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2 days ago · Treatment for NHL: Rituximab & Bendamustine in Blood Cancers & Disorders

That is great news! Hope your gym has a cleaner & towels or disinfectant wipes to clean equipment before you use to avoid germs. If not, bring your own to avoid germs. It's that one germ that could cause an infection that will delay your treatment, and you don't want that to happen. Best of luck to you and hope the next few months go very quickly for you!

2 days ago · Treatment for NHL: Rituximab & Bendamustine in Blood Cancers & Disorders

YES! Stay hydrated….if water was not your best friend, it should be now!

2 days ago · Treatment for NHL: Rituximab & Bendamustine in Blood Cancers & Disorders

Yes that is the type of lymphoma I have —- I was in touch with you in March and April (if I recall dates correctly). The stem cell transplant would be the next step for most of us with this type. I am relieved to hear that your son is feeling fine right now. If time allows (and depending on the limits of his insurance), I would highly recommend getting a 2nd & 3rd opinion on whether the time is now right for the transplant. There are quite a few patients on the American Cancer Society support site that have shared their experiences with the transplant. The most important thing is to keep all germs away from your son so he can recover as quickly as possible. Best of luck to him, you and your family. You are all in my prayers!

And yes, we have a very rare form of lymphoma. Your son falls into the average age and gender of this lymphoma. The more of us that share our experience with Nodular lymphocyte-predominant Hodgkin lymphoma, the more we will help others who have this type. Being diagnosed at the age of 52 and a female through off the lymphoma teams at 3 teaching institutions with whom I met…..very uncertain what to do with me.

3 days ago · Treatment for NHL: Rituximab & Bendamustine in Blood Cancers & Disorders

I hope you are tolerating the Rituximab & Bendamustine as best as possible. I have a rare Hodgkin lymphoma in which treatment for Non-Hodgkin lymphoma was recommended. I have had infusions of Rituximab in the summer of 2016 and have been stable since. My worst side effect was the increase in fatigue. I dealt with that by sleeping more and accepting that I was not able to do as much as I wanted. The heat and humidity bothered me more than usual. About 6 months after the infusions ended, my energy level increased, but not to what I had prior to lymphoma. If the Bendamustine upsets your stomach, you will test various foods that will keep the stomach more calm. My doctor warned me that I may gain weight from the medicine, and I gained twice as much as the average person. This increased the fatigue even more. I see my oncologist every 6 months and have not had a CT scan for 18 months. I am on 'watch & wait' and will most likely receive Rituximab for treatment again as needed. The benefit for lymphoma patients is that a great deal of research is being done for us because much success has resulted in the medications being administered over the years. By the time we may need more treatment, a better medication may have been approved. My recommendation to you is to try to continue to do the activities you have been doing, but avoid germs as much as possible. While receiving these medications, it lowers your resistance to germs and you do not want to get an infection during the treatment period. Best of luck to you and keep us posted on your progress!

Sun, May 26 5:49pm · Auto stem cell transplant: What can we expect for timing? in Blood Cancers & Disorders

Is this his first time having chemo treatment? If it is, remind him to avoid areas of germs since the treatment compromises the immune system. If he has done this previously, it's just a reminder. My youngest child was 26 this month. I have dealt well with my personal lymphoma diagnosis and know that it affects the entire family. Your son is very lucky to have you. Keep on advocating for the best care for him, and when in doubt, never hesitate to ask any questions — no matter how odd your question may seem to you.

Sun, May 26 3:28pm · Auto stem cell transplant: What can we expect for timing? in Blood Cancers & Disorders

I wish I could provide information to help, but I have not reached the point of needing a stem cell transplant (although I have discussed with my oncologist and am willing when needed). I have the same type of lymphoma as your son, so please keep us updated with his progress. Good luck to him! I will keep your family in my prayers.

Wed, Mar 20 2:09pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Don't be alarmed by stage once you know. It depends on location and if organs are involved. So many types of cancer cells are very treatable for a quality life. Years ago Stage 4 did not have a positive outcome, but today thanks to research and more treatment options, it is a number that helps doctors determine best treatmentfor you. Wishing you the best results!

Sun, Mar 10 12:15pm · Non Hodgkin's Lymphoma- Watch & Wait Approach in Blood Cancers & Disorders

Yes —- I just saw this message and replied to your next message.