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Posts (48)

Jul 16, 2017 · How are you dealing with fatique and constipation in PD? in Parkinson's Disease

@hopeful33250 I am going to back away from this group. I wish everyone the very best of medical care and finding solutions to this terrible disease. However, I find that it is not good for my mental health to keep reading the posts and going back to trying to figure out what I could have done better for my Tom. I will keep each of you in my prayers and pray for positive results. You are all important to me but I need to take care of me right now.

Jun 22, 2017 · Meet fellow Caregivers - Introduce yourself in Caregivers

What a fun way to talk about crying – your nose gets red! Love it. I have found something to do to occupy my mind – I have having the interior of my house completely repainted which makes lots of work for me emptying closets and then putting things back together again. Doing it in phases and the first phase should be finished tomorrow other than the art work. So I can look forward to a weekend of putting things back in place.
We open our hearts on this site and I want to share a very good thing that happened to me today – a very rough day for some reason. I was in my kitchen an the tears started flowing, one of my painters walked in and saw me crying and said “I’m a hugger and you look like you need a hug”. this sweet young man – probably in his 20’t, standing 6’2″ or so walked over and just said “It’s OK to cry”. Now I am 75 and we hear mainly about the bad things our young people do – I just wanted to share this random act of kindness from someone who is hired to work in my house. It made me feel like my grandson was here giving me his special “gramma” hug.

Jun 22, 2017 · Meet fellow Caregivers - Introduce yourself in Caregivers

My husband had radiation and was also tired. He had his radiation at 9:00 am, then I brought him home and convinced him to eat a little and he would take a long nap. While he napped I went to a Pilates class and then I came home and in the late afternoon would take him out for a while. Maybe just to the park to watch the kids play in the water – nothing strenuous but outside in the fresh air. I pray you have someone to take care of you. I hope you don’t mind but I have added your name (Nancy) to my church prayer list. I don’t attend since my Tom became so ill but they are still my friends. Hang in there, Nancy, and if you need to vent, I am here. Hugs coming your way. Trish

Jun 21, 2017 · Meet fellow Caregivers - Introduce yourself in Caregivers

2shortstop80 – Nancy I have always been like you and didn’t allow myself to cry. My situation is much different from yours but I do allow myself to cry in private these days. They tell me it helps – not sure but can’t seem to stop myself. Take care of you an remember that you have friends you don’t even know – cheering you on and saying many prayers and sending good vibes your way. Wish I could to more. Trish

Jun 7, 2017 · Moods and Parkinson's Disease in Parkinson's Disease

@Jjames I have missed you and said prayers for you during the past few weeks. Wasn’t sure if I was missing things or if things were not going well for you. My heart hurts for you but you have such a strong spirit. My Tom suffered from leg pain. – I think. He was unable to communicate but when II touched him, he hurt, I could tell. Nothing seemed to help him but he was at the beginning of the end. JJames, you are such a role model for all of us who have dealt with Parkinsons – in ourselves or someone we love – you are in my thoughts and my prayers. Please if I can help in any way let me know. I fee as if you are my friend because you helped me so very much by your kind words. Prayers, my friend, for healing acceptance, and no pain.

May 27, 2017 · Thoughts from a Caregiver... in Caregivers

Thanks IndianaScott for the encouragement. I am so glad I found this site and have the friends on it I have. We are all hurting – in different ways – but the pain is the same.

May 27, 2017 · Thoughts from a Caregiver... in Caregivers

Dear Coleen, Thank you for the kind note. You know Tom and I used to bake cakes. I didn’t like making the cake but I loved making it look much too good to eat. So he would come in the kitchen and do the baking and I would decorate and then we would give half of them to someone else. We had a bachelor neighbor who loved it when we would go in the kitchen together. Tom could tell the corniest jokes and, for some reason, they made me laugh! Not long after we were married, I became upset with him over something – I don’t remember what – and I said “That’s It. I’m out of here!” He looked at me and said “Where are we going? Don’t think you are going to leave me here.” Neither of us ever threatened to leave again but we often laughed that we would go together so might as well stay home. He was so kind to everyone especially our daughter, grandson and me. Tom adopted my daughter when she was 12 after we were married – my ex was not much of a father and signed the adoption papers after I threatened him for not paying child support for years. The adoption was Tom’s idea. He called me at the office about a week after we were married and told me he had gone to see a lawyer and he hoped I wasn’t upset. Well, we had only known each other two months so I was a little leery of what he was about to say. He then told me he went to see how/when he could adopt Irene and he was worried because he hadn’t discussed it with me. Irene was my bridesmaid when Tom and I were married and when we were pronounced man and wife, she turned around and said “Hey Dad”. So I knew she wanted to have his name and the adoption went through without a hitch after the social worked talked with our neighbor who asked why he was adopting his own daughter. It’s been that was ever since. Thanks for making me think of the good times. I’m trying to go off some depression medicine and I think probably that’s a bad idea right now. Will talk with my doc on Tuesday. Happy Memorial Day to all of you and if you still have your loved one, no matter what the circumstances, hug them, tell them you love them, let them eat ice cream if they want it and make as many memories as you possible can.

May 26, 2017 · Thoughts from a Caregiver... in Caregivers

I surely know how hard it is to put your best friend, lover, companion in a Care Center. I have been there and my heart hurts for you. I am not going to tell you that it will get bettter as I don’t think it does. Just savor every minute you have with him and don’t argue when he sees someone/something or gets angry with you, His mood will most likely change quickly and then you will be his friend again. Just hug him and tell him you love him many many times every day.