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17 hours ago · Small Fiber Neuropathy BOOK! in Neuropathy

I have both large and small fiber neuropathy, What do you recommend for pain? and can someone share with me what symptoms I can expect. The neuropathy is not bad, just a little in my toes. I have leg pain especially at night. I am taking Gabapentin 300 mg one in the morning and three at night., most recently Tramadol and Robaxin to take with severe pain only. I am also taking probiotics since I have ask for something more natural. Can anyone suggest anything else and advise me as what to expect as the disease progresses? My daughter was recently dx with small FN. how are these two different.? Thank you in advance. Jeanie

18 hours ago · Anyone Else With PTSD? in Mental Health

I have had PTSD for many years now, I was physically, verbally and emotionally abused for 40 years, beginning with my father. I was also raped at 17 years old while my new born baby slept just feet away. I looked for love in all the wrong places trying to replace the love I never got from my father. When I was growing up I was not allowed to cry, no matter what the reason, I was the oldest of 4 and when my mother was diagnosed with cancer, I took on the roll of caretaker for my mother and my younger sisters and brother. When my mother died at 33 years of age, I didn't cry, I buried the pain and the tears in order to stay strong for my siblings. I was 16 at the time. My life was already in shambles so over the next 30 some years abuse became the norm for me.I was married 4 times and involved with 3 other men. I spent my life in fear, compromise and total ignorance of what a normal life really was.I would see couples walking holding hands and smiling at each other and wondered how they could be so happy, I envied them, I would watch tv and see a pregnant woman, her husband listening to the baby by putting his ear on her belly, or see other people paying her a lot of loving attention, it would make me so sad because with 3 pregnancies and 2 live births I never had any of those things. I would watch this foreign behavior and wonder why, why did some women have all this love yet others had non. Was it something I had done wrong? if so what did I do? My father used to tell me I was never wanted and I should just shoot myself in the head and do the world a big favor. it was times like these I wondered why he would say those things, maybe he was right, I mean my life sure wasn't the loving, caring life I had seen people on tv have. There was a time I was bitter, full of hate and anger. I spent 30 days in a shelter for battered women. Once I could pull myself out of the corner I was faced with a new feeling, one I had never felt before. As I pondered what this new feeling was, I noticed the other women in the shelter, they were smiling, walking freely around the house, chasing their kids and talking among themselves, I wanted to join them but didn't really know how, I caught myself smiling too, suddenly I realized I wasn't fearful, I felt safe, for the first time in my life I actually felt safe. What a wonderful feeling. OMG, I couldn't believe what I was feeling, it was a good feeling and I wanted more of it. Throughout the next 30 days, each day brought a new feeling, I felt myself grow stronger, more determined, A feeling of freedom and a sense of,I think I might even make it now. wow, who was this new person I had become? It was during those 30 days that I developed the mindset that I would not allow myself to be abused anymore, this was it, it stops here and now. I now recognized myself as a valuable person, I was smart, energetic, and at 42 years old I felt young and vibrant. I finished nursing school and joined the Navy. By this time I had 4 grandchildren and I planned to be around to see them grown. I will find happiness, I will lead my own life, I will be free to make my own decisions, right or wrong I will learn what life is all about. Going to that shelter was the best thing I have ever done for myself. I walked in a battered, broken woman but I walked out a new person determined to be my own woman. I wasn't easy, it has been a hard journey, I have fallen more times than I care to mention but I have always gotten back up. PTSD is a life long illness but I am living proof that there IS life after abuse. Never, ever give in to PTSD, grow strong by finding something meaningful to focus on. Keep your spirits up, realize you will have bad days and good days. Don't let the bad days outshine the good. I am happy to say, not only have I seen my grandchildren grown but I have 7 great grandchildren, they are my joy. I still to this day have my moments but I owe my life to that shelter, What I learned there was remarkable, Sorry for such a long post, I really did try to keep it short. But I hope my story helps someone. There's so much more to my story as I am sure there is to yours. Mine is a happy ending and I pray that yours is too..Thanks for taking the time to read this… God Bless..

1 day ago · Pain in the butt - Can't sit down in Chronic Pain

After reading several posts, I am here to say I have a similar yet so different type of problem. The similarities are that it started in my butt crack, however, it involves the surrounding skin and it's the skin that is so painful. It feels like the cheeks don't separate when I sit down and that I am actually sitting on the tissue ( folds) at the coccyx area. This leads to skin breakdowns and has bleed at times. I have tried using large bandaids to try and keep the crack open but that doesn't work. I have tried other things to try to open that area when I sit but nothing has worked.. The only thing that gives me any relief is sitting on a donut shaped pillow but that relief is short lived because it starts hurting my buttocks. I am having to sit on one cheek or lay on my side when in bed. I am hoping that I can find something that will help this but I am also very concerned that with age that area will produce a decubiti and will be very hard to heal. I am 71 years old now and still active but there will come a time when that will change. hopefully not for a long time but still I have to be realistic. Has anyone ever experienced anything like this and if so I am open for suggestions. thank you

