Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (11)

Sat, Jan 26 4:04pm · Laser treatment for neuropathy? in Neuropathy

I had over 2 months of daily laser for Atrophy Blanche *(which I have in addition to neuropathy). I had enormously high hopes,and it may have helped a little, but nowhere near enough. If anyone else had wounds that wouldn't heal (for 2 years on my L. ankles) = please help. Sorry about the laser – maybe it will do better for you. Supermom57

Jul 24, 2018 · Gabapentin use for neuropathy in Neuropathy

I have been using Gabapentin for at least 15 years & it keeps my neuropathy subdued & totally bearable. I have cut down my 4 a day to usually 2 & at times have gone off just to test. No trouble going off except that the symptoms return & they're not bearable. I have been told by more than one neurologist that
I could take a considerably higher dosage w/o difficulty – but have not needed to.
My current (1 year ) difficulty is 2 small unhealing open wounds on my ankle – & no=thing seems to get a healing response for incredible pain. Did think brief laser treatments were the answer but had to stop for distance reasons (will be returning soon). Compression wraps the wound specialist relies on have done nothing for wound closing. If anyone has any answers to this I'd be so grateful.. Wound spec.diagnosis is atrophy blanche – but there doesn't seem to be a section for this on our Mayo groups. Help!!
Supermom

Feb 23, 2018 · Time to give up? in Neuropathy

I'm 87 & have had a very trying 6 mos – husband with broken hip & me with a number of coincident difficulties. And no – it isn't bad to go to where you find peace & comfort. You may want to add a few trusted friends to your mix of books & music & gardening. Wish I knew you – I'm in similar space right now – but not unhappy except when I can't get pain under control. (still working on that) Shalom Superwife.

Feb 23, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Please read my reply to "untreated diabetes:" re gabapentin for neuropathy above. Superwife

Feb 23, 2018 · Neuropathy due to long untreated diabetes in Neuropathy

gabapentine has got me thru at least 10 years of p.n. – the only thing that brought unbearable tiingling/pain down to livable!. But I have stopped it at various periods when something else was even more urgent & had no difficulty with leaving it off for as long as needed – & resuming when the p.n needed it. Good luck. Various drs/neurologists/internists have told me I could take more gab. if I needed it – w/o any side effects. So when there was a period of severe tingling I felt O.K. doing that – & easing when I wanted to.. I'm really puzzled about some folks negativity about gaba. It certainly saved my sanity when I started it – was so frantic over the severe 24/7 tingling. I know different folks have different reactions so hope it helps you. Superwife

Feb 9, 2018 · Patients and caregivers are “Experts by Experience” in Just Want to Talk

Colleen – I have an ankle wound no on has been able to heal. There is extreme pain, but it is not part of my neuropathy (well treated by Gabapentin). The medical profession knows of nothing further (save possibly plastic surgery). Is there a group I should be in? Superwife

Jan 25, 2018 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Mine is peripheral. – only in my feet & lower legs. SMW

Jan 4, 2018 · Gabapentin use for neuropathy in Neuropathy

i’mve been using Gabapentin for at least 10 years to relieve the unbearable tingling in feet & lower legs = totally effectively. I’ve been told my several doctors & neurologists that I could take more than the 4 tablets daily but have seldom needed to. I’m also trying it along with other pain meds for an excruciatingly painful nerve damaged ankle wound – hydro morphone and Oxycocget are more effective but am trying the combiination to try for more relief. I have no difficulty at all in stopping Gaba, except that the neuropathy tingling renews its assault! Have come to believe pain management is a pretty individual affair.
Sheila. Camada