Prostate Cancer Support Group

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Comments (1,913)

I'm 65 and 6 weeks into a 6 month Orgovyx regimen. I lift weights twice a...

https://connect.mayoclinic.org/comment/1254594/

Discussion: Best excercise to combat ADT therapy side effects?

Support Group: Prostate Cancer

Posted: Mar 10 9:20am

Yes, that's a good point, and my life would have been much simpler if either of...

https://connect.mayoclinic.org/comment/1153668/

Discussion: In praise of Orgovyx

Support Group: Prostate Cancer

Posted: Oct 7, 2024

scj248, still deciding in a similar situation. The PSMA PET Pylarify the first step and then...

https://connect.mayoclinic.org/comment/982156/

Discussion: Recently Diagnosed, Intermediate Prostate Cancer

Support Group: Prostate Cancer

Posted: Dec 17, 2023

My non-medical understanding: PSA rising above .2 indicates recurrence. Sweet spot for treatment. 2 - .4/.5...

https://connect.mayoclinic.org/comment/876519/

Discussion: BCR finding in PSMA test

Support Group: Prostate Cancer

Posted: Jun 11, 2023

Hey @rad62 For comparison, my PSMA scan was ordered by my team when I reached .091...

https://connect.mayoclinic.org/comment/733930/

Discussion: Living with Prostate Cancer: Meet others & introduce yourself

Support Group: Prostate Cancer

Posted: Aug 4, 2022

Your six weeks of radiation are IMRT which is the lower dose radiation. They do the...

https://connect.mayoclinic.org/comment/1151415/

Discussion: Brachytherapy: Regrets & Why ?

Support Group: Prostate Cancer

Posted: Oct 3, 2024

A 20 month vacation after being on it for 10 months is absolutely wonderful. I’ve been...

https://connect.mayoclinic.org/comment/1144807/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Sep 20, 2024

I’m a fellow Gleason nine patient. We’ve commented on each other’s threads before. Depending on what...

https://connect.mayoclinic.org/comment/1115710/

Discussion: PSA doubling time

Support Group: Prostate Cancer

Posted: Aug 1, 2024

Hi mectec and welcome to MCC. To provide better answeres to your question, it woud be...

https://connect.mayoclinic.org/comment/1297786/

Discussion: Expensive meds needed after proton beam therapy for prostate cancer?

Support Group: Prostate Cancer

Posted: May 5 8:01pm

Hi @mjp0512 , So sorry to hear about your situation. I am a layman, so this...

https://connect.mayoclinic.org/comment/1323577/

Discussion: PSMA PET results 6/6/25

Support Group: Prostate Cancer

Posted: Jun 9 10:34am

My experience, 12 months on Orgovyx. Sie effects: Fatigue Muscle and Joint stiffness Weight gain Genitalia...

https://connect.mayoclinic.org/comment/1273502/

Discussion: Are there withdrawl symptoms immediately after stopping Orgovyx?

Support Group: Prostate Cancer

Posted: Apr 3 3:05pm

Great to read comments on this important topic. I'll add a slightly different perspective. I'm 72,...

https://connect.mayoclinic.org/comment/1124020/

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Aug 15, 2024

I competed 12 months of Orgovyx in April 2024 in conjunction with SBRT to a single...

https://connect.mayoclinic.org/comment/1289216/

Discussion: Numbers After SRT/ADT

Support Group: Prostate Cancer

Posted: Apr 24 7:57pm

I had PSA persistence (0.93 6 weeks post op) after surgery probably because I was diagnosed...

https://connect.mayoclinic.org/comment/1042775/

Discussion: Treatment options for locally advanced prostate cancer?

Support Group: Prostate Cancer

Posted: Mar 30, 2024

Well, if you have read through these comments, you can see common threads: Decipher test Genetic...

https://connect.mayoclinic.org/comment/1190166/

Discussion: PSA is .4 ng/ mL 3 years after prostectomy

Support Group: Prostate Cancer

Posted: Dec 14, 2024

Chevy, consider starting ADT. Ask Tollefson for script for orgovyx and sample, if he agrees on...

https://connect.mayoclinic.org/comment/1204029/

Discussion: Gleason 3+3 to Gleason 4+5 in 7 months.

Support Group: Prostate Cancer

Posted: Jan 4 7:26pm

I had Salvage Radiation Treatment w/ short term ADT beginning 6 mos after RP. Aug 2022...

https://connect.mayoclinic.org/comment/1175953/

Discussion: I need advice to help make a decision.......

Support Group: Prostate Cancer

Posted: Nov 19, 2024

Early days for me. Initiated Eligard on 2024-04-28, subcutaneous injection giving 45mg/day and lasting 6 months....

https://connect.mayoclinic.org/comment/1160533/

Discussion: Erleada and Lupron: Does this combo wipe anyone else out?

Support Group: Prostate Cancer

Posted: Oct 21, 2024

I find this discussion very relevant. My most recent PSA was 0.08 on 1/5/2024. It was...

https://connect.mayoclinic.org/comment/994724/

Discussion: Rising PSA's after treatment - an answer

Support Group: Prostate Cancer

Posted: Jan 9, 2024

Keep the faith. I have been living with an aggressive prostate cancer, stage 3 since biopsies...

https://connect.mayoclinic.org/comment/1241887/

Discussion: Living with metastic prostate cancer: Any positive stories to share?

Support Group: Prostate Cancer

Posted: Feb 21 6:08am

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