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Mar 25, 2017 · Erosive oral lichen planus in Autoimmune Diseases

I understand your frustration and I’m sorry you have to deal with this. After four years of this pain, 12 doctors, 5 biopsies and a 40 pound weight loss the only relief I’ve found is don’t eat anything hot or cold or that needs chewing, use kid’s watermelon toothpaste and Motrin helps with my pain more than the prescription pain relievers. I’ve heard of people that have had this problem just go away. I will wish that for both of us. A few have found improvement with vitamin B12 and D. I’m going to give B12 a shot and have already started on D. If there is any improvement, I’ll let you know. If anyone discovers a doctor in Michigan that that has any experience with this issue, please advise, and good luck to you.

Mar 23, 2017 · burning mouth syndrome,or bms in Skin Health

Per a recent blood test, my B12 level is good but perhaps a higher dosage is needed to improve my mouth issues. How much were you taking to get some relief? Are there any other treatments that have been beneficial for you? It’s been 4 years and I continue to have the burning, swollen lips & tongue, ulcers and I lot of pain. I have not been diagnosed with burning mouth. I do have Lichen Planis which presents with the same symptoms.

Oct 20, 2016 · burning mouth syndrome,or bms in Skin Health

So sorry-this is very discouraging because I’ve only been suffering with the burning, pain and mouth ulcers for 3 yrs and was hoping to find some answers on this website. I’ve been to 9 different types of doctors with no relief and no diagnosis. After reading all these posts, it appears that there is nothing that can be done. I’m not even sure I have BMS. It was suggested by a couple of dentists that It may be BMS, or autoimune or lichen planis so I just don’t know where to turn next. My question to you is have you found any mouth wash/toothpaste that does not burn. Also, most foods and beverages are impossible to eat due to my painful tongue or the burning. Have you been advised to stay away from any particular preservatives or food additives. I wish you well and hope there is help out there somewhere for both of us.