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2 days ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Laura34….for sure don’t let military( I assume) eye Dr minimize your eye situation…..insist on additional imput…..who knows what exotic organisms you may have been splashed with …and into eyes…in the areas you were in….please let us know how Tuesday goes….please be assertive NO MATTER what your rank or normal is….tdrell

4 days ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Laura34….is your vision affected. I recall at a patient workshop at NJH discussing treatment side effects….It was said that check vision daily by reading stock market quotes in Business section….to check for changes. Tdrell

4 days ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Laura34…perhaps soon to have eye dr call a NTM Center of excellence such as at Mayo or National Jewish health and ask an NTM specialist how to rule out or in If the bacterium is in the eye….meanwhile is it responding to the eye meds? Tdrell

5 days ago · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

Laura34…did the eye doctor do a culture from your eye?tdrell

Thu, Feb 21 11:22am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Terri…no I am sorry…I have no info on this…terri

Sat, Feb 9 7:49pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@laura34……I would call or email the Deployment Related Lung Disease folks and see how to go about seeing them….and as Sueinmn said….MAC is slow growing. One other possibility might be that there is a connection in NYC I think.have you been on NationalJewish.Org web site? 15 years….again thank you thank you….helicopters have saved many lives in the war zones and you. Were in high danger areas and deserve the best care available now….tdrell

Sat, Feb 9 6:30pm · New Diagnosis of MAC/MAI & I'm scared in MAC & Bronchiectasis

@laura34…..thank you so much for your service especially to dangerous war zones. Are you aware of National Jewish Health in Denver. They specialize in Mycobacterium Infections….but also have a section there called Deployment Related Lung Disease Program. According to info on Nationaljewish.org website….a description of that section says it is part of Veterans Choice Program. I went to NJH 2 years ago…..for second opinion….turns out the local treatment was totally incorrect. I just returned from 3rd annual follow up appt there….even more impressed. Take a look at their web site and put in the above section. Again….thank you for your service.. what branch? Tdrell

Fri, Feb 8 6:29pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@alleycatkate…..I love dogs….still Mourn the passing of our daughter’s pug 2 years ago. But am grossed out when George the pug mixture who was rescued from humane society licks and kisses daughter right on lips. The Milwaukee newspaper had articles about people loosing limbs after acquiring this rare but vicious bacteria transmitted Thru kissing their dogs. The new amputees were not immunocompromised. I shared the articles with daughter….to no avail.tdrell