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Nov 8, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, I just want to say how much I appreciated the webinar on apical cardiomyopathy. I am in UK so am not able to access the facilities you have in the US but still very much appreciate being able to “listen in” on the webinars you have.
Knowledge reduces fear. Thank you

Oct 27, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

I’ve got apical cardiomyopathy so look forward to hearing what you have to say as I understand apical is quite rare. I’m going to tune in to the Mayo webinar on 2nd November

Oct 25, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Yes got the date marked in my diary. Will do my very best to “tune in”

Oct 25, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Good to meet someone else with apical cardiomyopathy as it’s quite rare

Oct 25, 2016 · HCM-ers: Introduce yourself or just say hi in Hypertrophic Cardiomyopathy (HCM)

Hi, I’m Val Jones. I live in the UK. I have apical cardiomyopathy. Keen to learn anything I can about it. The treatment you get in the US is far better than in the UK

Oct 13, 2016 · Apical Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

I’ve signed up to the webinar on 2nd November. I hope I’ve done it OK. It did say internal error but I was still able to go on and register

Oct 13, 2016 · Apical Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Thanks Pat. I wonder if that’s why the doctors in A&E were so concerned and insisted that I saw a cardiologist before I could go. She came in at 10 pm and said it’s OK you can go now. No explanation but now I’m thinking that A&E doctors perhaps over-reacted. I am really stressed out about the driving licence as I can’t do without it. I’ve voluntarily given up my C1 bit which allows me to drive my horsebox. I can re-apply for that if I get to keep my ordinary licence. At the moment I’m able to drive pending medical enquiries but I can’t make too many plans as a letter in the post tomorrow may change everything. My cardiologist has to complete a questionnaire in support but arrhythmia which I had in A&E is taken very seriously I understand from a driving point of view (my pulse was irregular but I had been out in the sun stupidly on perhaps the hottest day of the year) Actually I feel better just typing this out and telling you – hope I’m not burdening you with it.

Oct 13, 2016 · Apical Cardiomyopathy in Hypertrophic Cardiomyopathy (HCM)

Hi Pat Mattos, Thanks for that. I do belong to the HCMA facebook page which I’ve found very useful. I get arrhythmia (nsvt at the moment) and am waiting for the results of the latest 24 hour monitor. Here in the UK everything is so slow. I’m also waiting to see if the DVLA will take away my driving licence. My cardiologist has to support my driving request. It’s all very stressful. The heat took me into A&E on 1st July so that is what has sparked the driving licence problem.