Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (14)

18 hours ago · Anyone here dealing with peripheral neuropathy? in Neuropathy

Ronni: I've been wearing braces for the last 2-3 years and I can tell you they make a tremendous difference. I had gone to a chiropractor that I had to pay out of pocket for treatment. He was against the braces, but I went with the medical advice I received and started wearing them. I can now drive and do most anything I want to. They helped my balance tremendously and half the time people don't even notice I'm wearing them. It's worth it to be independent. I went for a year not being able to drive and it was miserable. So I am a big advocate of the braces.

18 hours ago · Anyone here dealing with peripheral neuropathy? in Neuropathy

have you found any helpful treatment that insurance will provide for treatment

Tue, Apr 9 9:19pm · Restless Leg Syndrome in Sleep Health

Im looking for some type healing from drop foot along with the neuropathy. There was an ad in the paper to cure neuropathy but they wouldn't take Aetna insurance.. so I didn't pursue it.

Tue, Apr 9 9:17pm · Restless Leg Syndrome in Sleep Health

Hi; I've also used a spoonful of mustard that will immediately relief any cramps in your legs or hands..I've tried it and it worked for me.

Jul 28, 2017 · Living with Neuropathy - Welcome to the group in Neuropathy

Guess what guys, I have POEMS blood plasma disorder that causes neuropathy in my hands and feet..I’ve found that Vicks Vapor Rub has a lot of uses..

Jul 11, 2017 · Anyone here dealing with peripheral neuropathy? in Neuropathy

Hi all. I don’t know what I have from day to day. First diagnosed with GBS, sought out another neurologist and second diagnosis was CIDP. After test and seeking a third opinion, was diagnosed with POEMS. Has anyone been familiar with POEMS. I had a tumor removed in January 2017 then followed up with radiation treatments. I’ve been on Prednisone which helped, I didn’t have all the side effects of Prednisone, weight gain. puffy face, now I’m weaning off the Prednisone, still having IVIG treatments for the CIDP diagnosis, and cautiously spacing them further apart. i suspect if I don’t have problems, this will be discontinued sometime in the coming months. I was hard to diagnose properly and just pray a lot, because I am a lot better than I was in October of 2016. I was on a walker now I walk freely with the help of AFOs for drop foot in both feet. I drive now and take water exericse 4 days a week. I so interested in having a support group to talk to with this neuropathy. My hands were affected and now are better, not normal, legs either, but so much better than in the past, so I am grateful for the strides I make and can now do housework, play in my flowerbeds, not falling anyone..just enjoying what accomplishments I have made. Please respond with your experiences, what helps, Thanks for sharing with me.

Apr 11, 2017 · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

Since I posted about CIDP I have been rediagnosed with POEMS syndrome even rarer than CIDP. It was discovered I had a tumor on my pubic bone and I have had radiation treatments . POEMS is in the Myeloma family. I am still recieving IVIG, taking Prednisone and Cellcept for my condition. I don’t know a lot about POEMS, but the tumor was considered a cancer plasma cytoma..and Myeloma is a blood type cancer.

Sep 5, 2016 · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

I am attending as a patient and my daughter is going as an advocate, another set of ears, to learn what we can about stem cell therapy. It will be a long day but hopefully the benefits will outweigh the length of the day. I get fatigued easily with my condition thus far. Hoping for better days on down the road and wishing to share whatever type of hopeful hints that I learn. Thanks so much..Beverly