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Posts (16)

Nov 5, 2016 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Husband has autonomic neurology with pain especially in his hand. He wears golf gloves and says it cuts the pain in half. Neurologist at Mayo says he can’t help him as he needs a muscle/neurologist. Has tests on November 14 and hopefully will see a doctor after that. Gabapentin and Lyrica does not work for him.

Oct 14, 2016 · Does anyone have a treatment for Neuropathy due to chemo in Neuropathy

Yes, both his brother and wife and Ken’s sister and husband live nearby. Very supportive.

Oct 14, 2016 · Does anyone have a treatment for Neuropathy due to chemo in Neuropathy

not too bad. Irritable today so went bowling and got it off my mind.

Oct 14, 2016 · Does anyone have a treatment for Neuropathy due to chemo in Neuropathy

Just spent one night in hospital for 3 days of low blood pressure. (standing was 58/43 pulse 115). Has amyloidosis in the heart now. Also kidneys and nervous system. Poor guy.

Oct 10, 2016 · Does anyone have a treatment for Neuropathy due to chemo in Neuropathy

No but his golf gloves are wearing out so I just ordered something from Amazon

Oct 10, 2016 · Does anyone have a treatment for Neuropathy due to chemo in Neuropathy

my husband has autonomic neuopathy and very painful hands. Gabapentin (2100 mg) did not work nor did Lyrica. He wears golf gloves and says it cuts the pain in half. Dr says getting the high protein down with chemo will help. He is at Mayo so we have hope. Lots of complications from his Waldenstroms but the neuropathy is what makes him miserable.

Sep 26, 2016 · Waldenstroms and amyloidosis in Blood Cancers & Disorders

I seem to be the one taking notes and reading anything on the internet (probably too much). It doesn’t look promising but I might be awfulizing. Bleeding before cut. Trying not to do that. Taking it one day at a time. He is getting pretty weak which he attributes to the autonomic neuropathy.

Sep 23, 2016 · Waldenstroms and amyloidosis in Blood Cancers & Disorders

Thanks for your concern