Prostate Cancer Support Group

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Comments (1,917)

We had Extra, the top plan. The lower cost plans cover the same 50% on Tier...

https://connect.mayoclinic.org/comment/1087730/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Jun 16, 2024

Letting the group know your PSA history can help the group respond better. There are newer...

https://connect.mayoclinic.org/comment/890635/

Discussion: Choline C11 PET scan: Anyone had it? Is it useful?

Support Group: Prostate Cancer

Posted: Jul 5, 2023

I'm with you on the weight. I'm pretty diligent and have actually lost a couple pounds...

https://connect.mayoclinic.org/comment/1239247/

Discussion: Starting Orgovyx - how long for side effects to occur?

Support Group: Prostate Cancer

Posted: Feb 17 1:18pm

Congratulations on finishing your treatment. Mine was similar to yours: SBRT and six months of ADT...

https://connect.mayoclinic.org/comment/1262370/

Discussion: End of treatment (I hope)

Support Group: Prostate Cancer

Posted: Mar 20 6:40am

This is all helpful and inspiring. Just started with no side effects to announce and staying...

https://connect.mayoclinic.org/comment/1236043/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 13 12:35pm

Insurance can be a real problem when it comes to a PSMA. It took almost 5...

https://connect.mayoclinic.org/comment/1259972/

Discussion: How long did you wait for PSMA scan?

Support Group: Prostate Cancer

Posted: Mar 17 12:13am

I understand that — if it ain't broke, why try to fix it? Please don't take...

https://connect.mayoclinic.org/comment/1144720/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 20, 2024

1st, I am not a MD, and my Rad Onc prescribed 37 IMRT photon radiation treatments...

https://connect.mayoclinic.org/comment/1081085/

Discussion: PSA jumped from 2 to 2.4 after four years from treatment??

Support Group: Prostate Cancer

Posted: Jun 5, 2024

4/5 mos on Orgovyx as part of Salvage treatment w/ 37 IMRT sessions Took a good...

https://connect.mayoclinic.org/comment/1041031/

Discussion: Recovery from Orgovyx?

Support Group: Prostate Cancer

Posted: Mar 27, 2024

I'm on orgovyx which is a newer drug but can cause some joint problems as well....

https://connect.mayoclinic.org/comment/1029065/

Discussion: Eligard and its effect on osteopenia and arthritis

Support Group: Prostate Cancer

Posted: Mar 7, 2024

Russ I put it together and keep it updated. It's useful when my medical team and...

https://connect.mayoclinic.org/comment/985502/

Discussion: Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Support Group: Prostate Cancer

Posted: Dec 23, 2023

Have they staged you? If your lymph system is involved you have my situation . Stage...

https://connect.mayoclinic.org/comment/970449/

Discussion: Yes or No to Radiation

Support Group: Prostate Cancer

Posted: Nov 25, 2023

When you mention his psa was high in 2011, may I ask how high was it...

https://connect.mayoclinic.org/comment/728890/

Discussion: Shrinking penis after surgery and radiation

Support Group: Prostate Cancer

Posted: Jul 20, 2022

When I search "SPPORT trial", a number of articles appear, including one from NIH. My layman...

https://connect.mayoclinic.org/comment/1164410/

Discussion: Salvage radiation therapy after radical prostatectomy

Support Group: Prostate Cancer

Posted: Oct 29, 2024

I have posted on this before... I did 12 months of Orgovyx from April 2023 to...

https://connect.mayoclinic.org/comment/1150610/

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: Oct 2, 2024

Possibly, or maybe you're just lucky that your body doesn't react that way. I've been on...

https://connect.mayoclinic.org/comment/1146163/

Discussion: Hot flushes and the vagus nerve

Support Group: Prostate Cancer

Posted: Sep 23, 2024

Yup, just have to see how the math turns out; went on it around Aug 4...

https://connect.mayoclinic.org/comment/1145170/

Discussion: Testosterone: Is everyone's level in the low numbers?

Support Group: Prostate Cancer

Posted: Sep 21, 2024

I Have been on Orgovyx for 17 months, with 1 more month to go. I talked...

https://connect.mayoclinic.org/comment/1025173/

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Feb 29, 2024

I'm now 79. PSA started rising in 2015-2016. Diagnosed with PC, Gleason 6, in early 2018....

https://connect.mayoclinic.org/comment/756463/

Discussion: What is the average age of the gentlemen on here?

Support Group: Prostate Cancer

Posted: Oct 3, 2022

Thank you again for your personal situation and information. I am sorry to hear about your...

https://connect.mayoclinic.org/comment/1294799/

Discussion: Taking Orgovyx long term

Support Group: Prostate Cancer

Posted: May 2 8:34am

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