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Feb 4, 2018 · It all started with a pilocytic astrocytoma... in Brain Tumor

Oh my! I will begin praying for David and your family. My daughter was diagnosed with. Pilocytic astrocytoma Grade 2, July 2016 and due to the location it is inoperable. She is now 20 yrs old and we simply are watching it and praying that God will remove it. She has an MRI every 3 months as we monitor it. Going from a Grade 1 to a Grade 4 is my biggest fear. Please keep us posted as I will be praying.

Jan 16, 2017 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

My daughter’s last appt revealed via an MRI that her ventricles were shrinking from her hydrocephalus. We were thrilled to see such improvement since her 2rd ventriculoustomy back in July. Her tumor showed no change. So the plan is continue to watch it. She will have another MRI in March and then every 2-3 months. We are praying that the tumor disappears. She has returned to college for the Spring semester. Thanks for checking in Colleen!

Dec 19, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

How old is your daughter? From the time of her diagnosis to surgery, how long did they wait? My daughters tumor is in the center of her brain and considered inoperable. We see her neuro-oncologist on this Thursday to hear about treatment plans. Her biopsy was in Oct and we received the final results early Nov.

Dec 19, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

@cleahy85
We expect to hear about treatment plans when we go to her appt on 12/22.

Nov 14, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

Hi Anna, How was your 3 month check up? My daughter’s tumor is in her right thalamus so they have initially said it would be too risky to try to surgically remove. Did you have radiation after the surgery to remove? Since my daughter is 19, you are relatively as close in age. Anything you are willing to share would be helpful. How much has your life been disrupted by your experience? My daughter is a Sophomore in college.

Nov 14, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

My 19 year old daughter finally had a biopsy in October and we learned that her tumor is a Grade 1 Pilocytic astrocytoma. What additional information can you share concerning your diagnosis and treatments? She is a college student and has been dropping things and seeming more clumsy than before. Her numbness, dizziness and headaches have all subsided over the past 3 weeks. Her next appointment is Dec 22 with a Neuro-Oncologist. At that time she will have another MRI and we’ll hear about options for treatment.

Oct 27, 2016 · 18 yr old with brain tumor in right thalamus in Brain Tumor

Thanks Colleen. I actually contacted the ABTA earlier this week and connected with them live today and received some good information. Thanks for moderating these discussion groups!

Oct 24, 2016 · 18 yr old with brain tumor in right thalamus in Brain Tumor

Keliyah began experiencing numbness so we did move forward with the biopsy. She had it 2 weeks ago today. The head frame was the most difficult part of her biopsy as it was painful having the screws hold the frame to her head. It was actually quite traumatic. We are still waiting on some markers but we have learned that she has a Diffused Astrocytoma Grade 2, primary. Does anyone have any experience with this? Again, its in her right thalamus, so we wont be removing it and a treatment plan will be communicated once they get the final markers within the next week or so. When I read about diffused astrocytomas I am very concerned.