Hi! Has anyone discovered that what they thought was deep bone, or intense muscle pain and throbbing was actually due to a vascular disease of some kind?
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Yes I do. It makes relating to others: friends, family, doctors, etc.. very difficult. Most medical doctors know almost nothing and tend to make false assumptions & prejudicial decisions toward treatment or non treatment.
I would like to hear other’s experiences, in terms of their pain & treatment.
PTSD (largely) created my Fibromyalgia, and the intense pain and agony of seeking treatment, makes it worse.
It’s a vicious cycle.
hello all. i am asking about fibromyalgia also. can everyone w/ fiber please describe (in detail) their symptoms and pains (where, and with what severity), how long you’ve had it, and what are your medications? also, does anyone also have ptsd?
i have been suffering for approx 1 1/2 years now, with multiple potential diagnoses, finally settling on fiber it seems. i find it hard to believe that fibro can cause me SUCH intense pain, so consistently. it is often in my joints and very often deep in my bones. my whole left leg feels like it’s broken sometimes! femur, hip joint, knee joint, shin…
i have been taking sulfasalazine and cymbalta- am currently upping the cymbalta to 90mg/day and have cut out sulfa.
i have been tested for seemingly everything- am i missing something???? can fibro REALLY be this debilitating????
i am a shell of the person i once was. maybe 10-20% of what i used to be.
Hey… OK so it’s taking me over a year with multiple diagnoses, but the current and seemingly final is fibromyalgia- no RA or anything else added in, as was previously thought.
While relieved to have some concrete idea of what’s going on, it has been a long and extremely painful and depressing & anxiety filled process. All of which, not the least being the often excruciating pain, have taken their toll.
I really need to know about others experience, SPECIFICALLY with fibromyalgia. The amount of pain I am in nearly all of the time is shocking to me! I can’t believe that fibromyalgia causes this much pain! including in my joints and bones ( at night it’s like my whole femur/ leg, hip joint, knee joint and top of shin, have been broken- they hurt so much), & my weakness & fatigue is so much I’m operating at 20% of what I used to be. My muscles ache and throb just from standing.
Please describe to me with as much detail, what types of pain you have? Where? On a scale of 1 to 10 what is the worst, and how often?
What medications are you taking and what dosage?
I have just stopped taking sulfasalazine, but am continuing the Cymbalta & raising my dosage.
Feb 21, 2017 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain
So where and how does one get these? Especially the lidocaine topical.
And if they can be purchased online or OTC, what strengths do they come in?
Nov 22, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain
hello, and thanks. i appreciate your concern about chronic pain, but i really need to get answers about RA and Fibro specifically, since that’s what i am being treated for. i will be most likely switching meds soon and need to make decisions about that. i need input about what my expectations should be, which may help with frustration. can my post be in BOTH sections?
Nov 21, 2016 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain
hi! forgive me for being redundant, but i would love to get some more direct stories from people about their experiences, as i’m really having a hard time coping! i just don’t know what is next or where will i be in 1 years, 5 years, 10 years? i was diagnosed with RA & Fibro in last year and still fiddling with meds. currently on 2000mg sulfasalazine and 60mg cymbalta daily. they had been working but seem not to be so much anymore. i can feel my RA progressing, having difficulty squeezing shampoo bottle some days, pain is spreading to more joints & sometimes the pain at night is so bad (knees) i am literally writhing and crying in pain. and then it might not be moderate for a few days… i can barely climb a flight of stairs, and small amounts of activity leave me wasted. it seems like i have flares every other day. will i be confined in a wheelchair in a few years????
here are a few questions:
what were your first symptoms (either RA or Fibro) and how long before you were diagnosed?
what is your worst symptom/s?
are your RA symptoms symmetrical?
if you have joint pain, where and how would you describe it?
are you on disability, or are you able to work?
what medications have you taken that didn’t work, what do you take that does work, and what are your side effects?
have you suffered any liver or kidney damage from meds?
how often do you have flares?
what triggers them and how long do they last?
do you have any inflammation of any organs, and if so, how has it manifested?