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Nov 21, 2016 · Shortness of breath mystery in Lung Health

Katherine, thank you so much for your encouraging words. I will most definitely take your advise and read all I can to educate myself on this disease. It is comforting to know others like yourself understand. I am excited to learn all I can and to know I could actually beat the MAC is giving me hope. I appreciate what you said about the cultures. I will be considering this seriously and if I don’t get answers, then I will get a second opinion.

Nov 20, 2016 · Shortness of breath mystery in Lung Health

Hello. My first time here and I can see that the information I am reading is helpful and I don’t feel so alone. I recently have been diagnosed with mycobacterium Abscessus. I can’t walk very far without going into a breathing attack. I wonder if this disease is the reason I can’t walk very far? I’ve had two sputum tests, one positive and one negative. My doctor says I need to take another sputum test as she doesn’t want to go forward with certain drugs until she sees if the next test is negative or positive. I am on oxygen full-time. I am unable to clean my house or cook. I’ve had bacteria pneumonia twice in a year since I moved from Missouri to Texas. I am 77 years old and have been in fairly good health until about two years ago in MO I started getting tired and sleeping a lot. I unfortunately had a doctor that did not give me the care I needed but I didn’t realize it at the time. I was not referred to a pulmologist, did not know I had copd and learned from other people that I needed more help. I begged for oxygen and a nebulizer and finally got it and it helped a great deal. Now that I am in TX I am getting great care. I’m just worried about this disease if I can beat it or not. It’s a tough one. I want to walk again. Any advise you can give me is greatly appreciated.