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Posts (17)

Jul 31, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@debupallnight Have you tried physical therapy? I had awful cramps in my feet and legs and physical therapy helped me tremendously. I still get mild cramps occasionally but I can usually deal with them by massage or just walking them off.

May 15, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

John, I too was told by a neurologist that my symptoms sound like small fiber sensory neuropathy. I've been on gabapentin for about 5 years, and it's helped me. It's also eased my lower back pain. However, since doing a month of physical therapy, I've been able to cut my gabapentin dosage in half–from 1800mg daily to 900mg. The gabapentin has also almost eliminated the muscle tremors and twitching in my feet and legs–at least I'm attributing all of this to gabapentin. I guess we're all different in how we respond to medication. I should add that I can no longer be as active as I once was or take long walks anymore. If I do, I pay the price later in the evening or the next day with exacerbation of the pins and needles and/or cramps in my feet and legs. What I've learned is that I have to pace myself and try to achieve a balance between exercise and rest, as being too sedentary will aggravate my symptoms also. On the bright side, I'm still ambulatory, can climb stairs, can drive, and don't appear to have any mobility issues, so I can't complain. There are some people who aren't so lucky.

Apr 19, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

@coloncasurvivoran I was diagnosed with idiopathic peripheral neuropathy. There's some debate from neurologists I've seen that it might be small fiber sensory neuropathy, and that's what I think it is. Mine is primarily in my feet and calves, and I've had it for 24 years. I do have numbness and tingling once in awhile in my hands, something I had in my early thirties. Then, it went away when I stopped practicing the piano so much (I was in school then and playing a lot of Rachmaninoff). Now it's back, but only occasionally. Anyhow, did your doctor tell you that too much B6 can be toxic? I was recently also taking a B supplement, and when my doctor did a blood test, it came back with a very high B6 level. I stopped taking the supplement. I hope the alpha lipoic acid is helping you. I took it for about a year, but it didn't do a thing for me. I've been able to cut my gabapentin dosage in half, primarly due to physical therapy and the exercises I do every day. As long as I pace myself with exercise, walking, etc., so far I've been free of the awful cramping in my feet and legs. My right hand also cramps sometimes, but the pain is nowhere near the level I had in my feet and legs.

Apr 9, 2018 · Spasticity? in Brain & Nervous System

@aarniek, sorry to hear about your spasticity issue. I have/had severe spasms and cramps in my feet and legs, so my doctor prescribed physical therapy for me. She was the first to do so. Previously, I had just been prescribed more gabapentin by my neurologist. I was taking 1800mg daily, and am now down to 900mg daily. The physical therapy did wonders for me. I saw a therapist for about a month and now do stretching exercises at home twice a day. I haven't had any cramping for almost a month and am able to walk without having a problem with cramps hours later. (My cramps are always a delayed-onset situation, usually hours after walking or doing any type of exercise.) I also take a yoga class a couple times a week, but have to be careful about anything involving the feet and legs due to the neuropathy. I really recommend trying any type of physical therapy that can be tolerated. It's really helped me.

Sep 30, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I’m taking 1800mg of gabapentin daily for cramping, tremor and paresthesia. It helps and fortunately I have no side effects other than drowsiness. It also dulls my lower back pain.

May 11, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

I’ve just started the Vitamin B therapy, and I’m cautiously optimistic. I don’t have the bottle in front of me, but I’m taking Nature Made B-100 tablets. It’s a combination of B1, B6, B12 and riboflavin. I believe there’s also some biotin in there. I take a dose 3 times a day. If you want exact dosages, I can provide those in another reply. I started this therapy when I learned of a Japanese study whose results showed significant improvement in individuals with feet/leg cramps. I’ve been taking the B vitamins less than two weeks, and I haven’t had a major episode of cramps.

May 8, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thank you! I’ll check out Dr. Dean’s website.

May 8, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Thanks @amkaloha and @johnbishop. I was taking alpha lipoic acid for several months, but didn’t notice a difference in my symptoms. What did help at the time was the B12 I started taking. Within a week after starting the B12, the shooting, electric-like pains and tingling diminished significantly. I’ll try the B vitamins you suggest if I’m not taking the right ones. I’ll also try the liquid magnesium. I’m really open to anything at this point. Tonic water does indeed contain quinine; it says so on the label. I like the taste also. You just can’t buy quinine tablets over the counter anymore; the FDA discontinued them in the 1990s because of the side effects. But I understand that it was very helpful to people with leg cramps. A question for either of you: Where do you get your vitamin supplements? I’ve been ordering mine from Puritan’s Pride for several years.