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Dec 27, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thanks for the guidelines. It looks like the Antibiotic therapy treatment is the same as previously recommended. They do not say the length of treatment. Is it still 18 months?

Dec 22, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you! I will keep you posted. Have a great holiday!

Dec 22, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I did have it biopsied but I doubt they were looking for MAC. They thought it mite be a skin reaction to gluten, so they tested for that; the biopsy was negative for gluten, parasites, infection but I don’t know if they would have said looked for MAC. I have to check that out.

Dec 22, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I feel like I am going insane from all the itching… it is crazy. I will try the bath. Maybe that will help. Thanks for sharing.. Happy holidays to you too!

Dec 22, 2017 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

i have been on the triple ABT therapy for 14 months now for MAC/bronchiectasis. In the last a couple of months I developed a rash and the itchiness is driving me crazy. I went to 2 dermatologists, an allergist/immunologist and to my pulmonologist. I had 2 biopsies, and did a lot of blood work but they could not find a cause of the rash. I tried Anti Itch Cream, a cream with steroids in it, prednisone, etc and it still persists. The dermatologist thought it might be medication-related as did the allergist. My allergist took the lead and told me to eliminate one of the antibiotics (Rifamkin) as 66% of people have the side effect of a rash. Then if the rash does NOT go away, he will eliminate the Ethambutol to see if that is the cause. I am hesitant to do so. I had him call my pulmonologist to discuss but he is on vacation. The allergist said to me that I have been on the treatment for 14 months. Who really knows if 14 months is not as effective as 18 months. They have not done more recent research to know that. So.. I am a little conflicted. I did not take the Rifamkin last night, as I can’t continue on like this either. I live in New York and believe I have an excellent medical team on Long Island. Any suggestions?

Jan 25, 2017 · Big 3 and Ongoing Bloodwork for MAC in MAC & Bronchiectasis

I have a 3 month fu appointment with my pulmonologist this week. I am on the BIG 3 antibiotics and have been on them for 3 months now.
For my 3 month FU, I just did a follow up audiology test, eye exam (peripheral vision, optic nerve health, etc) and my next appt is with the pulmonologist.

In terms of blood work, what is traditionally recommended for follow up?: Liver panel, kidney panel, Vit D, B 12, CMP?

Also my neuro-opthomologist suggested a 4-6 month follow up. In the interim he gave me a wallet size ambler test card to check my vision and suggested I do the online color test. Do you suggest waiting the 6 months.. and making the appt earlier if there are any changes or the 4 months. Thanks for your help.
Judy