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Posts (43)

Fri, Sep 27 2:51pm · Meet fellow Caregivers - Introduce yourself in Caregivers

I know it's hard I cant imagine putting mine in a nursing home. but Scott is right . so if you dont want to do that what about introducing a long term facility

Thu, Sep 26 8:55pm · Meet fellow Caregivers - Introduce yourself in Caregivers

no I dont get any help , my mother lives with us also and I take care of her also she is a stroke victim.

Thu, Sep 26 6:38pm · Meet fellow Caregivers - Introduce yourself in Caregivers

I feel so much better hearing that someone else spouse has become kind of mean with sarcoid going to the brain . i get my feeling hurt alot.
thanks for sharing

Mar 18, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

hi sallysue
I really don't have any support I also care for my mother who has a stroke victim I have two grown children and one grandchild that's three so I help babysit her as well yeah adult conversation is something I don't get much of my husband sometimes he is normal husband other times he's very angry and mental abusive on the same hand it's not him it's not who he is the disease but still hurtful all the same

Mar 18, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

hi tingkun55
No real support I have two grown children lives of their own they just don't slow down and help I also care for my mother who lives in the household she is a stroke victim and as for friends I used to have friends but you don't come around so much anymore you know their grandparents now and enjoying that no support

Mar 17, 2018 · Meet fellow Caregivers - Introduce yourself in Caregivers

hi everyone ,
my is tammi. the handle i use is my husband name.
im 47 years old. indiana im the sole care giver fir my husband who has sarcoidosis and now neuo sarcoidosis . im feeling helpless anf friendless

Jul 24, 2017 · SARCOIDOSIS in Lung Health

My husband has skin and lung then it went to his brain is nerosarcoidosis, it effects his eyes, seizures,the whole body it’s relentless
Tammi

Jul 24, 2017 · SARCOIDOSIS in Lung Health

Hi Jodi
Yes you can , we had our Nero doctor write the letter.and then my husband got it with no fight. He has sarcoidosis and nerosarcoidosis. And your right it’s a awful thing to have