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Sun, Jul 7 10:48am · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@windwalker and others…..am wondering if the large number of women with MAC and bronchiectasis who worked in either health care or education and are of a certain age are a result of ,,,,,a woman basically had three choices when of a certain era….up til l think the mid seventies…..become a teacher,,,,nurse …or secretary???tdrell

Sat, Jun 29 1:24pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@pfists ….I think it is awesome that there is something like SPR720 on horizon….but believe from comments in link that Europe will get to try first….so those folks out of USA will have to keep us posted…tdrell

Mon, Jun 10 1:27pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@kathyhg….agree with you re all valuable information shared on this site….have you also signed into NTMINFO.org for links to additional information…or gone to youtube for videos…l just typed in "NTM info" and a whole slew of awesome videos showed up….these are just a few of the resources from the web sites……also National Jewish Health will be having their annual NTM workshop for NTM patients and families on Saturday Sept 21,2019 from 830am to 4pm in Denver if you live near there or can get there…great news….it will be video taped and posted on line a few weeks after the event…so we can hear /see it if we cannot attend…Tdrell

Fri, Jun 7 12:08pm · 'PINK SLIME' Data Base in MAC & Bronchiectasis

@windwalker….terri…did l reply to this two years ago? to be part of the group with pink slime….we have it is our shower…on the walls where the water lands….I live in SE Wisconsin.,,..,Washington county,,,,west Bend….tdrell aka terri

Tue, Apr 23 12:19pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jkiemen hope you are continuing to do well after the lung biopsy….not doing anything strenuous at work and taking care of yourself….was it under general anesthetic or conscious sedation? was it thru mouth or side of chest?? How long before results come back??
As far as nitrous oxide as a treatment….there were a few cases that responded well in Israel a few years ago….I recall Dr Daley from NJH told the audience at a NTM patient workshop….the next research was to be in Canada….he seemed sorta non enthusiastic when mentioning it….this was a few years ago though…the information just shared here is more up to date l believe…
tdrell

Fri, Apr 19 11:56am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jo Ann K….yes for me NJH was the way to go….l brought a lot of my previous tests which they accepted without repeats…..they examined my whole self…..wholistic….found out that after 30 years…l do not have asthma….other stuff but not asthma…my medicare and supplement covered everything and continues to ….no bills….it is medicine done as it was years ago….and with the specialization in NTM/ mycobacterium section. Had my insurance said NO….l have found one should fight /protest and try to get them to change….it is worth it…they count on people not protesting….see "Sicko" by Michael Moore…..tdrell aka terri

Fri, Apr 19 11:46am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@jo ann k good luck with biopsy…..and so far no bronchiectasis shows on my CAT scans,…..other stuff which is why l have follow up CAT scans based on Fleischner Society guidelines used by radiologists which really is for checking for Cancer ….over a ten year period no changes in the stuff (nodes and nodules )present….there is inflammation which they feel is from the reflux…l guess because l have never smoked there has been no mention of biopsies and the fact that there has been no enlargements in recent years ….l went to a Dr Claudia Altmann an ID doctor at Grafton Auorora once but went for second opinion at NJH and did not go back to her….again good luck with biopsy
tdrell aka terri

Fri, Apr 19 11:15am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@angiejohnson….does Randy Lipchik have a nurse practitioner you could see earlier than June?? My local Froedert pulmonologist here in West Bend has one and she l found is good…and has more openings in schedule and more time with patients….which Froedert doctors are not allowed by the system.
good luck Monday with the biopsy. Tdrell aka terri