So very sorry, I wish there was a cure for HCM. Thinking of you!
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How soon should we be having my 5 year old grandson tested for this? My Genetic testing came back negative for now, but I know it has to be genetic because my father and I have it both.Thanks!
Dr.Ahmad is the Genetic Cardiologist, i have 3 kids and have gone through with the genetic testing. Mine came back as negative, but they are constantly adding new mutations….so this means it still could pop up as positive for my kids. I am so sorry your kids have it, its scary to think about what they have instore for them. But so glad they have caught it early and can get them on the proper meds to slow it down.
Hi! I live in rural Keota and doctor at the U of I. My dad has HOCM and so do I. My dad sees Dr.Lindower, he was the one who recommended having his kids tested. I was tested and I inherited it ftom him, I thought it best to stick with him because he knows my dads history. My HOCM has progressed way faster than my dads, thsts when Dr.Lindower suggested I see a genetic Cardiologist. Now I see Dr.Ahmad at the U. I absolutely love him, he takes so much time with ne and really explains things well, and a very caring man. This month when I go see him we are going to discuss again if he should send me to Mayo. He wants me to have Dr.Lommen and Dr, Schaff as one of my doctors. I think you would really like Dr.Ahmad.