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Thanks for your information. It must be tough. I’m going to inquire about ammonia levels with my
Sorry you had such a bad stick experience- I’ve had some also. I have learned that going to a phlebotomist is best, preferably someone in the lab reimbursed by your insurance. I go to Labcorp instead of letting a nurse or practitioner. I only had one practitioner ever able to perform a good stick. What is the issue with the ammonia?
PS, one particular symptom of normal pressure hydrocephalus is urinary incontinence.
Has any physician considered normal pressure hydrocephalus in your case? I have a sense that the condition is under diagnosed.
My diagnosis was normal pressure hydrocephalus and if I had not had a shunt installed, I would still be in memory care and getting worse instead of better. Another person who posted on this connection may have the same problem. It’s important to get a good diagnosis so that appropriate action can be taken.
Pretty well. The shunt was installed on 3/2/16 and I’ve been improving ever since. I did have a brain bleed subsequently but testing at the Lou Ruvo center showed it is now gone. I have no tangles, etc, but do have white matter disease. My balance is bad and I continue with therapy for that. I have proceeded with placement in less restrictive environments over time and am doing well. I was able to get someone to house sit in my home in nj which was a great relief and allows me to be comfortable here in a senior and assisted living facility near my family. I’ve found some really good medical services here and I’m resolved to use them until I feel ready to go back home and sell my house and follow through with my original plan to move to a continuing care facility with my friends, some of whom have already moved. I’m 74 now and it seems that the last 20 years just sped by. I’ll focus more now on myself and my physical health, as I feel I will profit more by pushing forward. It’s hard sometimes but worth it.