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Posts (2)

Thu, Jan 23 10:49am · Arachnoiditis: Trying to find a specialist in Spine Health

Hi Theodora, I am excited to read you have a doctor in Chicago because I am in a suburb of Chicago, but then you say you are in pain all the time. Does Dr. Lubenow understand this disease we have Arachnoiditis and that we are truly in pain and would never want anyone sticking any injections in our spinal cord? I am in dire need of a pain management Doctor and miraculously I checked and Dr. Lubenow is on my insurance!!! Does he have problems giving pain meds because I know they are cracking down on these doctors giving narcotic pain meds because of the major drug addiction problem we have in this country. But “we” the ones who truly are in unbearable pain at times and some all of the time need meds just to be able to function somewhat. So I guess I’m asking if you recommend your doctor for another Arachnoiditis sufferer? I am on a Facebook support group Arachnoiditis Everyday that can be helpful with the emotional support and education on this disease, might be good for you to check it out. Any feedback would be much appreciated. Thanks and I wish you less painful days.

Sep 7, 2016 · Arachnoiditis: Trying to find a specialist in Spine Health

Msaliceinpain so sorry this happened to you, you most definitely sound like you have Arachnoiditis and possibility a nipped nerve because it sounds so severe so fast. You need to get a Neurologist or Neurosurgeon to do that MRI on lumber with and without contrast so they can see and read it. My MRI’s since my spinal surgery in 4/2015 all say Arachnoiditis can not be ruled out, will my highly respected Neurosurgeon put it on paper as a diagnose? Guess not, I also from surgery now have Cauda Equina. I am in pain everyday with allll types of new and horrible symptoms constantly popping up. The pain meds he gives me are a joke, I need to find a pain management Doctor that understands this disease and how debilitating it is and I just don’t know, I’m so afraid they will only want to give me injections and I say h@ll no to that since they are one of the top causes of this disease. I so feel for you this takes your quality of life away and brings you to lows you never thought possible. I am on a Facebook support group called Arachnoiditis Everyday, it helps to at least learn more and not feel so alone. Everyone there talks about an expert on Arachnoiditis in California- Dr. Tennant I hope that’s the correct spelling, I don’t know if he’s taking new patients but I guess it’s worth a try looking him up. Best of luck to you.