Aug 29, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

How do I find the latest comments? all I see are dated in 2016

Aug 29, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Please don't take what I am about to say the wrong way, I am very sincere in my desire to help. You said you pray and turn your life over to God on a daily basis. If you TRULY turn your life over to God you should not have to repeat it every day. Now, having said that, the next time, try letting go and letting God handle it 100%. My granddaughter suffers from headaches, hers is caused by having a sumo tumor. Nothing works for her either except having a spinal tap to relieve the pressure. Have you been checked for this disorder? Also, have you considered your medication? It could be one or more of the medications you are taking could use a change in the dose or you could be having a reaction to one or more of your meds. Have you been tested for allergies? if not, please consider doing that. Something is obviously causing your pain, medicine is a practice of the process of elimination, it sounds like you have done a lot to find something to ease your pain but leave no stone unturned in finding the cause. It could be such a small thing that is at the root of your problem, something as small as a single food allergy can reek havoc in one's life, Or, an allergy to the dye used in foods and materials can be the culprit. And like it or not it could all boil down to being psychosomatic. Stress, depression, and anxiety are no stranger to chronic pain, making the situation worse. I see where you have tried a multitude of self-help techniques and none were successful. I personally, use help healing, prayer, and mind over matter which has helped me with my pain. Self-help is not for everyone, you need to be very dedicated and you need to be totally open about it. Believe strongly in what you are doing, pick one technique and stick with it. One that you can be completely dedicated to. Keep the faith, work your self-help program, and get tested for allergies and have your Dr. evaluate your medication. I wish you all the blessings that God brings you, and know I will remember you in my prayers.

Jun 3, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Hello everyone, it's been awhile since I have been here but I am here today to tell everyone something very important. I also have chronic pain and have for years, I have tried everything but it's still there. But that's not what I am here for today. I am here to plead with everyone to make a good effort to relieve your pain with natural remedies, I know they don't always work but try anything and everything before taking narcotic pain relievers. My sister- in- law and my best friend refused anything natural, she claimed she only got relief with large doses of Percosets and Klonopin for her anxiety. She tried Methadone and Subutex and did very well on both, for a while but they stopped working for her and she was back doctor and hospital hopping to get more of what she said helped. It got so bad that she was asking strangers for a ride to the hospital because she had called EMS so many times she didn't want to call them again. She went to the hospital twice in one day, for a while, then they threatened to have her picked up if she came back again. The hospital refused to give her any narcotics and the Drs in town knew her well and they too refused to give her anything. Once in a while, she would find a Dr. that didn't know her and would give her narcotics, but once he found out she had gone through 90 Percosets in less than a week, he too refused to give her anymore. She spent her bill money every month, ( she was on SSI ) on pills, I did everything I knew to help her, but the drugs had too strong a hold on her. My sister-in-law died last week in her sleep. No matter the cause of death it would be drug-related. She was 58 years old. A wonderful woman that I love still and will miss always. I saw a woman go from 0 to 10 in a matter of weeks. Her addiction cost her her life. Yes, she had chronic pain, but X-rays, MRIs, CT scans, showed arthritis, maybe some Fibromyalgia but nothing that would have caused her as much pain as she claimed to be in. It was her addiction making her pain so bad. Not that she wasn't in pain, because the pain was very real to her, but her need for the pills outweighed everything else. She gave up on herself, the depression and anxiety became so bad she refused to bath or change her clothes, she wouldn't eat, saying she was in too much pain to eat. She wasn't sleeping much, she would wake up every 2 hours and would find it hard to go back to sleep. She lost weight, her complexion changed, She would take the pills and sleep for hours during the days, hence her not sleeping at night. She smoked and would fall asleep with a cig. in her hand and had burned holes in all her clothes, floors and her bed. I tried everything I could, I sought the help of Dr's, DSS, Social workers and even went to the magistrate for advice but no one would help, She was a drug addict and that's all they could see. They overlooked the fact that she was a human being with a huge problem. No one cares when you are an addict. I am telling this story in hopes of saving lives. Yes, chronic pain is bad but so is the addiction. Pain won't kill you but addiction will. And I might want to add, no one starts off with the intentions of being an addict. It happens slowly, you start taking narcotic pain relievers as directed, one day it just doesn't seem to work so you take one extra, ok that helped, then one day you discover your pills are running out before time to refill, what happened to them? you didn't take them, or did you? you certainly wouldn't take all those pills, someone must have stolen some of them. You begin to think about who was in your home that would have taken them, you turn on your friends because they stole from you, how dare they. You are in pain and have nothing to take, damn people, stealing your pills. You get more pills and for a while, they are working fine then it starts all over again. One just isn't enough anymore, call the Dr. but he says he can't give you anymore and the cycle begins. Then one day you don't care about anyone or anything except getting that next Percoset. You are now in a living hell and the people that love you feel it too, they worry, they plead with you, you begin to lose weight, you have no concern for your appearance, you don't bath, your hair begins to smell bad, you are in more pain now than ever before, you go from Dr to Dr. hospital to hospital, you beg for something for your pain but no one listens. Can't they understand the pain you're in? They offer you something else for pain, Are they frigging kidding? your pain is far to bad for anything else except Perocet, after all, YOU KNOW they work, whats the matter with everyone? People have changed, And life just lost its meaning. You forget things, you hurt and no one will help you. Then one day you go to bed and your problems end. You are no longer in pain, you are happy and healthy. What about the ones you left behind? you know the ones who love you so very much. what about them? The heartache, the tears, the emptiness. So folks, please, stay away from the narcotics. I know, I know, you got it all under control, you would never abuse your meds, not you. Okay, have it your way. Do me a favor though, get your will and your insurance up to date. I hope this will touch someone's heart and save their life.

