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Dec 3, 2016 · Changes after Transplant in Transplants

@2011panc, Great points. It’s interesting as family and friends have been more than accepting on my side. If anything the try and shall I say “hold me back” a bit and encourage me to take it a little easier. Doc has begun pushing a little and at the 2 year Mayo check they encouraged me to get out and do some “non-impact” excercise. I sort of chuckled as I have been biking and walking almost since the week after transplant. Was on Pred and gained about 25 lbs so that is the next step is go get that extra off. How long ago was your tx?

Dec 1, 2016 · Changes after Transplant in Transplants

It’s been hard for me to accept that it just takes longer to accomplish tasks. I went from the owner of an organization that employed about 175 people to a patient at Mayo. LOL! As I was getting sicker I sold my company as I did not want to be in the position of having to vs. being able to without anyone knowing my condition. 2 years later I am just about at the line of acceptance shall we say. It’s been a frustrating journey for me in one regard and an obvious Godsend on the other.

Nov 28, 2016 · Changes after Transplant in Transplants

As a matter of fact yes I have. I have begun learning Photshop and a Mac set of design software named Affinity. Slow process as there are so many avenues to go down, but it’s been fun!

Nov 24, 2016 · Changes after Transplant in Transplants

Absolutely! I was far from creative prior to my live tx. Since I want to learn to draw, sketch and design.

Oct 21, 2016 · Vitamin B12 Shots in Transplants

Fantastic!

Oct 20, 2016 · Vitamin B12 Shots in Transplants

Some great news and sending positive thoughts.

Sep 28, 2016 · Vitamin B12 Shots in Transplants

I have to say I have never heard of “exercised induced asthma”, but like you I have an extremely hard time not viewing them as consequential. The PCP is the way to go. You only have to come off 5 so in reality you can take your time. Personally if I had to do it again I would have suggested .5 on a 3 week span. Why be in a rush with how long you have been on it. That amount of time has to play a role in your issues. Positive thoughts your way and stay in touch as you start again! Bill

Sep 28, 2016 · Vitamin B12 Shots in Transplants

I’ve been on 5 for about 7 months. Finally received the OK to taper off at 1mg per month. First 2 weeks of each drop are really rough. Aches, not hungry, fatigue etc. Then towards the end of the 2nd week it comes back around and I start feeling better. Then it starts over again the next drop. I am at 1mg now for the next 4 weeks and then done hopefully. I am really surprised that your doc went 2.5 at one time. Absolutely no doubt you were going to have those reactions. Pred. puts our adrenal glands to sleep and as we taper they wake up. Consider discussing a .5 or 1 drop ever month or os with your doc. It’s just your body needs to pick up where the pred is leav ing off. It will work itself off it just takes time.