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Posts (21)

May 11, 2017 · Norpace` in Hypertrophic Cardiomyopathy (HCM)

So very sorry, I wish there was a cure for HCM. Thinking of you!

Apr 12, 2017 · #MayoClinicHeartChat about Hypertrophic Cardiomyopathy & Genetics in Hypertrophic Cardiomyopathy (HCM)

How soon should we be having my 5 year old grandson tested for this? My Genetic testing came back negative for now, but I know it has to be genetic because my father and I have it both.Thanks!

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

Hope I helped a little, its just nice to have someone to talk to from Iowa who has it! No one around here has really heard of it other than my dad and they don’t understand how bad I feel all the time!

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

Dr.Ahmad and Dr.Mazur insisted I get one when I started fainting soells and also to be able to increase my meds. It hasent made me feel any better, buts its definitely a safety net if I go into sudden death.

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

Dr.Ahmad is the Genetic Cardiologist, i have 3 kids and have gone through with the genetic testing. Mine came back as negative, but they are constantly adding new mutations….so this means it still could pop up as positive for my kids. I am so sorry your kids have it, its scary to think about what they have instore for them. But so glad they have caught it early and can get them on the proper meds to slow it down.

Apr 2, 2017 · septal myectomy and mitral valve repair in Hypertrophic Cardiomyopathy (HCM)

Hi! I live in rural Keota and doctor at the U of I. My dad has HOCM and so do I. My dad sees Dr.Lindower, he was the one who recommended having his kids tested. I was tested and I inherited it ftom him, I thought it best to stick with him because he knows my dads history. My HOCM has progressed way faster than my dads, thsts when Dr.Lindower suggested I see a genetic Cardiologist. Now I see Dr.Ahmad at the U. I absolutely love him, he takes so much time with ne and really explains things well, and a very caring man. This month when I go see him we are going to discuss again if he should send me to Mayo. He wants me to have Dr.Lommen and Dr, Schaff as one of my doctors. I think you would really like Dr.Ahmad.

Feb 28, 2017 · Diagnosed with HOCM last year. May be time for surgery in Hypertrophic Cardiomyopathy (HCM)

Hi Barbara, I’m 51 and know first hand exactly how you feel! Thoughts and prayers to you!