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Sun, Sep 22 7:39pm · Has anyone with a Brain Tumor experienced hair loss? in Brain Tumor

My daughter was diagnosed with a pilocytic astrocytoma in 2016 and she just noticed a bald spot. When it is touched she cannot feel it as she can sense feeling everywhere else on her scalp. Has anyone else had this experience?

Sun, Sep 22 7:21pm · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

My daughter was diagnosed with the same tumor 8/25/16. It is inoperable given the location so we are just watching it.

Sun, Sep 22 2:46pm · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

My daughter was diagnosed with a Pilocytic Astrocytoma benign brain tumor located in the center of her brain causing it to be inoperable.

Has anyone with a brain tumor experienced hair loss? We discovered a completely bald spot on her head and she has no sense of feeling in that spot.

Feb 4, 2018 · It all started with a pilocytic astrocytoma... in Brain Tumor

Oh my! I will begin praying for David and your family. My daughter was diagnosed with. Pilocytic astrocytoma Grade 2, July 2016 and due to the location it is inoperable. She is now 20 yrs old and we simply are watching it and praying that God will remove it. She has an MRI every 3 months as we monitor it. Going from a Grade 1 to a Grade 4 is my biggest fear. Please keep us posted as I will be praying.

Jan 16, 2017 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

My daughter’s last appt revealed via an MRI that her ventricles were shrinking from her hydrocephalus. We were thrilled to see such improvement since her 2rd ventriculoustomy back in July. Her tumor showed no change. So the plan is continue to watch it. She will have another MRI in March and then every 2-3 months. We are praying that the tumor disappears. She has returned to college for the Spring semester. Thanks for checking in Colleen!

Dec 19, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

How old is your daughter? From the time of her diagnosis to surgery, how long did they wait? My daughters tumor is in the center of her brain and considered inoperable. We see her neuro-oncologist on this Thursday to hear about treatment plans. Her biopsy was in Oct and we received the final results early Nov.

Dec 19, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

@cleahy85
We expect to hear about treatment plans when we go to her appt on 12/22.

Nov 14, 2016 · Has anyone been diagnosed with a pilocytic astrocytoma as an adult? in Brain Tumor

Hi Anna, How was your 3 month check up? My daughter’s tumor is in her right thalamus so they have initially said it would be too risky to try to surgically remove. Did you have radiation after the surgery to remove? Since my daughter is 19, you are relatively as close in age. Anything you are willing to share would be helpful. How much has your life been disrupted by your experience? My daughter is a Sophomore in college.