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Nov 11, 2016 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Thank you for the info. I’m glad that I probably won’t have to stay there more than a week and can fly home.

Nov 11, 2016 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Thank you for the info. Looks like I will be able to fly home after a week there. The 3 hour drive was referring to staying with my son in Michigan.

Nov 11, 2016 · What is the recovery like following septal myectomy? in Hypertrophic Cardiomyopathy (HCM)

Thank you the info I have received. I would like to know how long after a septal or apical myectomy I would be able to return home. I’ve read that I would be in the hospital almost a week, but since I live in Florida, I need to know when I can travel and whether to drive 3 hours or fly home to Florida. I have a son in Michigan about 3 hours away with whom I can stay, but I’d prefer flying back to Florida if possible.

Nov 7, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Thank you. I did receive a reply that convinced me that going to Mayo in Minnesota would be a better outcome due to higher volume of patients undergoing myectomies there.

Nov 7, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Thank you for the info. Do you know the surgeon/s at Mayo in Minnesota who perform the most myectomies? I found one surgeon at Cleveland Clinic who has done 2000 +, but I haven’t found this info yet from Mayo.

Nov 7, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, I’m Janet, and I was diagnosed with HCM almost 20 years ago after my 18 year old son was diagnosed with it. My mom died young from it and so did her grandfather. I have very little information about my dad’s side, but he did have a triple bypass in his 60s. It seems I may have to have a myectomy. My question is this: do they perform myectomies at the Florida Mayo Clinic (I live in Florida), or will I have to go to Minnesota? I have called the Florida clinic and e-mailed them, but haven’t received a response or appointment from them yet. But they did e-mail me that Mayo charges 15% above my Medicare which is with BCBS. I’ve heard that Cleveland Clinic also does HOCM myectomies, but they don’t accept my insurance as in-network either. I’m still waiting for a response from them as well. Are Mayo and Cleveland clinics rated equally high for these myectomies?