Hi all. I don’t know what I have from day to day. First diagnosed with GBS, sought out another neurologist and second diagnosis was CIDP. After test and seeking a third opinion, was diagnosed with POEMS. Has anyone been familiar with POEMS. I had a tumor removed in January 2017 then followed up with radiation treatments. I’ve been on Prednisone which helped, I didn’t have all the side effects of Prednisone, weight gain. puffy face, now I’m weaning off the Prednisone, still having IVIG treatments for the CIDP diagnosis, and cautiously spacing them further apart. i suspect if I don’t have problems, this will be discontinued sometime in the coming months. I was hard to diagnose properly and just pray a lot, because I am a lot better than I was in October of 2016. I was on a walker now I walk freely with the help of AFOs for drop foot in both feet. I drive now and take water exericse 4 days a week. I so interested in having a support group to talk to with this neuropathy. My hands were affected and now are better, not normal, legs either, but so much better than in the past, so I am grateful for the strides I make and can now do housework, play in my flowerbeds, not falling anyone..just enjoying what accomplishments I have made. Please respond with your experiences, what helps, Thanks for sharing with me.