Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (30)

Sep 19, 2019 · Optic Nerve Meningioma patients in Brain Tumor

I was not diagnosed as a teenager but looking back I believe I probably had the tumors then, a slight eye bulge, etc. but didn't get diagnosed until 2010 at age 60. When I look back on my pictures one eye is definitely a bit different than the other. I am sorry to hear that you are going through this, but we're here for you. Wishing you all the best. Peg

Sep 15, 2019 · Optic Nerve Meningioma patients in Brain Tumor

I am so sorry to hear that. The same thing happened to my brother, same eye as yours. We found it weird that a brother and a sister with two different fathers both had meningiomas. I had many and he had one, but he is blind in his left eye. I need another surgery on my right eye and I'm so afraid that I will completely lose my vision in that eye. My brother has adapted well, he can drive, hunt, etc. all the things he enjoys doing, and I'm hoping you can as well. My best wishes. peg

Sep 8, 2019 · Balance issues and hearing loss in Hearing Loss

Wow, I was so impressed by Joyces response and I love it when I learn something new. That being said, we all live in fear of falling, at least I know I do, and I have taken some epic falls myself. Of course they all hurt and you get up hoping nothing is broken, or that no one has seen you:-) or as in my case once I landed on the grass in front of the funeral home, having missed many piles of dog poop, which as I like to say, is "On the bright side":-) I do walk as much as I can to retain as much balance as possible, sometimes use a walking stick, and like someone else said no quick turns, fast ups and things we know are likely to make us dizzy and off balance. Know your surroundings as much as possible, hang on to a friend, but do keep moving. My husband is convinced I've perfected the tuck and roll method so I guess if we're going to fall it might be best to check out & learn the most non-injurious way. I wish you all the best. Some days my favorite colors are black, blue & green. hugs and love,peg

Aug 29, 2019 · Lump by screw for gamma knife surgery in Brain Tumor

Hi, Along with multiple brain tumors, my MRI also indicates an empty sella. I'm not sure what that means and it doesn't seem like my doctors are concerned about it. Do you think I should be. Wondering what you found out. I didn't have a lump from my gamma knife and hope yours is healing. peg

Aug 29, 2019 · Heading to Mayo Clinic. Anyone flown with a brain tumor? in Brain Tumor

Hi, While I didn't fly for my gamma knife and my cyberknife treatments, drove from Montana to Seattle,Washington, I have flown with head pain since. I find that if I put on my Bose noise cancelling, over the ear head phones it keeps the pressure down and the pain minimal. I hope this helps, but maybe someone else will have a better idea. Wishing you all the best. peg p.s. flying in October with 3 remaining tumors.

Jun 23, 2019 · multiple meningioma brain tumors in Brain Tumor

I have a tumor pushing up against my brain stem, not sure if that is the same thing, but my doctor felt surgery would be too dangerous so I had Cyberknife Radiation. Could that be an option for you? Sending strength and a huge Montana hug. love,peg

Feb 28, 2019 · Watching a Meningioma Brain Tumor in Brain Tumor

Hi, I was diagnosed with 6 tumors in 2010, some large, some small, and some in iffy places. Since then I have had 2 craniotomies, 1 gamma knife, and 1 cyber knife radiation. After the 2 craniotomies, I opted for radiation on the small tumor by my brain stem, the small one on the left very close to my optic nerve, and the left-over mass & bone with tumor pressing on my right optic nerve. In 2010 I was 62 and made the decision to remove as much as possible because of my advancing age:-) My thinking was I'm healthier now:-) then I might be 10 years from now which might make surgery and recovery easier. I opted for the gamma knife and cyberknife in 2012 and 2015 because I didn't want to risk another surgery. Two seemed to be my limit. A lot of talk with husband and family, lots of prayers, advice of my neurosurgeon helped us make this very important decison, however my neuro did suggest a key-hole surgery for the tumor next to my left optic nerve. After much consideration, we decided on the gamma-knife radiation. These are huge decisions and require lots of research, etc. I know more about my brain now than I ever did, and I was able to prove to my husband that I really did have one:-) While this is a tough situation and I don't always feel good, I weigh out my blessings versus my tumors, 1000's of blessings 6 tumors, and try to find the bright side. My license plate reads, fndthfn, Find the Fun, not always easy, but do-able. I wish you all the best, we're walking this road together and as I tell my friends, "Love Will Keep Us Together". Peg

Mar 16, 2018 · Optic Nerve Meningioma patients in Brain Tumor

I have had experience with this. My surgeon removed as much as he could, but I still have bone and tumor pressing on my right optic nerve.In fact it is bent into a V. I did have cyber knife on the remaining tumor. My outcome has been pretty good. I also have a tumor near my optic on the left and this year I had gamma knife at Swedish Hospital in Seattle. I have also had cyber knife on the tumor close to my brain stem, and I have had 2 craniotomies to remove meningioma tumors. My neuro did offer surgery on the left optic tumor but after much prayer and consideration my husband and I opted for the gamma knife because I feel it is less invasive and honestly I just didn't feel up to another surgery:-) Weirdly my half brother also had a tumor wrapped around his optic nerve which did happen to blind him before he knew he had it. His VA surgeon removed as much as he could. While my sight isn't 20/20 I can see very well considering all that has been done. I only need glasses to read and my peripheral is definitely a bit dicey but a head turn takes care of the problem. The radiation did not shrink my tumors but hopefully stopped them in their tracks. I have referred to these last naughty 3 as Ted, Tina and Tiny. While they are not exactly pals we've worked out a way to get along:-) Wishing you all the best, consider all your information and advice and then listen to your heart and head. It's a beautiful life. Hugs and love, peg