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Dec 24, 2016 · Chiari Malformation type1, Addison's Disease, Steroid-induced diabetes in Brain & Nervous System

I delt with a neurologist for the last six months , Dr M. I honestly believe that she just thought o was mental. Instead of helping with my headache she thought my depression was worse a d sent me to a. aPRN who really just said the same thing over and over, about what a hard battle ahead of me . That I’m going through a lot.. hmm I’m aware of this already., she did put my on seized medicine for my tremors priced I definitely had eye tremors And blurred Vision but nothing about my pain. Anyway I met a new neurologist and told her about everything.. she was great and honest, stated she didn’t specialize in Chiari but referred me to a neurosurgeon and set my apt up for 1/17/17. So fast and leaving all the bs out..

Dec 9, 2016 · Agent Orange and Neurological Disorders in Brain & Nervous System

My dad had shrapnel removed from his head that had been there for 30 yrs +. But still wakes with a headache every morning

Dec 9, 2016 · Agent Orange and Neurological Disorders in Brain & Nervous System

Thank u, he also has sleep apnea

Dec 9, 2016 · Agent Orange and Neurological Disorders in Brain & Nervous System

I’ve read that Chiari Malformation could be the result of my dad being a Veteran and exposed to agent orange and lots of other chemicals, then when he came home could have passed this horrible brain disorder on to me.. has any one else heard the same?
Plus he has Dx of agent orange, seizes, neuropathy in all extremities, chronic headaches sleep apnea and others

Dec 7, 2016 · Trying to figure out what would cause Epilepsy, related to Chiari? in Epilepsy & Seizures

Yes, I’m on medication for it, but I stil experience blurred vision from eye tremors/hand tremors at times.. this started at 37 yrs old.

Nov 8, 2016 · Chiari Malformation type1, Addison's Disease, Steroid-induced diabetes in Brain & Nervous System

I know I really wish that that they would try to treat me . I tried to get in with endocrinologist at Mayo and they turned me down saying I have to many problems and they didn’t think they can treat me any better than what I’m getting here but I’m not really getting treated here I take the same medicine every day that’s horrible effects on me I take Or Cortisone and prednisone I also I’m on the depression medicine stuff like that because I want me back I want to be the person I was before I hate looking in the mirror I don’t like to look like this. and I have aches and pains all over and only dad take his ibuprofen and that’s all they’ve giving me

Nov 6, 2016 · Chiari Malformation type1, Addison's Disease, Steroid-induced diabetes in Brain & Nervous System

Everything that you said is true all the symptoms except even with Addison’s it makes me even more tired because I have to take steroids to just have energy to get through. This horrible the pain is horrible and I don’t think anybody understands my endocrinologist but he knows anything really about either one to be honest my rheumatologist she is excellent and she’s trying to find me a surgeon that will actually work on me because my tonsils are at 9.5 and it’s flattening my spinal cord up It is pushing against myspinal cord my C5 and C6 it which makes my hands have no feeling but I still have tremors, I have lumps are I always have pain I feel like something is pulling down my shoulders at all times I wake up with headaches ringing in my ears I cannot get rid of..life is miserable living like this.. some days I think it would be better to just to end it I don’t want my kids to see me go crazy I’m totally losing my memory I had blurred vision like it’s horrible very horrible and I hate it I cry all the time I’m on medication for depression but it’s not helping I see you psychiatrist I don’t think it’s helping.. I don’t feel like anybody that I go to understand what it is but honestly don’t know but emergency room where they seem to think that I’m just seeking pain medicine or something but I’m not I’m really hurt and Im even Dx with chronic pain syndrome chronic pain also but I don’t take any . I don’t want medication it’s gonna mess with my head right now my head is so messed with it I don’t even know what to do

Oct 23, 2016 · Chiari Malformation type1, Addison's Disease, Steroid-induced diabetes in Brain & Nervous System

Its tuff to grieve over your old self, especially when you are always swollen from the prednisone & cortef, I have to take soo many pills, & yes it gets harder to swallow.. I take trazodone 150, before I go to bed.. but for some reason I’m always waking up at night..I’m currently also seeing a psychiatrist that my neurologist referred me to, to learn how to coup with the loss of the old me.. I’m not certain it helps but at least I’ve got someone to tell exactly how I feel about it all .. I lost my job, for missing to much work.. it makes me feel worthless.. I also get made at times for nothing.. especially when I’ve got a migraine and my kids are loud., I’ve met with a law firm to do my disability claim. I’d probably forget to much to manage it on my own as sad as that sounds .. but hopefully you’ll find the right Dr. You could search the Healthgrades website, you can put in the specific Dx & treatments the different Drs do and read reviews, it may help some., good luck