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Posts (4)

Oct 7, 2016 · Any success working with Mayo Clinic without diagnosis? in Chronic Pain

@quazar thanks for the feedback. It is helpful to know that fibromyalgia is hard to diagnose. I definitely didn’t know that, and I have seen fibromyalgia support groups in Los Angeles. Perhaps that is something that I can explore. The process you had to do for the botox treatment sounds so frustrating. A type of pain treatment recommended to me was via neurofeedback. I spoke with my insurance on this one, and they mentioned that it is a subset of biofeedback that is currently investigational with not enough data on the therapeutic effects…so it would likely not be covered. I am sorry that the swimming doesn’t really help your headaches. I had another condition many years ago that was very unresponsive too. I like the idea of more meditation, and acupuncture has helped me a bunch. Thanks for the feedback!

Oct 7, 2016 · Any success working with Mayo Clinic without diagnosis? in Chronic Pain

Thank you @sall I should give that a try. Also, I will try to be open to the other Mayo locations. AZ is just the most feasible for distance. I think I have anxiety that if the Mayo Clinic can’t fix it, then no one can. Thanks for the feedback.

Oct 7, 2016 · Any success working with Mayo Clinic without diagnosis? in Chronic Pain

@JustinMcClanahan @quazar @tbeckys @vickiekay @mrsdeecee thanks in advance for your advice. The pain area is in the pelvic region. As of recent, I am having lots of flare-ups that are discouraging. It is hard to quantify because as a kid I felt like it was 10+ constantly. Since acupuncture, I have had times where I would quantify as a 2 or 3. However, recently the flare-ups have been more sharp and burning than usual and the acupuncture that was my only outlet is not helping anymore. My doctor has prescribed me Cymbalta for the time being and it helps a bit. I find myself taking Ibuprofen a lot lately, and it helps to an extent. I think I am discouraged because I was managing the pain for a few years with acupuncture.

Any advice would be great. Also, I am big on support groups, but haven’t found anything that meets regularly in Los Angeles. Any ideas?

Oct 5, 2016 · Any success working with Mayo Clinic without diagnosis? in Chronic Pain

Hello,

I spent time working with my insurance and Mayo in AZ yesterday, exploring possibilities for treatment. I have had undiagnosed chronic pain that I have been receiving treatment for 20 years, and there is not a pain center at that location in AZ. I submitted an email inquiry to get in for pain, and described all of the tests and specialists that I have seen. For right now, the recommendation from Mayo is to see the same kind of specialist that I have seen. That may be ok, but with all the Western medical approaches I have tried, none have relieved pain at all, and I do not have a diagnosis. Anyone had experience with Mayo, given that they had numerous treatments and no diagnosis? Also, I have had some relief with acupuncture, but nothing else.