Congratulations! I know what a difference it’s made in our life. You can eat, take a bath and swim again if you want.
Member has chosen to not make this information public.
Member not yet following any Groups.
Member not yet following any Pages.
Just wanted to say how happy I am that you are feeling normal again. My husband is at that point now following surgery last July and radiation in November. There is still some therapy to be done but we are just amazed at his progress. Wishing you all the best!
My husband had a 3 cm meningioma removed in July. His surgery was performed in Los Angeles and was a 10 hour operation. They were not able to remove all of his tumor because part was attached to the brain stem. His meningioma was categorized as a type two which is fast growing. He suffered a small stroke along with some nerve damage resulting in paralysis in his throat and right side during the surgery. He was unable to swallow anything and was given a feeding tube. He also had to have extensive therapy to be able to walk and swallow again. In October we went to Mayo for radiation for the remainder of the tumor. Last week his feeding tube was removed and he can eat most foods. Most of his diet does consist of liquid nutrition drinks. His last MRI showed no growth in the tumor. He will continue to have MRIs every three months. Overall we have seen much improvement in the last eight months
Thank you so much. I also wanted to let you and everyone else with a feeding tube know that we have been buying the formula and syringes for the tube feeding from Amazon. At first we bought it from medical supply companies, then we found the same formula at 1/3rd of the price on Amazon. Hope this info can help someone as the formula can be very expensive.
My husband had to have a feeding tube after suffering from a stroke during surgery to remove a brain tumor. Part of his throat became paralyzed due to the stroke. He managed very well with the tube and was able to do all his tube feedings himself in a short while. His only problem was granulation tissue that formed around the incision site that was quickly resolved with some cauterization. It has been eight months and after much therapy and a procedure to plump up a vocal cord he will be getting his feeding tube removed on the 20th of March.
My husband and I traveled to Mayo from Louisiana for radiation treatment. It was one of the best experiences we have ever had dealing with Doctors. If something came up we were quickly sent to a specialist. All of the Doctors offices are connected by underground walkways to keep you out of the weather. We stayed in a hotel the first week while we were put on a waiting list for Hope Lodge. Hope Lodge was wonderful. They allow people to stay for free for long term radiation treatments, all you provide is your food. We stayed there for five weeks. I am so glad we were able to go to Mayo. On the 17th of this month we are going back to see if the radiation my husband received was able to get rid of a brain tumor. I would definitely recommend Mayo.
Nov 5, 2016 · Sister has severe head pain 3 years post Meningioma surgery in Brain Tumor
My husband had surgery in July to remove what we thought to be a shwanoma tumor but turned out to be a Type 2 Meningioma. The surgery was done at St Vincents hospital in Los Angeles by Dr Schwarts and his team. The surgery took 10 hours. The tumor was described as “sticky’ and attached to several nerves leaving him with some nerve damage and paralysis in his throat and one vocal cord. He could not swallow and had to have a PEG tube surgically placed in his stomach. They were unable to remove all of the tumor and left a small piece on his brain stem. Type 2 meningiomas are benign but they do continue to grow and can infiltrate into other tissue. For that reason we are now at Mayo in Rochester,MN for fractionated radiation treatments. He has seven treatments so far. He has started to feel very fatigued and increasingly dizzy. He becomes very anxious at times and is worried about cognitive impairment. Has anyone else experienced a type 2 meningioma and could shed some light on what to expect?