Prostate Cancer Support Group

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Comments (2,356)

Hi Kevin. Thx for your response! Very helpful. May I pick your brain for moment? I...

https://connect.mayoclinic.org/comment/890744/

Discussion: Choline C11 PET scan: Anyone had it? Is it useful?

Support Group: Prostate Cancer

Posted: Jul 5, 2023

Are you .1 with a micro PSA test? I started .03 after RP and sat at...

https://connect.mayoclinic.org/comment/1367876/

Discussion: pT3b - what were your radiation outcomes after radical prostatectomy?

Support Group: Prostate Cancer

Posted: Aug 10 4:31pm

I'm a month off of Orgovyx, 5 months since 20 weeks of Proton radiation ended, and...

https://connect.mayoclinic.org/comment/1367228/

Discussion: Are you experiencing dry orgasm after prostate cancer treatments?

Support Group: Prostate Cancer

Posted: Aug 9 4:47pm

Hi Jeff did your cancer eventually go CR and if so what next steps did you...

https://connect.mayoclinic.org/comment/1388281/

Discussion: First PSA check after starting Firmagon

Support Group: Prostate Cancer

Posted: Sep 6 6:24pm

My PSA was under 1.0. My internist did a digital rectal exam during my annual physical--not...

https://connect.mayoclinic.org/comment/1382677/

Discussion: Last PSA Number Before Cancer Diagnosis?

Support Group: Prostate Cancer

Posted: Aug 30 11:43am

My experience after coming off 12 months of Orgovyx... Within the first three weeks, noticeable difference...

https://connect.mayoclinic.org/comment/1392298/

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: 1 day ago

Hi Jeff, I've heard it can take 18-24 month post radiation to reach your nadir. I...

https://connect.mayoclinic.org/comment/1386435/

Discussion: Next steps for metastatic low volume

Support Group: Prostate Cancer

Posted: Sep 4 9:57am

Same here, I was 68 y.o. when diagnosed in February. I was Gleason 7 (3+4). I...

https://connect.mayoclinic.org/comment/1300405/

Discussion: What side effects have you experienced from SBRT for prostate cancer?

Support Group: Prostate Cancer

Posted: May 9 10:15am

Just a few observations: It would be unusual for "loss of use of legs" (if you...

https://connect.mayoclinic.org/comment/1246952/

Discussion: Resolution of Side Effects after Stopping ADT/Lupron

Support Group: Prostate Cancer

Posted: Feb 27 8:46pm

With only Orgovyx (and no other treatment), there's a strong chance that the cancer will become...

https://connect.mayoclinic.org/comment/1096090/

Discussion: Can I Manage Testosterone w/ ORGOVYX and Skip Radiation?

Support Group: Prostate Cancer

Posted: Jun 29, 2024

I have been on Orgovyx for 44 days...my sentence is 6 months. I am a small...

https://connect.mayoclinic.org/comment/998966/

Discussion: Difficulty with androgen deprivation (ADT): what helps?

Support Group: Prostate Cancer

Posted: Jan 17, 2024

There are many 1st generation hormone therapy (i.e., ADT) alternatives to Eligard - Lupron, Prostap, Camcevi,...

https://connect.mayoclinic.org/comment/1354648/

Discussion: Recurrent prostate cancer and Eligard.

Support Group: Prostate Cancer

Posted: Jul 23 12:58pm

Hi Jeff Thanks for replying. I'm already on ADT & ARSI (Orgovyx and Nubequa). Treatment plan,...

https://connect.mayoclinic.org/comment/1343708/

Discussion: Help finding a study re treatment: EBRT plus ADT vs ADT alone

Support Group: Prostate Cancer

Posted: Jul 8 11:57am

The mayoclinic.org web page on Abiraterone lists, among its "common" side effects: - Frequent urge to...

https://connect.mayoclinic.org/comment/1338466/

Discussion: Urination every hour

Support Group: Prostate Cancer

Posted: Jun 30 11:11am

Almost 4 years on ADT (Firmagon, then Orgovyx) and Erleada. Yes, gynocomastia happens. Wear loose t-shirts...

https://connect.mayoclinic.org/comment/1369585/

Discussion: Orgovyx & Gynecomastia

Support Group: Prostate Cancer

Posted: Aug 13 7:23am

Kenk1962, along with your radiation I'm guessing you're on androgen deprivation therapy (ADT). I believe ADT...

https://connect.mayoclinic.org/comment/1364046/

Discussion: Elevated liver enzymes following radiation

Support Group: Prostate Cancer

Posted: Aug 5 8:31am

I actually added a post regarding my husband. He had surgery and radiation. It appears from...

https://connect.mayoclinic.org/comment/1327401/

Discussion: My ADT Story, Feedback Appreciated

Support Group: Prostate Cancer

Posted: Jun 15 12:24am

Hey Jeff, Doctor put me on Firmagon for 2 reasons: 1) would drop my PSA the...

https://connect.mayoclinic.org/comment/1365421/

Discussion: Started Hormone Therapy Today

Support Group: Prostate Cancer

Posted: Aug 7 6:06am

One reason to wait a year is that once you start using TRT your body won't...

https://connect.mayoclinic.org/comment/1365453/

Discussion: Anyone here after ADT undergone TRT

Support Group: Prostate Cancer

Posted: Aug 7 7:06am

| @ozelli | I looked at your post on Apr 24 4:50am, which was as follows:...

https://connect.mayoclinic.org/comment/1386987/

Discussion: Side effects and PSA after photon radiation.

Support Group: Prostate Cancer

Posted: Sep 4 11:12pm

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