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Jul 29, 2018 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

I wrote on here after my AC diagnosis. My AC was discovered about three years ago. It was around 5 x 11 mm, and my ENT suggested waiting and watching. Over many years I have lost 30% of my hearing in my right ear. After two MRIs, so far, there has not been much growth, and just ringing in ear, itching, and a few balance issues, I am supposed to get another MRI next spring. If symptoms get worse and growth gets too large, it is either surgery or radiation. Since I am now 70, it is recommended I have radiation, not surgery. There is a really good video on neuroma by a California doctor about AC.

Oct 1, 2017 · acoustic neuroma in Brain Tumor

After gradual hearing loss in my right ear over many years, after an MRI, I was diagnosed over a year ago with an acoustic neuroma in my right ear. Since the tumor is small, my ENT doctor suggested waiting and watching. I had another MRI in July of this year, and my doctor said that it was “very stable” and I would not have to have another MRI for two years. If it grows too large, I will have to have radiation before it causes more trouble, which has a 2% chance of causing cancer. The other choice is surgery (which they do not want to operate on older people like me – 60+), but deafness in the affected ear is expected – whatever is done. Acoustic neuromas are benign they say. I also have two small thyroid nodules that he is also watching and have to have another ultrasound in two years also. The larger nodule is benign. Good luck with your AN case. They do not know what causes them, and they are rare – just not rare enough since too many people have them.

Apr 26, 2017 · ulcerative colitis in Digestive Health

Bentyl is probably for constipation-type IBS. Mine is the diarrhea kind. It really is very irritating and annoying to have to deal with it all of the time. I know. You do have my sympathy. It would be really great if some doctor would figure it out.

Apr 26, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

When I asked my ENT doctor about surgery that way, he said that I was not a candidate for that since I still had quite a bit of hearing in my ear and my acoustic neuroma is still small. He suggested wait and watch and eventually radiation, when and if necessary, which I was also told can cause cancer in 2 percent of patients. That was a year ago, and I am due for another MRI.

Apr 23, 2017 · #MayoClinicNeuroChat on Acoustic Neuromas with Dr. Weisskopf in Brain Tumor

I am due for another MRI this spring. The first one a year ago showed a peanut-size acoustic neuroma on my right side. My ENT doctor suggested wait and watch and radiation, if and when necessary. Over several years, the only symptoms I noticed were gradual hearing loss in my right ear, ringing and a clicking in my ears Also, I was told that radiation could cause cancer in 2% of the cases. Acoustic Neuroma is even rarer than that! Surgery seems to leave patients with many other problems. Are there any new immuno therapy type drugs to treat acoutic neuromas now? There are some new drugs to treat cancer tumors I have read. Where is the best experienced doctor and place to have radiation treatment – in or near Illinois? (I am a 69-year-old female.)

Apr 22, 2017 · ulcerative colitis in Digestive Health

I have had irritable bowel most of my life; I am 69 now. (My mother, who is 94, had it, too, and now has ulcerative colitis and was taking Pentassa but now has to switch to another medicine because of low kidney function. Pentassa is very expensive, and I suppose the new medicine will be expensive also. She had 16 inches of her bowels removed about ten years ago and had blood transfusions because of bleeding from diverticulitis. She was not diagnosed with ulcerative colitis until she saw a gastrointerologist a few years ago.)

When in my 20s, my problems started with raw onions, canned orange juice, and canned corn. Now High Fructose Corn syrup really bothers me, causing me to have nausea and really watery diarrhea and gas. Eating out is usually a disaster because so many foods contain HFC: sauces, sodas, bread, crackers, ketchup, condiments, dressings, juice, anything that substitutes HFC instead of sugar or regular corn syrup. Fiber bothers me, so I have to have vegetables very well cooked and avoid apple and potato peels. I can eat oranges, though. Cherries usually upset my stomach, but the mushier, well cooked fruits and vegetables are, the better it goes down. When traveling, I avoid the bothersome foods and am on a very limited diet. Lactose bothers my bowels, also. I drink Lactaid Milk, which has no lactose, and have started also eating ice cream with no lactose.

When I travel, I have to take some of my own foods or eat really bland, plain foods. When shopping, I have to read the ingredients on all of the labels. Some foods say on the front label, “No HFC.” To deal with the diarrhea, I take Pepto-Bismol. For gas and nausea, I take Gas-X strips. For indigestion, I take Tums. When constantly feeling like having to have a bowel movement, I take Immodium A-D but do NOT take Pepto-Bismol with the Immodium A-D, or I get badly constipated. Then it is time to drink prune juice! This has been the only way I can even travel anywhere. I also wear CVS Women’s Panties when I go anywhere so I do not have an embarrassing accident. When attending events, I scope out the location of the women’s restroom in case I have to get there quickly and I avoid the foods. If the diarrhea is really bad, I stay home and do not eat until my bowels/stomach settle down. It is a real hassle to try to keep it under control. Sometimes, if I am lucky, there will be a fairly long period of time (watching carefully what I eat) before I have another spell, usually caused by an offending food or ingredient.

I would not wish bowel problems on anyone! Good luck to anyone having these kind of problems! Most doctors do not seem to know how to deal with it. A gastrointerologist is definitely needed.

Apr 21, 2017 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

About a year ago I was diagnosed with a small acoustic neuroma. (I am now 69. My doctor said the median age is 71, and they do not like to operate on older people.) My doctor suggested it best to wait and watch it since I do not notice symptoms yet, except for some gradual hearing loss in my right ear and ringing in my ears. Living one day at a time and trying to enjoy each day has been my goal. When necessary, the doctor suggested radiation therapy, which can cause it to become cancer in 2 % of cases. I am not at all enthused about any kind of surgery, especially on my head. I am really hoping for a new kind of treatment, such as immuno-type therapy where you take a pill, and it goes to the tumor and shrinks it or makes it disappear. Some doctors are now using it for cancer tumor treatment with some amazing results.

I just wanted people with acoustic neuroma to know you are not alone, and I know it is like sitting on a time bomb and is quite nerve racking. I try to keep busy and not dwell on it. We can try to find some talented doctors, pray for a cure, and hope for the best. Good luck to you all!

I also have two small thyroid nodules that the doctor is watching; the larger one checked was benign. Thank God! Last month I had an attack of acute pancreatitis and was in the hospital four days, three on an IV. They could not find out exactly what caused the problem but thought a gall stone traveled through my pancreas. Now I have tendonitis in my right foot from going up and down 14 steps too much. (My daughter recently had a breech C-Section and could not climb up and down her stairs for several weeks.) For over the past year, it seems I just get one problem paid for and get another. Hopefully, it will not get any worse this year. I am still feeling pretty good, though – even with all of my medical problems.

Dec 11, 2016 · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor

To mask the ringing and clicking in my ears, it helps to watch TV or concentrate on music or other sound. The loss of hearing is something I have gotten used to. I can still hear with my affected ear, although the sound needs to be louder on that side.