Sorry for the delayed response…My 17 year old son was diagnosed with SMA about two months ago. During that time he has had no weight gain. He is eating well and bowels are good, but still at a loss on what to do. Really of thinking of scheduling appt at Mayo in Minnesota. We have a gastro doc we are seeing now. He has run tests and cannot determine why no weight gain….We see him again in two weeks…I am scared my son is going to die.