is very special to me. I had tried several doctors in Beaufort SC, but this doctor is the only one that has helped me get rid of most of the bad pain.im hoping he will be around for a whil. Thank you for contacting me. I wish you all the best. Keep in touch!