That is a question for the doctors.
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Sat, Mar 2 8:33pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor
That is a question for the doctors.
Sat, Mar 2 8:25pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor
I did phone Mayo when I first found that I have an AN, but my insurance at that time was not good in that area. Mayo's office said I could have a DVD of the MRI sent to them.for a second opinion. After my next MRI, I plan to get all three MRIs on a DVD and send them to Mayo's. Now I am on Medicare and a supplement, which should cover better.
Hearing loss seems to be what happens first and balance issues. Depending on the size of the tumor, worse symptoms can occur. My ENT doctor said that radiation is recommened for people past 65 and surgery for younger patients. Smaller tumors are watched with MRIs. 2 percent of radiation cases get cancer, which does not make me very happy, especially since I am already 1 in 100,000 with a AN! When there is surgery or radiation, even worse problems can occur.
Sat, Mar 2 7:41pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor
Do not think so.
Thu, Feb 28 7:57pm · Anyone else diagnosed with acoustic neuroma, a benign brain tumor? in Brain Tumor
I have been losing hearing in my right ear very gradually over many years. When I mentioned it to my ENT doctor as I was getting two thyroid nodules examined and needle biopsied (which were small and benign), he had me take a hearing test, then sent me for my first MRI because of the auditory test result pattern. I have a small acoustic neuroma 5 x 11 mm. That was about 3 or 4 years ago. Almost a year later, I had another brain MRI, again without and with shot and was told it had not grown and I could wait 2 years before getting a 3rd MRI and thyroid sonogram, which are due this spring. I do not, so far, have other really noticeable problems, except ringing and clicking in my ear and, maybe, sometimes a few balance problems when turning or bending fast or walking in the dark. If the acoustic neuroma causes worse problems and grows too large, I will have to have radiation. These days, the choices are observation, surgery, or radiation. Since I am now 71, the ENT thinks observation of the small tumor is best, and then radiation, if needed. Also, I have been dealing with annoying irritable bowel and refux for several years, too. Hopefully, by the the time I need the AN treated, better treatments will become available. Right now, I am hoping it does not grow. Good luck with your AN journey! Everyone has different circumstances. Hope my story helps you decide what to do and helps ease your mind somewhat. .
I wrote on here after my AC diagnosis. My AC was discovered about three years ago. It was around 5 x 11 mm, and my ENT suggested waiting and watching. Over many years I have lost 30% of my hearing in my right ear. After two MRIs, so far, there has not been much growth, and just ringing in ear, itching, and a few balance issues, I am supposed to get another MRI next spring. If symptoms get worse and growth gets too large, it is either surgery or radiation. Since I am now 70, it is recommended I have radiation, not surgery. There is a really good video on UTube.com/acoustic neuroma by a California doctor about AC.
After gradual hearing loss in my right ear over many years, after an MRI, I was diagnosed over a year ago with an acoustic neuroma in my right ear. Since the tumor is small, my ENT doctor suggested waiting and watching. I had another MRI in July of this year, and my doctor said that it was “very stable” and I would not have to have another MRI for two years. If it grows too large, I will have to have radiation before it causes more trouble, which has a 2% chance of causing cancer. The other choice is surgery (which they do not want to operate on older people like me – 60+), but deafness in the affected ear is expected – whatever is done. Acoustic neuromas are benign they say. I also have two small thyroid nodules that he is also watching and have to have another ultrasound in two years also. The larger nodule is benign. Good luck with your AN case. They do not know what causes them, and they are rare – just not rare enough since too many people have them.
Bentyl is probably for constipation-type IBS. Mine is the diarrhea kind. It really is very irritating and annoying to have to deal with it all of the time. I know. You do have my sympathy. It would be really great if some doctor would figure it out.
When I asked my ENT doctor about surgery that way, he said that I was not a candidate for that since I still had quite a bit of hearing in my ear and my acoustic neuroma is still small. He suggested wait and watch and eventually radiation, when and if necessary, which I was also told can cause cancer in 2 percent of patients. That was a year ago, and I am due for another MRI.