Prostate Cancer Support Group

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Comments (2,356)

Just met my MO for the 1st time. She ordered another PSMA PET scan which I...

https://connect.mayoclinic.org/comment/1349789/

Discussion: 1st PSA test seven weeks after surgery

Support Group: Prostate Cancer

Posted: Jul 16 4:05pm

So how is Nubequa different than Orgovyx? I too am having huge problems wth the SE's...

https://connect.mayoclinic.org/comment/1249358/

Discussion: Switching from Lupron to Orgovyx.

Support Group: Prostate Cancer

Posted: Mar 3 10:09am

Our numbers are quite similar. My PSA was 19.9 My Gleason was 3+4. I have 8...

https://connect.mayoclinic.org/comment/1292946/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Apr 29 4:23pm

@05271935 Yes a Gleason Score of 10 really needs attention. Did they offer a Decipher test?...

https://connect.mayoclinic.org/comment/1202597/

Discussion: Radiation therapy effects: Can it cause brain fog & memory issues?

Support Group: Prostate Cancer

Posted: Jan 2 4:42pm

I am not a doctor so I cannot advise you on what to do with your...

https://connect.mayoclinic.org/comment/1186422/

Discussion: Dr Mark Scholz/PCRI

Support Group: Prostate Cancer

Posted: Dec 7, 2024

I recently started Orgovyx. I was encouraged to take Calcium and Vitamin D. (I have read...

https://connect.mayoclinic.org/comment/1272605/

Discussion: Orgovyx as lifelong treatment

Support Group: Prostate Cancer

Posted: Apr 2 12:04pm

I recently completed Salvage treatment: 4 mos of ADT Orgovyx, together with 37 IMRT radiation treatments...

https://connect.mayoclinic.org/comment/919034/

Discussion: Gynecomastia while taking hormone therapy for prostate cancer

Support Group: Prostate Cancer

Posted: Aug 26, 2023

I too am stage 4 PC. After chemo therapy (I only did 4 rounds out of...

https://connect.mayoclinic.org/comment/1326525/

Discussion: Severe Back Pain with Stage 4 Prostate Cancer

Support Group: Prostate Cancer

Posted: Jun 13 2:36pm

Yup, that fear and anxiety NEVER goes away even if it’s ZERO. I was on pins...

https://connect.mayoclinic.org/comment/1132070/

Discussion: Gleason7(3+4) - treatment options recommendation

Support Group: Prostate Cancer

Posted: Aug 28, 2024

I had an RP at ucla in 2014 Psa was 10 Gleason 3+4 Non muscle invasive...

https://connect.mayoclinic.org/comment/1119434/

Discussion: Surgery or Radiation for Intermediate Prostate Cancer?

Support Group: Prostate Cancer

Posted: Aug 7, 2024

I’ve had 4 scans The first 2 were $3000 Now most insurance companies including Medicare cover...

https://connect.mayoclinic.org/comment/1092334/

Discussion: Does a PMSA scan detect prostate cancer at the prostate bed?

Support Group: Prostate Cancer

Posted: Jun 23, 2024

Equally inquisitive about how this stage 4 goes foreword.Currently on xytiga/orgovyx only side effect is fatigue....

https://connect.mayoclinic.org/comment/918058/

Discussion: Metastic prostate Cancer Survivors - longevity and quality of life

Support Group: Prostate Cancer

Posted: Aug 24, 2023

Who would be interesting to hear what happened in those intermittent Trials. I was in chat...

https://connect.mayoclinic.org/comment/1188188/

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 10, 2024

i was diagnosed with APC , high PSA, high gleason score, few spots in bones lit...

https://connect.mayoclinic.org/comment/1066740/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 12, 2024

10+ yrs post rp Psa rise at 7 yrs Psma showed 3 pelvic nodes psa 3.6...

https://connect.mayoclinic.org/comment/1065289/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: May 10, 2024

I’d be reluctant to take Orgovyx at night being concerned that any SEs could be pronounced...

https://connect.mayoclinic.org/comment/1056557/

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Apr 24, 2024

I'll echo @robertmizek 's experience that combining ADT like Orgovyx with a second-generation ARSI like Erleada...

https://connect.mayoclinic.org/comment/1128153/

Discussion: PET Scan Results in

Support Group: Prostate Cancer

Posted: Aug 21, 2024

Waiting to meet with Medical Oncologist. I'll likely do at minimum having the spots radiated and...

https://connect.mayoclinic.org/comment/1096685/

Discussion: PSMA PET scan found cancer in rib and #3 vertebrae. Any experience?

Support Group: Prostate Cancer

Posted: Jun 30, 2024

I was on Orgovyx. Within days my hands, and some of the fingers became very painful....

https://connect.mayoclinic.org/comment/1082881/

Discussion: Eligard: any correlation with carpal tunnel?

Support Group: Prostate Cancer

Posted: Jun 8, 2024

I had some issues withe the VA and psa testing. However, anyone that has a Quest...

https://connect.mayoclinic.org/comment/901613/

Discussion: New to Prostate Cancer with a boatload of questions, but who to ask?

Support Group: Prostate Cancer

Posted: Jul 24, 2023

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