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Posts (33)

Mar 7, 2017 · Caregiving and Reality in Caregivers

@IndianaScott
Thank you for sharing your heart, your pain and your tribute to your wife.
Debby

Mar 4, 2017 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

@mcminmark – private message sent with name of endocrinologist.

Jan 23, 2017 · Dementia/Seizure/Medication sensitivities/Behaviors in Caregivers

I was able to find a practice here in Portland, Housecall Providers – they come directly to our home and are very responsive via phone. My husband’s PCP’s average client age is 80…. which means a lot to her experience and knowledge about the issues we are dealing with. It’s a great model – not sure if there are similar practices in your area but finding a gerontologist would be a great start.

Jan 23, 2017 · Dementia/Seizure/Medication sensitivities/Behaviors in Caregivers

Thinking of you Macbeth — I’m sorry I don’t have anything to share or answers to your questions and know this must be very frightening. Trying to do the best we can in the deep of night can be very lonely and takes a lot of courage. The mix of medications that can be prescribed for our loved ones symptoms is very confusing — it sounds like there are major changes going on with your husband’s meds — I do hope you have an experienced physician / home health nurse working with you and responding to your concerns. In the past year, my husband has had several different meds prescribed — finally last October he started on a regime that has worked well the past 3 months. But it was only after I finally found a physician who was focused on elderly dementia and was experienced with the potential med interactions that we were successful. Wishing you courage and a few moments today when you can care for yourself too.

Jan 23, 2017 · Caregiving and Reality in Caregivers

Good morning @anncgrl. It’s 3 am or so on the west coast. You are so right, being real definitely helps and caregiving is not for wimps. I am not having to care for my husband as extensively as you are yet but every day is different and presents new challenges. I believe being fully awake at this time of the day is not uncommon for any of us. I find strength and encouragement in your words along with the practical suggestions Scott has shared. Wishing you the time each day to also care for yourself.

Jan 10, 2017 · Sudden personality change in my grandfather in Brain & Nervous System

My heartfelt support to you, @secaries for reaching out to try to find out more about what is happening with your Grandfather. First and foremost, please remember that whatever is happening to your grandfather, it is his disease that is is causing him to change and not the Grandfather that you know to be kind, sweet and gentle. My husband is about your Grandfather’s age and was diagnosed with dementia approximately three years ago. We have been challenged time and again with changes in his behavior – including anger, hallucinations, and, similarly, his belief that I planned to leave him to be with a friend of his. The path has been immensely confusing for me but always more so for my husband as he tries to navigate in his changing world — I encourage you and your family to reach out and don’t be shy about asking questions — we’ve all had many experiences and I know that it helps me to be able to share and reflect on what has happened to my husband with others in this forum. There is much to understand and deal with — it takes great energy and everyone here has provided me with good support as these changes have occurred in our lives. A specific question I would be asking with regard to your grandfather are the medications that he is taking and how effective they may be in helping him with his behaviors. For right now, we’ve finally identified a good mix for my husband but in the course of getting here there have been some meds and/or combinations that effected him poorly, causing hallucinations and/or not addressing some of the underlying issues. I welcome you to participate with us, freely ask questions and do wish you the very best with your grandfather.

Dec 30, 2016 · Transitions..... Medications for Behavioral Symptoms in Caregivers

Hello @dgallen Welcome – I look forward to sharing with you our respective journeys. I am the primary caregiver for my husband here in our home. His mix of medications and various dosages is always a concern for me — as you know, there is no silver bullet — our physician reminds me of that fact each time we discuss changes to my husbands current mix. He started last October on 50 mg of Seroquel and is still taking that dosage — I believe that it helped immediately with his agitation but did not really effect his lack of interest / sadness with life – nor was there a change in his restless sleep patterns. In mid-November I changed his primary physician to one that provides home visits and is very responsive (HouseCall Providers). She took him off a medication to help relieve his night sweats due to possible complications and suggested that he add to his mix Cymbalta 20 mg for depression as well as Exelon 1.5mg (in addition to his current donepezil 10mg) – our pharmacist said that we might not see a change for a few days/weeks. This was true but since mid-December he has been sleeping during the night for 6 to 8 hours without waking — truly remarkable after the months of not sleeping longer than 2 hours at a time. I do not know enough about the medications to know how they may be interacting or the effect of an increased dosage. I do know that his current balance could all change in a moment — the only control I have as his care giver is to observe and monitor how he is feeling and advocate directly with his physician. Unfortunately, I also agree with Scott that any change in routine also plays a major role in behavior. In the comfort of his own home, my husband often becomes confused and does not like having additional people around to help us. I’m currently working with our outside care givers to figure out ways to help my husband be more accepting of them in our home.
Wishing you strength on your journey with your Mother.

Dec 21, 2016 · Caring for someone with dementia / Alzheimer's in Caregivers

Driving — this has been our second biggest issue/hurdle to work through thus far. It is only natural since independence in life is something that we grow into and own as an adult and its loss is incredibly difficult. About 7 years ago I started doing most of our driving …. my husband could still drive at the time but it was simply easier for both of us if I drove when we went someplace together (or so we thought). When his doctor said he could no longer drive (three years ago) my husband blamed me — because I had “taken over” driving and that had caused him to lose his skills. In conversation we still deal with this loss on a regular basis although he has not driven in over a year — it has definitely become one of the markers in our journey that we must work through each time. It takes great patience but I only have to think about being told that I must stop driving to understand how frustrated and frightened my husband must feel. It is hard – I wish you all well in figuring out the best approach…