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Posts (39)

Dec 31, 2019 · Adult Life after a Traumatic Brain Injury (TBI) in Brain & Nervous System

Hi! I don't know why it took so long to think of coming to a chat with my questions. I do it in other areas of my life. I am writing because my son finds it difficult to put these questions into words. My son is 45 years old. He was thrown from the back of a jeep when he was 16 and incurred a closed head injury. He did not receive a great deal of medical care other than diagnosis and tests related to that diagnosis. No one suggested follow-up therapy, etc. He has problems with his short term memory, cannot follow conversations with quick give and take or follow verbal directions but very good with hands on tasks. He does have explosive rage which is much reduced in a calm and regulated environment. But my question is about a physical phenomena that happens periodically. When under stress the area where his head hit during the accident will swell and become sore to the touch. My son will get a bad headache on that side of his head, he will feel a strong pressure behind his eye on that side and the veins, etc. will bulge out in the subject area. He does not have insurance for testing, etc. Does anyone have experience with this happening to them and what do you do about it. Also, I wonder if he would be eligible for medicaid due to the multiple impacts on his body and in his ability to gain employment that will support him. He does work but certainly is not able to handle complex tasks or multi=task outside of his specific functions. Any feedback is appreciated.

Nov 29, 2019 · Shoulder replacement: Post-surgery suggestions in Joint Replacements

Hello, all! I signed in and read a few of the latest comments. I have been stunned at how well the shoulder surgery went, the brief period of pain (especially compared to what I anticipated) and how well physical therapy is going. I don't know what to say about a pain that continues after the surgery. I also have had a total knee replacement with pretty much the same story. I know I would seek out another opinion. I live in North Carolina where Duke is considered the absolute best in medical care. As a result, many people will choose to go to Duke for their second opinion. Persistent pain is challenging. Pain management classes are an option. Lack of sleep is a real problem for me. Lack of sleep makes everything more difficult. I am currently trying yet another method to help me develop a sleep pattern. One huge decision on my part has been to practice acceptance of a current situation because I get so angry when my body is sick or hurts. It is very important to practice caution when using sleep medications. Chronic pain sucks and makes decision-making about what to do next far tougher. If available, allow mentors and close friends to help you. Many blessings!

Oct 22, 2019 · The End: When caregiving ends, my husband passed away in Caregivers

My husband passed away on July 17th from complications of frontal temporal dementia. We were both at our end. We fought the good fight for a very long time knowing there was no cure. It is going to take awhile to change speeds and join the world around me. I am working on recovering my health and beginning to take care of long ignored business matters. I am grateful for the opportunity to caregive my husband and I will always be amazed at how exhausting, sad, frustrating, rewarding and painful caregiving was for me. I could not have done it without the chat groups of other caregivers sharing so honestly about their journey and their many tips on how to do various processes at home. God bless each of you. Caregivers are unsung heroes!

Oct 22, 2019 · Shoulder replacement: Post-surgery suggestions in Joint Replacements

Anncgrl here ! Thank you for all the replies. My Total shoulder replacement surgery was on July 30th. It went great and I have had minimal problems. The main thing that caused me an issue was the death of my husband on July 17th. He died from complications of frontal temporal dementia. I was his caregiver for a very long time. I made the choice to proceed with the surgery. I figured if I was already suffering so much then I might as well get the shoulder issue done. I am currently in physical therapy and doing well. The entire process has been far better than I expected. I stayed with friends for several weeks and I appreciate their care and generosity. I had a total knee replacement several years ago also with very little problems. I did develop a blood clot about a year after that surgery and have since read that can be a result of knee replacement. At this moment I am not aware of other surgeries and am so grateful for good doctors and caring friends. My word of advice: Do what the doctors tell you from start to finish. Also, I got awesome videos of how to dress and sleep from youtube

Aug 25, 2019 · Having knee replacement: how to prepare and questions about PT in Joint Replacements

I did not have any indication. I worked from home and did a lot of sitting but I don't know if that mattered. I stood up to take a break one day and my leg hurt as if I had stepped in a small hole and twisted it badly. I thought it would pass but ended up going the doc who sent me immediately to the ER for tests. There were actually two clots. One ran from. My ankle to just under my butt and the other from the back of my knee up further. I was in the hospital for week. I am on a blood thinner all the time

Aug 25, 2019 · Shoulder replacement in Joint Replacements

I had a total shoulder replacement of my right shoulder on July 30th of this year. I have had a number of surgies in the past without trepidation but I did feel some anxiety about this shoulder. They only kept me one night in hospital and from there I went to stay with a friend. I am still staying with a friend rather than at home so that I will not be tempted to overuse my body. I had about a week of intense pain that was modified greatly by the pain medication. I took them as prescriibed until I realized that I could go longer and longer without the medication. The nurse told me to take them as prescribed but I did not need them so I did not take them. I am a recovering drug addict and alcoholic and did not feel any desire to use them other than for the pain. I slept sitting up in a chair with pillows for support…especially for my arm and shoulder which were in a sling. I have been sleeping in my bed for awhile now and that works as long as I use the positions suggested by the doctor. I went on youtube and watched videos of proper sleeping positions for post shoulder surgery over and over. I have a healthy respect for the need to keep the upper part of my shoulder stabilized, etc. Today I can wear my sling or not around the house with no problems. As with my knee surgery I have followed doctor's ordes and made provisions to stay somewhere to begin recovery rather than at home. Physial therapy starts on September 9 and I do not look forward to it at all. I know the purpose and I will comply but OUCH! I attribute my reasonable amout of success to obeying doctor's orders and using the internet to watch relevant videos and read other people's experiences.

Aug 25, 2019 · Having knee replacement: how to prepare and questions about PT in Joint Replacements

I had a total right knee replacement several years ago with no trouble during recovery or physical therapy. I followed the instructions of my doctor and e rested a great deal in the beginning especially. The little machine with the ice in it (don't know the name) was a huge blessing, Physical therapy was not a cakewalk. but I got through it and I don't have any residual pains in my knee to date. I did, however, develop a rather large blood clot in that leg about a year later…maybe a little bit less…and have had some problems with that with ankle swelling on a daily basis, several follow-ups to check for another clot based on symptms. I have read that blood clots can be one side effect of knee surgery. I have not had that confirmed. Today my knee is as agile and useful as my left knee! There is no way I could have functioned with the knee as it was prior to surgery. The surgery has been a blessing.

Aug 15, 2019 · Any other caregivers of Frontotemporal Degeneration out there? in Caregivers: Dementia

Just a thought as my husband had Fronto-temporal degeneration (FTD). Several of the symptoms you are describing sound a great deal like symptoms many experience in the early onset of FTD. You can look at information at the AFTD.org website.