Anxious to discuss peripheral leg neuropathy and treatments.
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Hi, I,too, took Hydroxyurea for years to combat high platelet count. About three years I was diagnosed with Myelofibrosis. Am now ,and for the past two years have been taking Jakafi 15 mg.tabs twice a day. I see a Hematologist every month for blood check ups. Keep in touch with group. Strength in numbers .
I was treated for high platelets for years,About three years I was diagnosed with myelofibroma by my hematologist and started taking Jakafi to decrease the fibrosis.My condition has been stable over these many months, but have a low RBC and Hemoglobin reading. As a result, my leg weakness has been constant and my endurance has decreased.I’m curious re. the effects with other patients.Look forward to continuous discussions.
Thanks for reply. I, too, am on Jakafi and have been treated for condition for about 3 years. My basic side effects are decrease in RBC production and a low Hemoglobin, causing chronic leg weakness. Otherwise, stable.Are other meds related to myelofibrosis ?