Apr 28, 2018 · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

Very well put Justin. I and my sister-in-law both have been dx with chronic pain. We have both had back surgery 3 months apart. But here's the difference. I make every effort to get better. I went to physical therapy, I took my medication as directed, I do my PT exercises at home and I try to eat right, drink plenty of fluids including water every day. My sister in law, on the other hand, wants to stay in bed, eat junk food if she eats at all, only drinks Mountain Dew and has overtaken her meds to the point Dr. and hospitals refuse to give her any more.She complains constantly but rejects any suggestion anyone gives her by saying, "you/ they just don't understand, I am hurting" She lives in utter filth because she claims she hurts too bad to scrap her plate after she eats. I understand she is depressed and has chronic anxiety, PTSD etc. But she is so very non- compliant that no one can help her. Her diabetes is uncontrolled to the point that it has caused her to have to have part of a big toe amputated, her circulation is so bad, both her feet and legs up to her knees are purple and without pulses. She manipulates everyone she comes in contact with and no one will help her anymore. I am and have been trying to take care of her for the past 5 years. I have bought her food, paid her bills, cleaned her house, taken her from one Dr. to another. I have made appointments only for her to cancel them saying she just doesn't feel like going. I've tried, love, patience and understanding, I tied tough love but nothing works. I am the only one that looks after her, period and I have to confess, it is taking a toll on me. I have been told by HER Dr.s that I need to take care of myself first but I find myself back in her clutches again and again. I have bought her 2 cars both of which she wrecked within one year apart due to taking too many pain pills or Benzodiazepines, in her case Klonopin. I have given so much of myself to this woman, my family is almost ready to disown me. I simply have nothing else to give. Yet I find myself buying her soda and Cigs. both I know full well she doesn't need. I have tried to break free but can't leave her stranded. She had one other friend but she used her too many times, talked bad about her behind her back and the thing that broke the camels back was she put her cable bill in her friends' name without her consent, that did it. Her friend wants nothing more to do with her. I do understand she is in pain, but she thinks the only thing that will help her is pain pills and Benzos for her anxiety and the Dr. and hospitals are wise to her and refuses to give her anything. Writing this is my last attempt to find help for her. If anyone has any suggestions I would deeply appreciate it. I am a retired nurse so I do understand pain and anxiety and HAVE pain and anxiety myself and have for years. I have the patience of Job but I am making myself sick in my efforts to help her. I seriously feel that I am going to find her dead one day when I go to check on her.And I feel that time is getting nearer each day. Thanks for reading this. any suggestions.

Apr 28, 2018 · Long-term depression in Depression & Anxiety

Greetings, I am not new to the Mayo clinics site but I am new to this forum. I was dx with PTSD following a lifetime of abuse, naturally, depression comes with PTSD. I decided one day that I had had enough of feeling depressed and anxious, I went into my bedroom, shut the door, and I cried, I cursed, I prayed, I slept and when I woke up, it started all over again. In my case, my depression was caused by other people so in order to fully recover I needed to forgive those that hurt me.I finally forgave those people, but it wasn't easy, it took time to be able to forgive the monsters who had caused me so much grief and pain, but I am here to tell you there IS life after abuse.I still deal with depression and anxiety but it is very controlled. What helps me the most now is knowing my God the way I do. I know without a doubt that he will be there for me and every day, several times a day, I count my blessings and yes I have been truly blessed. I am 70 years old now. It took till I was in my late 40s and 50s to get a real grasp on life, but. I now own my own home, my car is paid for and I am a retired nurse. I've come along way from the scared, fragile, nervous woman I had become, to, the calm, self-caring, loving woman I am today. My life was in utter shambles for the first 40 years of my life, depression, and anxiety was all I knew. My hate and distrust ruled my life, but now I use that hate and distrust to my advantage by forgiving but not forgetting and using caution with people and places that just don't feel right. I have come to recognize my own strengths and weaknesses. I have stood up and challenged the world, I will never allow myself to be beaten down again, I will only invite loving, caring, people into my world, I surround myself with the beauty I love, things that make me feel good, things that give me the most pleasure and I remember, I am a strong woman but I could not have done it without my higher power. God by any other name is still God. I hope my story has helped at least one person. I have so much to share, so many ideas and strategies and so many experiences. I will be back. Thanks for reading this post..My name is Jeanie.