I have hypersensitivity pneumonitis with fibrosis. I have been improving thru exercise and medication. Is there anyone who has gotten off oxygen after improving?
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I went to the University of Ky. and had lung function tests, a bi-lateral chest x-ray and blood work. I had same tests there in 2016,and there was no change. Actually improvement in my lung function! Dr. Said I could breathe room air while inactive, maybe cooking, etc. He did not recommend a transplant, but I will go back in 6 months for a check. I went to my pulmonologist. Week later, and my lung function test showed improvement there, as well.
He referred me to Cleveland, and I have an appointment for testing. But after talking to several people who have had or know someone who has had a lung transplant at the university of Ky. Medical Center, I have asked my pulmonologist for a referral there. I live in Lexington, and it would certainly be more convenient for me. And, if I have a problem, I can get there within minutes.
Call your oxygen provider and make all arrangements. You must rent a portable concentrator and enough batteries to last through the flight and until you reach your destination. They should be able to contact the oxygen provider where you will be staying and arrange oxygen delivery or pick-up. This has to be done at least 2 weeks in advance, because the portable concentrator has to be ordered. I hope this helps…safe and happy travels!