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Posts (12)

Dec 4, 2016 · Chronic painsss + working full time in Bones, Joints & Muscles

I dont know how to do it, but I would like to share with u 2 photos that describe my pain really well. Others might relate to it, find it useful. And I am curious also…to hear from other people, especially those with constant painssss + working full time.

I have AS, Sjogren, psorias, migraines (rather well controlled with Botox) and neuropathic pain…am presently off work. I dont think my GP believes me. Its difficult to explain my situation here because of its complexity, but I’ve a feeling she is going to send me back to work before I am ready because she says “working distracts you from the pain” , I think she thinks I am depressed + THAT is my problem (not intending to yell here, just stressing the word “that”).
Saw psychyatrist, he says no.
I have the feeling she sees me as not motivated to go back to work, that I am lazy, too emotional. Yet my history is proof of exactly the opppiste.

It is very stressful thinking I will not have the time to land back firmly on my 2 feet before going back to work, even if I go back part-time at first.

So, is it a possibility to share a couple of photos here? If so, how?
Thanks 4 reading, looking forward to reading ur thoughts/answers.

Nov 13, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Well, I do have a lot to learn! I only know of 1 person who uses mm & he smokes its. A rub where it hurts…sounds good to me. Im having a lot to deal with & a lot of learning to do! Its like my body exploded with pains a few wks back. Im in the process of eliminating meds…and then?? Thanks 4 the info.

Nov 13, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Yes I have read the difference between CBD + THC but i will also go check out Mayo clinic guidelines. Info is power!
I have read about kids using it to control siezures. But i have to admit that where i work i have a very difficult time imagening the principal or my students parents accepting theyr teacher goes out 4 a smoke, wether it be “medical” or not, during recess…although cookies or muffins might be an interesting option. I guess i’ll need more leagal info also for canada. I love what i do and I want to continu doing it.

Nov 11, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi, yes I’m on a waiting list. When I looked into this site it said be somewhat careful of what u write as anyone can read it…which is why I am replying by email.I dont know yet how it would work out 4 me. I really want to go back 2 work, but I work with kids. Not really sur the 2 r compatible. But I will find out! Thanks.Envoyé de mon

Nov 11, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks 4 reply!
B12 will ask doc, EMG cant remember when i had one so will check that also.
Called my pharmacy about the newer form of Gabapentin…she didnt know about it, said perhaps not approved in Canada yet. Do u know how long its been on the market? What is “new” about it?

Nov 11, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Yes, I have! Never tried it on feet since different pain than AS. Feet: burn, freezing, tingling, numb.
I have AS, Sjogren, psoriasis, PN, migraines. Thats all. Feeling overwhelmed…
Work with kids, been off 4 a few weeks. Need 2 figure out how to go back to work, I miss it.

Nov 10, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Ive taken Gabapentin for several yrs, have tried various doses. Its helped a lot, or not much depending….on what excatly?? Then added Cymbalta wich really did seem to help a lot. Note that nothing makes the pains go away completly. But if I can do what I want/need to do, then I’m happy.
Of course, there is always side effects with meds. Gradually I noticed by body was on fire, on/off. Then the burning was more “on” than off, then it was all the time. Side effects I was told…so I tried to be an even more “patient” patient. Upon consulting my pharmacist again, I was told Cymbalta could be the culprit…I stopped it. The burning subsided & now is gone. Only, how to deal with neuropathic after that?
Whish I could be more help, those 2 drugs can bring relief, they have 4 me for a while. Be mindful of what ur body is telling u, to know when enough is enough before it becomes too much.
Take good care.

Nov 7, 2016 · Sjogren’s Syndrome – Introduce yourself and meet others in Autoimmune Diseases

Something else to add 2 my list, thanks.
I have Remicade since 2008 for AS. So far its effective.