Thanks for this info!
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Sep 28, 2018 · Living with epilepsy - Introduce yourself & meet others in Epilepsy & Seizures
My daughter who is 5 takes that. She used to take it with keppra but now takes it with vimpat. I would recommend taking the extended release version which is called oxtellar XR. I found she had way less side effects and only has to take it once a day. Obviously with a 31 yr old he can tell you how he feels which is nice. I kind of have to observe. But I definitely would suggest that!
Where about was his “problem” area? Did he have deficits after surgery?
Maybe try contacting St. Jude? Patients there pay nothing. Maybe this way you will at least be in a bigger hospital? I can’t imagine how your feeling. Thinking of you and your family.
What meds are helping him remain seizure free? My daughter has focal seizures. Has been on multiple meds and 2 brain surgeries. Still seizures!