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Aug 20, 2018 · Q&A for Out-of-State Patients in Transplant

Can you live in another state waiting for a heart transplant?

Jul 15, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I had that problem since 1996. I am now on oxygen waiting on a heart transplant. This is based on my symptoms not tests.
At one point I thought I might die before anyone believed me.
The final test that showed a problem was a test where they had me on my back, pedaling a bike while they measured the pressure in my heart. It went up 300% over maximum with exercise.
Every other test for 20 plus years could did not show the level of physical difficulty I have was actually experiencing. Good luck. Keep going until you find the help you need! Your life depends on it.

Jul 14, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

No I have apictal type. My bottom of my heart is thick and it won’t open up to let enough blood in. None of the typical treatments work for my heart.
My choices were heart Transplant or hospice.

Jul 14, 2017 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I am 57. My diagnoses did not look that bad either but my symptoms have continued to escalate and I am now on the heart transplant list.
The severity of the symptoms is what matters.

Nov 2, 2016 · Video Q&A about Hypertrophic Cardiomyopathy & Surgical Treatment Apical Myectomy in Hypertrophic Cardiomyopathy (HCM)

I just had a defibrillator/pacemaker implanted for this problem. I have extreme disability symptoms and intolerance to medications that control this. I also have a significant loss of blood pumping ability. I would like to talk to someone about my fit as a candidate for this surgery.

Nov 2, 2016 · Video Q&A about Hypertrophic Cardiomyopathy & Surgical Treatment Apical Myectomy in Hypertrophic Cardiomyopathy (HCM)

I would like to talk to someone about this surgery. I would like to be evaluated for this ASAP. How do I contact these Doctors and start the process?