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Jul 20, 2017 · Living with Neuropathy - Welcome to the group in Neuropathy

Anxious to discuss peripheral leg neuropathy and treatments.

Mar 7, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Good luck on your Mayo visit.Only positive results !!!

Mar 4, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Good luck at Mayo. Would really appreciate hearing about info. received at Mayo re.. Myelofibrosis. Important to me also. Thanks.

Mar 4, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Hi, I,too, took Hydroxyurea for years to combat high platelet count. About three years I was diagnosed with Myelofibrosis. Am now ,and for the past two years have been taking Jakafi 15 mg.tabs twice a day. I see a Hematologist every month for blood check ups. Keep in touch with group. Strength in numbers .

Jan 7, 2017 · Myelofibrosis* in Blood Cancers & Disorders

Hi, Aware of other treatments, but nothing other than Jakafi B.I.D.is now treatment of choice. Anemia and leg weakness still chronic problem.

Jan 7, 2017 · Myelofibrosis w/ JAK2 mutation in Blood Cancers & Disorders

Took Hydroxyurea for years to control platelet count. But ,is there a relationship between that drug and Myelofibrosis ???

Jan 6, 2017 · Myelofibrosis* in Blood Cancers & Disorders

I was treated for high platelets for years,About three years I was diagnosed with myelofibroma by my hematologist and started taking Jakafi to decrease the fibrosis.My condition has been stable over these many months, but have a low RBC and Hemoglobin reading. As a result, my leg weakness has been constant and my endurance has decreased.I’m curious re. the effects with other patients.Look forward to continuous discussions.

Jan 5, 2017 · Myelofibrosis* in Blood Cancers & Disorders

Thanks for reply. I, too, am on Jakafi and have been treated for condition for about 3 years. My basic side effects are decrease in RBC production and a low Hemoglobin, causing chronic leg weakness. Otherwise, stable.Are other meds related to myelofibrosis ?