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Sat, May 11 12:58pm · Undiagnosed Autoimmune with back pain, spasms, and stiffness in Autoimmune Diseases

Mayo clinic sounds like a great option to me. Go for it & go to them. If any place can help. They can

Sat, May 11 7:37am · Undiagnosed Autoimmune with back pain, spasms, and stiffness in Autoimmune Diseases

Very good advice.
I was speaking with a woman at a hospital appointment ,whose 4 yr old daughter showed all the signs of lyme. (& she knew her daughter had been bit two months before the symptoms showed. )
Little girl tested negative for iLyme. The Mom didn't give up. After a year of her daughter getting worse with no help to discover what was wrong ( with her constant pushing the professionals) ,she heard of a Dr who specialized in Lyme D in Ottawa Canada. He treated her daughter aggressively & she is doing well. She Will always have some problems that can not be reversed but this Dr has stopped the progression of the disease.
Don’t give up. Go online & look for a specialist with good results.

Dec 21, 2016 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

I am so sorry for all your stress. I understand My Mom thankfully never drove but her uncle went through this step in his illness. His daughter took the approach that if the Doctors have said this is to be ,then it is so. The keys stay with her Its not an option anymore.
She had a fight at first until she told him that it is not for just worrying about his safety but for the safety of some small child that doesn’t know any better & walks in front of his car or a young family with a car full of kiddies that don’t survive or the children have to live their lives without their parents. His reaction times are not what they should be. The Doctors said so.
He didn’t like it & protested at first but she spoke quietly & stood firm on it. In some cases thats all you can do. Stand firm, don’t cave. Speak quietly & calmly but with firmness.
It is hard to accept , but you are the responsible adult now. You have to be there in that capacities for him from now on. That was one of the most difficult things , that affected me with my Mom & alz. Knowing that her sense of reasoning is now depleted lets say. More childlike & I am the resonsible adult now its up to you to take action Not wait Sorry. Hugs.

Nov 24, 2016 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Hello & thank you . I’m JULZ.
I am the sole caregiver & POA for my 86 yr old Mom who has frontaltempral dementia , congestive heart failure , fluid in her lungs as well as inoperable breast cancer in both breasts as well as behind her bladder, & glaucoma.& arthritis
It has been quite the journey over the past two years starting with the Alzheimer’s.
Some days it is very overwhelming for me.
Mom is a happy person ( which I’m very thankful for). We have always had a very good relationship. Me being the oldest of 5. Mom trusts me in everything.
Having the Alzheimer’s seems to have been a bit of a blessing with all else she is going through because she doesn’t experience the pain most would have Except for the arthritis in her knee.
It is extremely difficult to watch Mom going from a independent active woman to the attitudes etc of a four yr old.
Someone was asking about music. I do find that putting on soft background music helps Mom especially during early evening ” sundowning” time. Being able to see outside helps as well. I have her lazy boy placed in the front window so she can watch the street activities & can comment on them.
I always tell Mom the truth about what is going on & why we are going places. But like a child. If she drops it so do I. It was difficult during the move to my home from hers but she did realize it was time. Something that helped then was her Alzheimer’s Doctor told her that she was going from a family of one to a family of three & that she was very lucky to have myself & my husband to include her in our home. Mom refers to that from the dr often.
One thing I have been trying to do daily is find humour in life for her. Getting her to laugh at simple sayings , visuals etc. Even when I feel like crying I strive to bring her laughter. Laughter is good for her sense of being as well as mind.
Just typing this out has made me realized I can do this. Thanks for the airing. Lol

Nov 24, 2016 · Meet fellow Caregivers - Introduce yourself in Caregivers

Hello & thank you . I’m JULZ.
I am the sole caregiver for my 86 yr old Mom who has frontaltempral dementia , congestive heart failure , fluid in her lungs as well as inoperable breast cancer in both breasts as well as behind her bladder, & glaucoma.
It has been quite the journey over the past two years starting with the Alzheimer’s.

Nov 24, 2016 · More than one auto immune disease? in Autoimmune Diseases

I have seronegative RA & Psoriatic arthritis