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Dec 3, 2018 · Long-term Antibiotics for Bronchiectasis & MAC in MAC & Bronchiectasis

spencersok — it looks like my first post did not address your question. I didn't have any significant side effects from the Levaquin. It helped the first couple of times but this last time, it didn't. Further testing and a cat scan of sinus showed a deep infection that they think is causing the cough at this time. I was told at the ER that it is possibly too deep for antibiotics to reach and I'm set up with an ENT in two weeks to see if they can get it out. But….. I think you'll be okay with 500 mg Levaquin. I tried the 750 once and didn't get along well with it.

Dec 3, 2018 · Long-term Antibiotics for Bronchiectasis & MAC in MAC & Bronchiectasis

spencersok —- I'm wondering — did you do a sputum sample and see exactly which antibiotic might work? I hope your doctor is not just choosing one out of thin air.

Dec 3, 2018 · Long-term Antibiotics for Bronchiectasis & MAC in MAC & Bronchiectasis

spencersok — I wanted to say also that I've been having fairly good luck just using Benadryl capsules (two at a time). I use two at night and that kind of dries up the nasal drip and helps me get through the night without being awake and coughing. I don't know if it would help anyone else, but it has helped me.

Nov 29, 2018 · Extreme fatigue in MAC & Bronchiectasis

src3acs I'm very curious about the fatigue with this disease. I'm close to 78 and I don't know whether to blame fatigue on the disease or old age (or maybe both???) But….. regardless, it's there. I continue to do the best I can but I also continue to feel exhausted much of the time. To make it worse, I cannot sleep — so I get up as tired as I go to bed. I don't sleep in the daytime and really not more than 5-6 hours at night and even that is broken up into about 2-hour segments. Anyone know what to recommend for a night's rest????

Nov 29, 2018 · Extreme fatigue in MAC & Bronchiectasis

pkayh ….. thank you for an encouraging email from someone who has known they have it for 18 years. Would it be too personal if I asked how old you are? I'm almost 78 and wondering if you are a young lady?

Nov 23, 2018 · Have Bronchiectasis, recently diagnosed with pseudomonas in MAC & Bronchiectasis

windwalker —- Dr told me that some people have bronchial spasms and he wanted me there in case breathing was an issue. He said there would be nurses with me the whole time of the trial (so I assume he's had some experience that wasn't good). Are you saying that at this time you are having a little difficulty with it — after using it for two years? He also said if I can tolerate it they would re-evaluate me after a year to see if I needed anything more. It's a 10-hour drive (stopping only for gas and bathroom — eating a sandwich on the go). Not great fun but will do it. Thanks for responding.

Nov 20, 2018 · Have Bronchiectasis, recently diagnosed with pseudomonas in MAC & Bronchiectasis

windwalker — I know a lady with Natonal Jewish who was on it a couple of years ago. She said she was never tested prior to starting the med. I'm wondering why he wants me to come up to be tested. Have you heard of anyone who cannot take it?

Nov 20, 2018 · Have Bronchiectasis, recently diagnosed with pseudomonas in MAC & Bronchiectasis

windwalker……. I'm curious as to whether you were tested to see if you could tolerate tobramyacin before you started it. My Mayo doctor wants me to come to Rochester to be tested with it before I start a program of 30 days on — 30 days off. No other antibiotic on the "off" month. He thinks a year of that might rid the pseudemonas. My appointment is Feb 6th — hoping snow is not knee deep up there at that time.